Powerhouse Podcast

By: United Mitochondrial Disease Foundation
  • Summary

  • The United Mitochondrial Disease Foundation hosts the Powerhouse Podcast to discuss all things related to mitochondrial disease, research, and the patient journey. Featured guests include patients, caregivers, researchers, physicians and passionate advocates.
    ©2024
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Episodes
  • Powerhouse Special Edition on Advocacy with Miranda Franco
    Sep 30 2024

    On this special edition of the Powerhouse Podcast, Miranda Franco, Senior Policy Advisor for Holland & Knight, joins us for a recap of new movements in mito-related legislation and the ways we could use your help in governmental advocacy for the mitochondrial disease patient community. Take action at umdf.org/advocacy.

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    24 mins
  • Mito Moms for World Mitochondrial Disease Awareness Week
    Sep 4 2024

    This latest episode of the Powerhouse Podcast is all about sharing your story and raising mito awareness. For this special edition Powerhouse, we had amazing talks with:

    • Lindzi Scharf, Mito Mom, Journalist and founder of Retaility.com
    • Linda Ramsey, Mito Mom, UMDF Support Ambassador, and 2024 Energy Award Winner
    • Nikki Huggan, Mito Mom, UMDF Support Ambassador, and Vice-Chair of PA's Families to the Max.

    With World Mitochondrial Disease Week 2024 around the corner, we dig deep into all the many ways that we can tell mito stories and pave the way for other patients and families with mitochondrial diseases-- whether in published works, social media sharing, grassroots presentations, or even advocacy work on the state level. #IlluminateTomorrow and Raise your Voice.

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    1 hr and 23 mins
  • POWERHOUSE July 2024: Leslie Kirby, Co-Founder of Run4Raley
    Jul 30 2024

    Join us for the Powerhouse Podcast this month featuring Leslie Kirby, co-founder of Run4Raley, as the Kirby family is heading into their 17th year of their fundraising event in Philo, IL. Leslie shares about the work they've done as a tribute to their daughters, Raley and Aubree, at their local hospital and in fundraising for UMDF to help other families like them. Learn more about Run4Raley and Hope4Aubree at run4raley.org

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    41 mins

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