• Rett Syndrome Today: Current Options for Symptom Management

  • Mar 2 2023
  • Length: 32 mins
  • Podcast

Rett Syndrome Today: Current Options for Symptom Management

  • Summary

  • Rett syndrome affects many organ systems, and each patient has individual symptoms and experiences—there is no “one-size-fits-all” treatment approach. In this podcast episode, Rett syndrome experts David N. Lieberman, MD, PhD, and Shannon Standridge, DO, MPH, discuss some of the more common manifestations of Rett syndrome and current management strategies. While covering manifestations such as epilepsy, behavioral issues, and gastrointestinal distress, they highlight the value of a team approach to help the patient thrive. Throughout their conversation, Drs Lieberman and Standridge weave in real-world examples of interactions they have had with families of patients with Rett syndrome and offer insights on communication strategies for different aspects of management.

    Presenters:

    David N. Lieberman MD, PhD
    Instructor
    Department of Neurology
    Harvard Medical School
    Attending Physician
    Child Neurology
    Boston Children’s Hospital
    Boston, Massachusetts

    Shannon Standridge, DO, MPH
    Professor
    Division of Neurology
    Vinaya Rett Syndrome and Related Spectrum Disorders Clinic
    Cincinnati Children’s Hospital Medical Center
    Cincinnati, Ohio

    This activity is supported by educational funding provided by Acadia Pharmaceuticals Inc.

    To claim CME/CE credit for this podcast, complete the posttest here: 
    http://bit.ly/41CeaeP

    For additional activities in this program, visit 
    http://bit.ly/3lXuzda

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