Caregivers SHARE, a St. Jude Podcast

By: St. Jude (SJCRH)
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  • Summary

  • A child’s diagnosis of a serious illness can be difficult. Families, guardians, and loved ones feel a range of emotions and need support related to their child’s treatment. Caregivers SHARE, a St. Jude podcast, is a place for family caregivers to hear advice, reflection, encouragement, and real stories from families and hospital staff. SHARE stands for Support, Honor, Advise, Reflect, and Encourage. The podcast is brought to you by Patient Family-Centered Care and Psychosocial Services at St. Jude Children’s Research Hospital.
    2023
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Episodes
  • Navigating Serious Illness with Teens and Young Adults

    Navigating Serious Illness with Teens and Young Adults
    Nov 6 2024
    In this episode, Carol Bailey and her daughter Katie talk with child life specialist Heather Haluska about going through cancer during the teen years. Katie was diagnosed with acute myeloid leukemia when she was a senior in high school. She continues to deal with chronic health conditions related to her diagnosis. Katie shares how she handled missing out on teenage experiences, used creativity as an outlet, and learned to advocate for herself in medical settings. Carol discusses learning to take time for herself. Both mother and daughter highlight the importance of communication and listening, even when they could only communicate through eye contact.

    A special thank you to our moderator, Heather Haluska, child life specialist at St. Jude; our parent caregiver, Carol Bailey; and patient, Katie Bailey.Learn more about Katie’s diagnosis of acute myeloid leukemia (AML) on Together by St. Jude™.This episode was recorded on 04/04/2024.
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    13 mins
  • Navigating Serious Illness with School-age Children

    Navigating Serious Illness with School-age Children
    Oct 23 2024
    Elnora Lee describes her 17-year journey with 3 school-age daughters navigating cancer. She talks with Randy Thompson of the St. Jude Imagine Academy about learning challenges, relationship challenges, and the importance of having compassion and empathy. She offers tips for helping a school-age child retain multiplication facts and turning trips to the store into learning experiences. Elnora emphasizes the importance of setting the tone, being firm, and focusing on the future.

    A special thank you to our moderator, Randy Thompson, STEMM coordinator, Imagine Academy by Chili’s at St. Jude, and our parent caregiver, Elnora Lee.

    Learn more about brain and spinal cord tumors on Together by St. Jude™.

    This episode was recorded on 08/05/24.
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    11 mins
  • Navigating Serious Illness with Early Childhood Children

    Navigating Serious Illness with Early Childhood Children
    Oct 9 2024
    In this episode, Ela Molina talks with Jen Harman about Ela’s daughter’s experience with cancer. Isa Molina was diagnosed with acute lymphoblastic leukemia at 22 months old. Jen was Ela and Isa’s psychologist at St. Jude while Isa went through treatment. Ela and Jen reflect on that time. They offer tips for using play, setting limits, keeping a routine, and using positive reinforcement with young children. Ela highlights how helpful child life and music therapy were for Isa in the hospital. For parents and caregivers, Jen and Ela emphasize the importance of helping others through finding their own calling.

    A special thank you to our moderator, Jen Harman, formerly Assistant Director of the Psychology Clinic at St. Jude, and our parent caregiver, Ela Molina.

    Learn more about Isa’s diagnosis of acute lymphoblastic leukemia (ALL) on Together by St. Jude™.

    This episode was recorded on 05/22/2024.
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    22 mins

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