
Journey Through Lipedema: Dora's Story of Discovery and Advocacy
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Empowerment Through Knowledge: Navigating Lipedema with Expert Insights and Personal StoriesIn this episode of 'Stronger Than Lipedema,' hosts Cindy and Kristy aim to empower women living with lipedema by sharing knowledge, support, and practical solutions.
Special guest Dora shares her journey from initial symptoms and misdiagnoses to discovering her lipedema diagnosis through research and consultations with Dr. Kim in Sacramento and Dr. Crawford in Roseville.
Dora discusses her experiences with pain management, conservative treatments, and navigating the healthcare system to find specialists and surgical options.
The episode highlights the importance of self-advocacy, building a medical support team, and exploring different treatment avenues for managing lipedema effectively.00:00 Welcome to Stronger Than Lipedema00:57 Meet Dora: A Personal Journey01:33 Discovering Lipedema03:37 Challenges in Finding a Diagnosis05:29 Living with Lipedema07:24 Exploring Treatment Options09:11 Preparing for Surgery13:53 Post-Surgery Experiences21:18 Traveling for Treatment26:53 Emotional and Physical Changes30:49 The Illusion of Online Photos31:07 Mental and Emotional Challenges32:35 Comparing Surgical Results34:03 Post-Surgery Struggles36:20 Compression Garments Tips38:55 Sharing Surgery Resources40:49 Unexpected Bruising and Pain49:58 Dealing with Drainage52:06 Advocating for Lipedema Awareness58:39 Conclusion and Final Thoughts
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Kristy's Contact information:
IG https://www.instagram.com/sunrisehealingaz?igsh=bnNleGpubHhhdDFr&utm_source=qr
FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfr
Website is below Kristy Dellacroce,MS,OTR/L, MLD-C
Sunrise Healing, LLC sunrisehealingaz.com
Lipedema Advocate 856-297-7437
Cindy contact information
FB: https://www.facebook.com/withcindyhowell
Private FB Group: https://www.facebook.com/groups/7021999704562921
IG: https://www.instagram.com/withcindyhowell/
Cindy Howell RN PHC MPCH
Website: www.withcindyhowell.com
Lipedema advocate: 860-550-1161