Rare Care Podcast

By: Rare Care Podcast
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  • Summary

  • Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
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Hygiene & Healthy Living Science
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Episodes
  • 145: An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroimmune Association

    145: An Interview With Sandy Siegel, Founder and President of the Siegel Rare Neuroimmune Association
    Nov 22 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Sandy Siegel, founder and president of the Siegel Rare Neuroimmune Association. Siegel started the charity 30 years ago with his wife, Pauline, after she was diagnosed with transverse myelitis. After Pauline's death in 2017, the organization expanded to include five other rare neuroimmune diseases including neuromyelitis optica spectrum disorder (NMOSD).
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    16 mins
  • 144: An Interview With Anastasia Vishnevetsky, MD, MPH, on the Use of Cannabis to Treat NMOSD

    144: An Interview With Anastasia Vishnevetsky, MD, MPH, on the Use of Cannabis to Treat NMOSD
    Nov 14 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Anastasia Vishnevetsky, MD, MPH, of Massachusetts General Hospital and Harvard Medical School. Dr. Vishnevetsky is heading a groundbreaking clinical trial of the cannabinoid spray nabiximols in treating the symptoms of NMOSD.
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    17 mins
  • 143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H

    143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H
    Nov 5 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ignacio Muñoz-Sanjuan, PhD, the president and founder of Factor-H—a Los Angeles-based nonprofit organization that works to alleviate extreme poverty among people with Huntington disease in Venezuela, Colombia, and Peru.
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    16 mins

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