MyFSHD

By: Peter L Jones PhD
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  • Summary

  • MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.
    Peter L Jones, PhD
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Episodes
  • Fulcrum follow-up with our Angry Dad

    Fulcrum follow-up with our Angry Dad
    Sep 28 2024

    "Show me the money!" Brad our Angry Dad sits down with us and asks the questions on his mind about the Fulcrum results and others going forward.
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    1 hr and 37 mins
  • Our take on the REACH losmapimod clinical trial results

    Our take on the REACH losmapimod clinical trial results
    Sep 19 2024

    "I always tell the truth, even when I lie." Today we are joined by our CRISPR Goddess and cover the Fulcrum Therapeutics REACH phase 3 clinical trial data release and discuss our journey with Fulcrum from the beginning. While very disappointing from several aspects, in the end a lot of benefit truly has been gained for the FSHD field and we are grateful for Fulcrum's contributions to help others going forward. And there are many others coming along, this is the beginning and not the end for FSHD therapeutics.
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    1 hr and 58 mins
  • A FORTITIDE follow-up with our (not so) Angry Dad.

    A FORTITIDE follow-up with our (not so) Angry Dad.
    Jun 22 2024

    "There's a time for daring and there's a time for caution, and a wise man understands which is called for." Brad our Angry Dad is back with some questions for us on the Avidity FORTITUDE AOC 1020 phase 1/2 trial interim data report and some muscle building.
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    1 hr and 16 mins
Management Economics
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