• S1E4: Advocacy

  • Apr 14 2019
  • Length: 16 mins
  • Podcast

  • Summary

  • In this episode, we begin by reflecting on the counselling interventions and issues raised in episode 3: testing of children. We then introduce a new case about Kaitlin* and her husband Ben, who encounter a difficult decision in pregnancy.

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    More information about topics referenced in our discussion:

    • Shkedi-Rafid, et al. (2014), Genetic testing of children for adult-onset conditions: opinions of the British adult population and implications for clinical practice, Eur J Hum Genet 23, 1281–1285.
    • Metcalfe, et al. (2008), Family communication between children and their parents about inherited genetic conditions: a meta-synthesis of the research, Eur J Hum Genet 16(10): 1193-1200.

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    http://www.gcchatpodcast.libsyn.com

    *Pseudonyms are used throughout

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