• Community Engagement and Consent: A Conversation with Azure Hermes

  • Dec 1 2022
  • Length: 40 mins
  • Podcast

Community Engagement and Consent: A Conversation with Azure Hermes

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  • Summary

  • Community engagement and ensuring informed consent are highly important processes when engaging in co-creative research with Indigenous communities. Azure Hermes, Deputy Director of the National Centre for Indigenous Genomics (NCIG), shares her experiences navigating through these processes in her work with Indigenous communities consulting about potential uses of historical blood samples held by NCIG. Topics explored in the conversation with Azure include: Azures' process of learning how to do community engagement on complex and sometimes contentious issues Changes in ethical standards over time for conducting genetic medical research, and engaging Indigenous people in research in general How effective process of community engagement can form the basis of trust, protocols of access and informed consent, even for potentially unknown future uses of research material The challenges associated with gaining iterative consent, where consent is gained multiple times during a pr
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