PV Pod: Stories from the Marrow

By: BloodStream Media
  • Summary

  • The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community. Transparency Statement: The PV Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more. The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
    2023
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Episodes
  • Gary Linehan's Mont Blanc Adventure - Part 2
    Sep 17 2024

    We’re back with Gary Linehan, an avid hiker living with polycythemia vera (PV) to talk about his incredible hike around Mont Blanc. Gary shares his journey, the challenges he faced, and the heartwarming connections he made along the way, emphasizing the importance of living life to the fullest despite a PV diagnosis. Tune in to hear Gary's wisdom, inspiring stories, and how he continues to thrive and advocate for the PV community.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Show more Show less
    20 mins
  • Journey Beyond Diagnosis: Gary Linehan's Hike and Hope
    Aug 26 2024

    On this episode, Gary Linehan, an experienced educator and avid hiker, shares his profound journey from being diagnosed with polycythemia vera (PV) in 2021 to embarking on ambitious hiking adventures, including the Tour Mont Blanc. Linehan discusses his initial symptoms, the challenges of misdiagnosis, and the crucial support system that includes his wife, children, and friends. He also shares insights on how he physically and mentally prepares for his hikes, and offers valuable advice for others newly diagnosed with rare diseases.

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    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Show more Show less
    23 mins
  • What to Know about Progression in Polycythemia Vera
    Jul 2 2024

    On this episode, Dr. Douglas Tremblay from Mount Sinai School of Medicine in New York City discusses progression in polycythemia vera (PV). He elaborates on the transformation of PV into other diseases such as myelofibrosis and acute myeloid leukemia (AML), different ways progression can be defined, and the factors that contribute to the risk of progression. Dr. Tremblay also addresses the significant concern patients have regarding disease progression and the challenges in predicting and preventing it. Furthermore, he explores the role of the JAK2 mutation, inflammation in the bone marrow, and various treatment strategies aimed at controlling the disease and preventing its progression.

    Transparency Statement:

    The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.


    The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

    Show more Show less
    24 mins

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