Rare Diseases Medical Conversation

By: COR2ED Medical Education
  • Summary

  • Join medical experts as they discuss their approaches to identifying, treating, and managing rare diseases, like primary biliary cholangitis, neuroendocrine tumours, rare bone diseases, and growth disorders. The conversations also explore the evolving treatment landscape, including exciting innovations in gene therapies and the use of somatostatin analogues. This independent medical education podcast is for HCPs with the ultimate goal of improving care for their patients. For more information, visit www.cor2ed.com
    © 2023
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Episodes
  • Neuroendocrine tumours (NETs) – Shared decision-making. Part 2: Individualising treatment decisions
    Sep 11 2024

    In this second episode of a two-part podcast series focusing on neuroendocrine tumours (NETs), gastroenterologist Dr Mohid S Khan and NET patient Sally Jenkins explore shared decision-making, between patient and physician.

    The speakers discuss different treatment settings, including home vs hospital-based injections, as well as the importance of individualising treatment decisions, as there is often no standard therapy for patients with NETs. Finally, they look at some of the studies reporting patient preferences, and how the data can be used to inform patient decisions.

    Prefer to watch and listen?
    Watch the video and download the full transcript on the COR2ED website https://cor2ed.com/net-connect/programmes/net-shared-decision-making/?media=1

    Watch the full video on YouTube https://youtu.be/2JYuPhc2jHg

    Watch the highlights video on YouTube – https://www.youtube.com/watch?v=pPMVLjPLv8k

    Follow us on social media

    LinkedIn: https://www.linkedin.com/company/cor2ed-net-connect

    X: https://x.com/net_connectinfo

    This content is intended for healthcare professionals only.

    The medical experts in this podcast are expressing their own views and not those of COR2ED, Supporters or their institution. This podcast is supported by an Independent Medical Education Grant from Ipsen

    This podcast is developed by cor2ed.com

    Published July 2024

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    23 mins
  • Neuroendocrine tumours (NETs) – Shared decision-making. Part 1: Patient journey
    Sep 11 2024

    In this first episode of a two-part podcast series focusing on neuroendocrine tumours (NETs), gastroenterologist Dr Mohid S Khan and NET patient Sally Jenkins discuss the importance of communication and collaboration during consultations. This can include how to make a patient feel as comfortable and in control as possible, as well as recognising their goals and concerns.

    The speakers share their real-life experiences of what makes a good consultation, from the perspectives of both a patient and a physician. They also explore the importance of support networks, individualising treatment, and the impact of NET and NET treatment options in daily life.

    NETs are complex, rare diseases. Optimal management and treatment requires early diagnosis, shared decision-making, and timely referral. Are you aware of how healthcare practitioners and patients can share decision- making? Or the recent data on how patients prefer to receive treatment?

    In this first episode of a two-part podcast series, Dr Mohid S Khan and NET patient Sally Jenkins discuss shared decision-making in NET consultations and ways to help the patient in their journey.

    Prefer to watch and listen?
    Watch the video and download the full transcript on the COR2ED website https://cor2ed.com/net-connect/programmes/net-shared-decision-making/

    Watch the full video on YouTube https://youtu.be/YgqrEnSePWg

    Watch the highlights video on YouTube – https://www.youtube.com/watch?v=pPMVLjPLv8k

    Follow us on social media

    LinkedIn: https://www.linkedin.com/company/cor2ed-net-connect

    X: https://x.com/net_connectinfo

    This content is intended for healthcare professionals only.

    The medical experts in this podcast are expressing their own views and not those of COR2ED, Supporters or their institution. This podcast is supported by an Independent Medical Education Grant from Ipsen

    This podcast is developed by cor2ed.com

    Published July 2024

    Show more Show less
    30 mins
  • Regional differences in NET: Treatment and future developments
    May 28 2024

    In the second episode of a two-part podcast series, Prof. Martyn Caplin and Prof. Rachel Riechelmann discuss how to optimize treatment for people living with NETs and future developments in the field which may help to improve patient outcomes. The episode includes information on different treatment options and modalities, and well as best practice on identifying which patients may benefit most from particular treatments using available biomarkers.

    Prof. Martyn Caplin is Professor of Gastroenterology and GI Neuroendocrinology at the Royal Free Hospital and University College London, UK, he also leads The Royal Free London “European Neuroendocrine Tumour Society’s Centre of Excellence” and the UCL Academic Neuroendocrine Tumour Unit, which includes leading scientific and clinical research programmes into NETs. Prof. Rachel Riechelmann is a medical oncologist and clinical scientist focused on colorectal/anal cancers and NETs. Director of the Clinical Oncology Department, AC Camargo Cancer Center, in Sao Paulo, Brazil and is Head of the Neuroendocrine Tumors Reference Center.

    Prefer to watch as well as listen?

    Watch a video of the experts in conversation and download the full transcript on the COR2ED website: https://cor2ed.com/net-connect/programmes/regional-differences-neuroendocrine-tumours-nets-2/

    Or go to the video on YouTube: https://youtu.be/zd_JvUmIhFg

    We are pleased to share that this podcast is endorsed by the North American Neuroendocrine Tumor Society (NANETS). You can find out more about NANETS at https://nanets.net/

    The medical experts in this podcast are expressing their own views and not those of COR2ED, supporters, or their institution. This podcast is supported by an Independent Medical Education Grant from Ipsen.

    This podcast is developed by cor2ed.com

    Show more Show less
    21 mins

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