Schizophrenia: Three Moms in the Trenches

By: Randye Kaye
  • Summary

  • Schizophrenia in the Family. How do we cope? How can we help? We each have adult sons with schizophrenia and have written acclaimed books about it. We say it like it is, to help families, practitioners and those with SMI (serious mental illness) feel less alone...and learn. Randye Kaye, Mindy Greiling, Miriam Feldman...and guests.
    © 2024 Schizophrenia: Three Moms in the Trenches
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Episodes
  • Should our Loved One with SMI Live With Us?
    Nov 19 2024

    Send a Text to the Moms - please include your contact info if you want a response. thanks!

    Welcome to this episode, where we explore a deeply personal and often complex topic: the choice to have relatives with severe mental illness live at home with family.

    Joined by listener guests, we dive into the emotional, practical, and ethical aspects of this decision.

    Is home the best place for healing and connection, or do the demands overwhelm family dynamics? How do caregivers balance compassion with self-care? And what role should professional support play?

    You’ll hear heartfelt stories, honest discussions of the challenges, and perspectives on what works—or doesn’t. Tune in for an insightful conversation about navigating this delicate choice.

    Insights and Learnings from the chat:


    • You have a right to feel SAFE in your own home
    • Be clear on your boundaries and be prepared to follow through
    • Each US state has different services and laws
    • The decision is heartbreaking
    • Learn all you can
    • Ask for help and info
    • Share this podcast with people you know need it
    • It is always helpful to hear other stories
    • Act while the loved one is in the hospital
    • Case manager does need to do their part - let them, partner with them
    • Get it in writing. Have a written contract with your loved one which includes consequences for the main what ifs and each of you—parent, loved one, case manager keep a copy.


    SZ 3 Moms episodes referenced:


    #6: Conservatorship

    #14: NAMI Family-to-Family

    #18: Rethinking Clozapine

    #27: I am Not sick, I Don’t Need Help (anosognosia)

    #30: Clubhouse International

    #36: Difficult Mothering (Judith R Smith)

    #43: Family Support Services

    #50: SSI/SSDI

    #99: Pooled Trusts

    #105: Housing

    Mindy and her book:
    https://mindygreiling.com/

    Randye and her book: https://www.randyekaye.com/

    Miriam and her book: https://www.miriam-feldman.com/





    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman


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    1 hr and 10 mins
  • Meaningful Recovery in SMI: Expanding Access to Treatment that Works (Ep.107)
    Oct 23 2024

    Send a Text to the Moms - please include your contact info if you want a response. thanks!

    Guests:

    Robert S Laitman, MD,

    Mimi Liu, Doro Mind

    At Doro Mind. the mission is to provide compassionate, accessible, and dynamic care and support for individuals suffering from psychosis and their caregivers.


    Dr. Robert Laitman is a psychiatric internist dedicated to changing the treatment paradigm for psychosis. He is the author of “Meaningful Recovery from Schizophrenia & Serious Mental Illness with Clozapine” which outlines his families personal story supporting his son through schizophrenia and pioneering a novel evidence based approach to psychosis treatment with clozapine.

    Mimi Liu is the former COO & CTO of Firefly Health, where she led operations and tech for delivering integrated primary care and behavioral health services. Mimi leads Doro Mind with the personal passion that comes from supporting her brother through his journey with psychosis.

    Into the Light movie episode : #94



    Links:

    https://www.doromind.com/

    https://www.teamdanielrunningforrecovery.org/


    Dr. Laitman’s book:

    https://a.co/d/iLrDwvC

    Daniel Laitman on Youtube:

    https://youtu.be/uBdJWFvP-uc?si=8ECR7DfhDGc3gdHx



    Mindy and her book: https://mindygreiling.com/

    Randye and her book: https://www.randyekaye.com/

    Miriam and her book: https://www.miriam-feldman.com/

    Brilliant Beaver Guidebook - Audio Version
    Engage kids aged 6-9 with fun, screen-free activities from the world of scouting

    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman


    Show more Show less
    1 hr and 10 mins
  • Trauma-Informed Parenting: Help for Support and Healing (Ep. 106)
    Oct 16 2024

    Send a Text to the Moms - please include your contact info if you want a response. thanks!

    Guests: Suzy DeYoung, Catherine Galda, Trauma Informed Parent

    When parents are Trauma Informed they are better equipped to help their children heal - and to take care of themselves. Trauma Informed Parent offers information, resources and perspective for parents and caregivers of children, teens and young adults who have experienced trauma or adverse childhood experiences.

    We Talk About:

    • How did you get into this line of work? What do you hope to achieve?
    • What are behaviors/issues/symptoms in young people that could be indicative of something trauma or mental health related?
    • What are the most important things to know as a parent or caregiver of a young person who has had a traumatic experience?
    • What about the trauma to the whole family when mental illness strikes a loved one?
    • Value of Early Intervention and Treatment, and Structure.

    Links:


    Trauma Informed Parent 👍

    http://www.traumainformedparent.com/


    Facebook Page

    https://www.facebook.com/traumainformedparent


    Instagram

    https://www.instagram.com/traumainformedparent/


    YouTube

    http://UCDfje87BkDGkpxcg1fvqO_w


    Mindy and her book: https://mindygreiling.com/

    Randye and her book: https://www.randyekaye.com/

    Miriam and her book: https://www.miriam-feldman.com/



    Hosts:

    Who:

    Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

    Miriam Feldman - is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

    Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.



    Brilliant Beaver Guidebook - Audio Version
    Engage kids aged 6-9 with fun, screen-free activities from the world of scouting

    Want to know more?
    Join our facebook page
    Our websites:
    Randye Kaye
    Mindy Greiling
    Miriam (Mimi) Feldman


    Show more Show less
    55 mins

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The First Place You Should Go to Educate Yourself!

My brother has schizophrenia and after taking custody of him, I went to NAMI for support meetings. A woman in the meeting suggested I listen to these podcasts, and I can say that listening to these has had a profound effect on myself as a caregiver and has altered our family's plan for his treatment in a positive way. Along with NAMI, I think it should be a caregiver's first stop for education if you are dealing with serious mental illness. I only wish I had come here first to listen a decade ago so we would have been better armed to deal with all the crises that inevitabley unfold when your loved one is mentally ill and the system around you is broken.

Keep those episodes coming ladies!

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HOPE! Recovery IS probable!

Carson, I am appreciative of your courage and vulnerability to share your story! The messages you delivered here are powerful; ones of expression, determination, and resiliency. YOU are beyond words admirable; you are an advocate! I can’t thank you enough for being a voice for those who are unable to use theirs now. You are a survivor, a warrior, and you radiate HOPE!

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Amazing!!!!

This made me have incredible hope for my son. Made me cry tears of joy! Keep up the great work!
Dorie Steidle

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