PANS/PANDAS STORIES

By: Jo Joyner and Lucy McDonald
  • Summary

  • Welcome to The PANS/PANDAS Stories. In the first series, actor and charity campaigner Jo Joyner, and child counsellor and journalist, Lucy McDonald, meet children and families affected by this neuropsychiatric disorder. They also interview experts at the cutting edge of treatment. Awareness is growing, and the pair hope this podcast will offer hope and support to sufferers as they navigate an often long and complicated road to recovery. Disclaimer - Episodes can contain upsetting themes. It does not replace medical advice.
    Jo Joyner and Lucy McDonald
    Show more Show less
activate_Holiday_promo_in_buybox_DT_T2
Episodes
  • Nutritionist Lucinda Miller on brain health, histamine, and the healing power of good food
    Sep 20 2024

    Lucinda Miller is back to talk about her new book Brain Brilliance. It looks at how what you eat affects your health and mood.

    The book is described as a nutritional toolkit for neurodivergent kids, and is full of healthy and delicious recipes, as well as chapters on what to eat for certain symptoms. It is heavily academically-referenced (550, I think!), and she recommends nutrients and foods that support the immune system.

    She talks about every day supplements most children can tolerate, growing incidences of high-histamine and what this means, the three different stages of immunity and how to move children back into a place of safety and out of auto-immune issues through diet and supplementation.

    Some links about things we spoke about...

    Here is me from my time as a food blogger - at Crumbs Food - making Cake in a Cup. Here is the study on auto immunity, and the Adverse Childhood Experience Study


    Next month is devoted to PANS PANDAS and education. We kick off a mini series with Naomi Fisher and her latest book When The Naughty Step Makes Things Worse. Then we have PANS PANDAS UK's very own Tina Coope who has loads of good tips, and whose work on the charity's education and care steering group will make a real difference to many of our community's lives.

    Show more Show less
    39 mins
  • Supporting PANS PANDAS parents with top US therapist Julie Cox
    Sep 5 2024

    Julie Cox is the mother of all PANS PANDAS therapists and she has been working with these children and families for the last 20 years after her daughter got the illness. She has poured her personal and professional knowledge and compassion into her therapy work with sufferers. A big part of that is also coaching parents and families on how to survive when the going gets tough - as it frequently does due to the waxing and waning nature of the illness. Sound familiar?!

    In this warm chat, Julie weaves in her personal experiences and professional expertise. Explaining how validation for parents is important, emphasising how therapists must work with these children differently and recommending lots of resources (Stephen Porges, Deb Dana, Dan Siegel and Dr Ross Greene).

    I loved chatting with her and was sorry we ran out of time as we had so much to say. The good news is she has promised to come back later in the year. Thank you, Julie! For more information on her therapy practice in NY https://www.juliecox.org/pandas-pans-therapy-westchester-ny and her global 1:1 parent coaching sessions at www.parentingwithpans.com/coaching She is about to start a membership with video lessons and group support.


    Show more Show less
    38 mins
  • Ep 9: IV with Amy Joy Smith on the enemy within - mould and PANS
    Apr 2 2024

    Amy Joy Smith is a legend in the community, and one of the first practitioners to help children heal from PANS/PANDAS. She has helped hundreds of families, and her compassionate, rigorous approach ensures that children get better.

    In this episode she talks about mould - or more specifically the mycotoxins that certain moulds release, that can be so damaging to health. She talks about her personal journey with mould, how to treat it, and the most important thing....."getting out" - leaving the mouldy environment.

    I've known Amy for many years and loved speaking with her.

    She mentions Dr Shoemaker's survivingmold.com website as a good resource.

    Her website is here but she has a long waiting list.

    Hope you enjoy it!



    Show more Show less
    1 hr

What listeners say about PANS/PANDAS STORIES

Average customer ratings

Reviews - Please select the tabs below to change the source of reviews.