Lewy Body Roller Coaster

By: Linda and Curry
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  • Summary

  • Welcome to our podcast about living on the Lewy Body Dementia roller coaster- a podcast for Lewy Body Dementia patients and their families presented by Lewy Body patients and their families.You will hear firsthand, the ups and downs and twists and turns of Lewy Body Dementia from families directly affected as we will share our support and experiences on all things Lewy Body.lewybodyrollercoaster@gmail.com
    © 2025 Lewy Body Roller Coaster
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Hygiene & Healthy Living Physical Illness & Disease
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Episodes
  • Zoom Support Meetings: Part 1

    Zoom Support Meetings: Part 1
    Apr 23 2025

    This week is part one of a three part series. We decided to ask participants form one of our weekly zoom support meting if we could record the meeting and share with you all so you can hear how a meeting goes, what people share and how they share suggestions with one another for certain symptoms. We hope you can hear the love the people in this group have for one another. We all need to lean on one another on this Lewy journey but also keep laughter in your life.

    Listen in as Curry, Tom and Dorie, Ray, Dan and Effie, Liz and Sharon share their LBD experiences..A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show
    Show more Show less
    31 mins
  • Curry Update

    Curry Update
    Mar 13 2025




    A shout out to all of our supporters! We couldn't do this without all of ya'll. xo

    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.

    We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show
    Show more Show less
    30 mins
  • Hospice 101- Part Three

    Hospice 101- Part Three
    Feb 19 2025

    Welcome Vangie Jones, a hospice nurse for 20 years as she shares with us all we need to know about hospice including the myth that it is only for the final days or weeks. This will be a three part recording since we had so many questions for Vangie that we all want to know

    A shout out to all our supporters including Tom Lawson, Dee C, Sue, Jane Wakeman,Vickie Setterberg, Kristen Medica, Tiffany Hanna, Janice Prochaska, Kara Biller, Don Pinkos, Dee Richert, Marcia Treffman, and the Geraci's and everyone else who has been with us from day one.

    We are doing this for all of us and we thank you from the bottom of our hearts.
    Should you wish to bless us with your support you can use links below.

    Copy and paste link, if needed
    https://patreon.com/lewybodyrollercoasterpodcast
    the GoFundMe page at
    https://gofund.me/c416ecb6

    Thank you for listening each week.
    Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
    If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com

    Support the show
    Show more Show less
    33 mins
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Profile Image for Karen

Real people are giving real hope.

I am so excited at the prospect of having the film "Facing the Wind" come out soon. My husband has had LBD for a few years and I believe that education and community support is key to understanding, getting treatment, and coping with Lewy Body Dementia. I have listened and re-listened to the podcast Lewy Body Dementia Roller Coaster since about month 2. Curry and Linda have created a life changer for me and I believe for anyone who will listen. I wd rate it much higher if that was possible.

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Real stories - unscripted!

I love that people are allowed to tell their Lewy Love stories. The journey is so different for each one.

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