A Friend for the Long Haul

By: A Friend for the Long Haul
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  • Summary

  • Struggling with Long Covid, ME/CFS or chronic illness? "A Friend for the Long Haul" is a long covid podcast that aims to be a supportive companion. ️ This long covid podcast can help you gain insights, find humor, & discover shared stories within a community that understands. Each episode features a long Covid patient or ally with the aim of helping you feel less isolated, because you are not alone.
    A Friend for the Long Haul
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Relationships Social Sciences
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Episodes
  • Special Season 3 Announcement!

    Special Season 3 Announcement!
    Feb 3 2025

    Hi! I remain alive! Here’s a special announcement for season 3 (!) of A Friend for the Long Haul! 💜💝
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    5 mins
  • A Friend for the Long Haul's 1st Annual Long Covid Sickstravaganza Holiday Episode

    A Friend for the Long Haul's 1st Annual Long Covid Sickstravaganza Holiday Episode
    Dec 24 2024
    Welcome to the 1st Annual Long Covid Sickstravaganza Holiday Episode! This episode features contributions from a few different lovely folks: Segment 1 features my 7 year old. We discuss what he really wants for the holidays - which is apparently for me to stop being so hard on myself. Oof.For Segment 2, The Long Covid Choir kindly shared a recording of a holiday song with us, called Alles Schweiget! Included is an introduction from choir director Merel van der Knoop. You can watch a video the choir put together on YouTube. Here are the lyrics in German and English: Alles schweiget, Nachtigallen locken mit süßen Melodien Tränen ins Auge, Schwermut ins Herz. All is Silent All is silent nightingales draw with sweet melodies tears in the eye heaviness in the heart. Music attrib. Haydn/Mozart Photography: Janne Cecilie Bjerkeland Produced: Merel van der KnoopIn Segment 3, I have a nice long chat with Lior Ocean about what a crock new year's resolutions are, and we discuss self compassion and showing ourselves loving kindness in 2025Segment 4 features Joe Glasgow, who contributed a story called If These Pillows Could TalkNina Storey kicked my ass with shares a demo of a new song called Shadows Fall (Love Myself). Nina said: "Let your audience know you inspired me after we spoke after your iron infusion, and every person dealing with a chronic illness and chronic pain or disability inspires this song too. We are all warriors." Lyrics: Shadows Fall (Love Myself) Written by Nina Storey Verse I so long alone surrounded by the noise still on my own scattered through an empty void but get up and I show up cause I've grown up in the dark and I'm bleeding but I'm breathing and I know I'm come so far Chorus shadows fall from yesterday what I've lost is far away where to go when all the love is gone when everyone has walked away and I alone have got to stay I learn to love myself and carry on Verse II take my life in minutes count them each a win when I reach the end of one, then I start to count again so I'll fake it, 'till I make it cause most don't seem to care but I'm ready and I'm clawing my way back for every breath of air Bridge I survived a stormy ride across my soul you can't break me iron veins have made me whole Chorus shadows fall from yesterday what I've lost is far away where to go when all the love is gone when everyone has walked away I alone have got to stay learn to love myself and carry on Thank you all for contributing, and thank you listeners for supporting this endeavor this year! I hope you have a lovely holiday season! To further spread some joy, there's a pretty decent giveaway happening for this special episode! Prizes are: a free month of the Calm app (not sponsored!), two free virtual dog training Sessions from Ray of Lighthouse Dog Training, a copy of Joe Glasgow's new book - Be a Hero, a signed copy of The Five Gifts: Discovering Hope, Healing and Strength when Disaster Strikes from Dr. Laurie Nadel, and a full copy of Chef Taryn of Bloom19's new Spoonie Cookbook! Chef Taryn also created a special holiday recipe for this episode, peppermint patties that are dairy free, gluten free, egg free, and refined sugar free! To enter, comment anything on this episode - also, tell me if you have a dog - or go to the giveaway post on my Instagram and comment, like, share, and tag friends for additional entries. Winners will be drawn on 12/29/2024. Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes. You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify. If you'd like to support this low budget/high love podcast, you can check out my Bonfire shop for silly long covid apparel or my Amazon wishlist,
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    1 hr and 18 mins
  • Clearing the Airwaves: A Long COVID Conversation with @kd_kinetic

    Clearing the Airwaves: A Long COVID Conversation with @kd_kinetic
    Dec 17 2024
    Welcome to season 2 episode 12 of A Friend for the Long Haul - A Long COVID Podcast! This week's guest is Katie Drackert, who most of you will know as @kd_kinetic. Katie is the founder of Clear the Air ATX, a volunteer-led, community resource library that lends out air purifiers and other COVID mitigation tools for free to artists, musicians, and independent event producers in Austin, Texas - where I lived for many years and sadly had to leave due to my COVID experience. In the pre-rona days, Katie primarily worked full time as a performance artist. When Omicron hit, things changed. In this episode, we discuss our personal experiences with chronic health issues, including long COVID, and the challenges we face managing our symptoms while advocating for ourselves and others. We share our experiences with medical treatments, their emotional impacts, and the importance of community support and self-care. The conversation also touches on our backgrounds - which are really similar despite our age difference (I am an old) as well as our many shared interests, and future plans for advocacy work and creative projects that we are both plotting. By the end of this episode, I became fully obsessed with Katie, and I think you will, too! You can find out more about Katie's advocacy work in so many places! Check out: Co-created a Zine with The Sick Times, Featured in BioWorld Med Tech, Teen Vogue, CBS Austin - Mask Bans, CBS Austin - Homeless Camping Ban, Texas Observer, Spectrum Local News, YES! Magazine, 48 Hills, KUT Austin, and Austin American Statesman. Follow Katie on Instagram Follow Clear the Air ATX on Instagram Clear the Air ATX's Linktree is full of so many resources and ways you can donate and support the org! Don't forget to like, subscribe, follow, and share A Friend for the Long Haul if you can. And if you're feeling extra generous, leave a review. Your support helps get this in front of more earballs and helps me bring more episodes.You can listen to the A Friend for the Long Haul Long Covid Theme Songs playlist on Spotify: https://open.spotify.com/playlist/3n0GXLFRWqDJyifglNNM4K?si=7948dbf2222c4392 If you'd like to support this low budget/high love podcast, you can check out my Bonfire shirt for silly long covid apparel: https://www.bonfire.com/store/a-friend-for-the-long-haul/ or my Amazon wishlist: https://www.amazon.com/hz/wishlist/ls/3MYBB5G0P7YUD?ref_=wl_share
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    1 hr and 56 mins

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