This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.

Event Alerts:

Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)

Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary

Philly Proud Stutter Gathering – May 19

Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)

And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!

Bobby Glen shares his family's journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support.

This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills.

Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.

If you'd like to reach out to Bobby, you can email him at glennrw@gmail.com.

Maya, Caitlin, and Elliot are back to discuss stuttering on Survivor Season 48, Episode 8, and the latest twists and turns in the episode. From alliances and drama to strategic plays and surprise advantages, they break down all the key moments you won't want to miss.

In this episode

Register for Proud Stutter's Stuttering Awareness Week event on May 8

Use promo code PROUD25 at checkout for a free ticket.

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Learn more about Proud Stutter's impact campaign for its film project at proudstutter.org/impact

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