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The NOGGINS AND NEURONS Podcast

The NOGGINS AND NEURONS Podcast

By: Stroke & Brain Injury
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 Stroke and Brain InjuryCopyright 2021 All rights reserved. Hygiene & Healthy Living
Episodes
  • Winning the Fight Against ALS-Part 1

    Winning the Fight Against ALS-Part 1
    Jul 3 2025
    EPISODE TITLE: Winning the Fight Against ALS-Part 1 (with Deanna Tedone and Dr. Vincent Tedone) EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease with Dr. Tedone, the founder of the Deanna Protocol and his daughter, Deanna, who was diagnosed with ALS 13 years ago. In this podcast, Dr. Vincent Tedone and Deanna Tedone discuss: The development of the Deanna Protocol Dr. Vincent Tedone describes his research and the development of the Deanna Protocol, which includes AKG and GABA.Deanna experienced significant improvements in muscle symptoms and functional abilities after receiving the AKG and GABA combination.The Deanna Protocol was tested on ALS mice, showing suppressed muscle symptoms, slowed disease progression, and increased energy production.The findings were documented in a paper and a book, "The Deanna Protocol: Winning the Fight for Neurodegenerative Diseases." Discovery of Borrelia Infection In 2015, Deanna was tested for a Borrelia infection, which was positive, despite previous negative results from commercial laboratories.Deanna developed severe meningitis, and Dr. Vincent Tedone convinced the infectious disease doctor to treat her with IV antibiotics.The IV antibiotics successfully treated Deanna's pain, and she continued the post-antibiotic regimen until 2018.Dr. Vincent Tedone believes that all neurodegenerative diseases are caused by infections, primarily Borrelia. Challenges and Resistance in Medical Research Dr. Vincent Tedone discusses the challenges and resistance he faced when trying to get academic institutions to fund clinical trials for the Deanna Protocol.He emphasizes the importance of treating the cause of the disease rather than just the symptoms.Dr. Vincent Tedone shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other neurodegenerative diseases.He highlights the need for further research and the potential for the Deanna Protocol to be effective in treating various neurodegenerative diseases. Clinical Experience and Intensive Therapy Doro, shares her clinical experience working with Deanna and the intensive therapy program they designed.Deanna's progress and improvements were significant, and the traditional ALS progression did not occur.Doro emphasizes the importance of not treating Deanna like she has ALS and the positive changes observed in Deanna's muscle building and overall function.The discussion shifts to the role of glutamate, AKG, and GABA in the Deanna Protocol and their impact on nerve cell communication. Impact of Borrelia Infection and Immune System Dr. Vincent Tedone explains the impact of Borrelia infection on the immune system and the body's response to inflammation.He describes the role of the gut microbiome in controlling the brain and the potential link between vaccines and autism.The conversation touches on the importance of the immune system in maintaining health and the potential impact of mRNA vaccines on the immune system.Dr. Vincent Tedone discusses the common denominator in neurodegenerative diseases and the potential for the Deanna Protocol to be effective in treating various conditions. Conclusion and Future Research Dr. Vincent Tedone expresses his frustration with the lack of focus on the cause of diseases and the need for further research.He shares anecdotal evidence of the Deanna Protocol's effectiveness in treating Alzheimer's disease and other conditions.The discussion highlights the importance of treating the cause of diseases rather than just the symptoms.The episode concludes with a call for further research and the potential for the Deanna Protocol to revolutionize the treatment of neurodegenerative diseases. Resources and References: ALS specific websites & show References Als.orgI Am ALSWinning The FightNational Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS) Deanna's Book The Deanna Protocol _ Book Dr. Tedone's Treatment The Deanna Protocol Website Maintaining Optimal Quality of Life Support groupsProper equipment & Knowledge of useRESOURCES: ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries 813-637-9000 infoFL@als.org Community support groups & counselingTransportation assistanceEquipment loan bank-people with ALS can borrow assistive equipment on long term basisAssistance finding & obtaining community & government resourcesMultidisciplinary medical care under one roofFAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and ...
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    57 mins
  • ALS: The Classic Medical Perspective

    ALS: The Classic Medical Perspective
    May 28 2025
    EPISODE TITLE: ALS: The Classic Medical Perspective EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Doro and Deb talk about Amyotrophic Lateral Sclerosis (ALS) or, Lou Gehrig’s Disease. We covered: What is ALS?Signs & symptoms of ALS including: Affects voluntary muscles-hands, forearms, legs. Early symptoms include: Fasciculations- spontaneous, uncontrolled discharges of motor neurons; irregular twitchings: Muscle twitches in the arm, leg, shoulder, or tongueMuscle crampsTight and stiff muscles (spasticity)Muscle weakness affecting an arm, a leg, or the neckSlurred and nasal speechDifficulty chewing or swallowingDifficulty walking, picking up objects, fine motor tasks Ongoing/Later symptoms:Chewing food and swallowing (dysphagia)Drooling (sialorrhea)Speaking or forming words (dysarthria)Breathing (dyspnea)Unintended crying, laughing, or other emotional displays (pseudobulbar symptoms)ConstipationMaintaining weight and getting enough nutrientsFrontotemporal dementia Dementia that affects the frontotemporal lobe.Affects thinking, talking, walking, and socializing.FTD and other frontotemporal disorders are a common cause of early-onset dementia, often appearing when people are in the prime of life. Families often suffer, as they struggle to cope with the person's daily needs as well as changes in relationships and responsibilities. Risk Factors (National Institute of Neurological Disorders & Stroke)-Having a risk factor does not mean a person will or will not get a disease Age—Although the disease can strike at any age, symptoms most commonly develop between the ages of 55 and 75.Biological sex—Men are slightly more likely to develop ALS than women. However, at older ages, men and women are equally likely to be diagnosed with ALS.Race and ethnicity—Whites and non-Hispanics are most likely to develop the disease, but ALS affects people of all races and ethnic backgrounds. National Institute of Neurological Disorders & Stroke/ALS.orgSome studies suggest military veterans are about one and a half to two times more likely to develop ALS, although the reason for this is unclear. Possible risk factors for veterans include exposure to lead, pesticides, and other environmental toxins. Some studies have also shown that head injury can be associated with higher risk for ALS, but more research is needed to understand this connection.For about 90% of all cases, there’s no known family history of the disease or presence of a genetic mutation linked to ALS.For 5-10% of all cases, there’s a known family history of the disease. This is often called familial ALS. ALS.org In families with familial ALS, there is a 50% chance each offspring will inherit the gene mutation and may develop the disease.Medical treatment-involves medicationsCommon PT & OT interventions Assistive technology & Communication devices OBI – independence with feedingBattery-operated salt & pepper shakersSteady spoon if tremors are presentBuilt up handle utensilsEazy Hold grip aidsUniversal cuffDivided Dish GUS communication devices ALS specific websites & show References orgI Am ALSWinning The FightNational Institute of Neurological Disorders and Stroke-Amyotrophic Lateral Sclerosis (ALS) Maintaining Optimal Quality of Life Support groupsProper equipment & Knowledge of useRESOURCES: ALS Association-enter zip code to find assistance in your state. In FL: General Inquiries 813-637-9000 infoFL@als.org Community support groups & counselingTransportation assistanceEquipment loan bank-people with ALS can borrow assistive equipment on long term basisAssistance finding & obtaining community & government resourcesMultidisciplinary medical care under one roofFAAST-FLORIDA ALLIANCE FOR ASSISTIVE SERVICES & TECHONOLGY: org FAAST is a program designed to provide assistive technology to Floridians with disabilities and their loved ones. This program offers a range of activities, including device loans, demonstrations, reutilization, and training, to ensure Floridians have access to the latest in assistive technology. Additionally, FAAST provides information and assistance, as well as a financing program available state-wide. With a commitment to accessibility and innovation, FAAST is leading the way in assistive technology in the state of Florida. CENTER FOR ASSISTIVE TECHNOLOGY-University of Buffalo The Center for Assistive Technology (CAT) is a non-profit organization that conducts research and provides educational and service programs to increase consumer knowledge related to assistive technology for persons with disabilities.CAT is also the Western New York Regional Center for the New York State TRAID Program, for which it coordinates information on technology-related expertise and resources for people with disabilities. SHEPHERD CENTER-CENTER FOR ASSISTIVE TECHNOLOGIES Atlanta, GA The Center for Assistive Technologies at Shepherd Center helps individuals regain independence after a...
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    37 mins
  • A Battle In The Mind: Exploring Emotions of Survivors, Caregivers, and Loved Ones-Part 2

    A Battle In The Mind: Exploring Emotions of Survivors, Caregivers, and Loved Ones-Part 2
    May 20 2025
    EPISODE TITLE: A Battle In The Mind: Exploring Emotions of Survivors, Caregivers, and Loved Ones EPISODE SUMMARY: In this episode of NOGGINS & NEURONS: Brain Injury Recovery Simplified, Deb and Doro talk with D’Youville University students Christin Chan and Sophie Turner about the psychosocial impact of stroke and brain injury. We covered: Mental health challenges post-stroke, ABI, and TBIThe role of occupational therapy in addressing mental healthImproving psychosocial support for survivors and caregiversBest practices for supporting survivorsPost-injury affective symptoms and disordersNon-pharmacological treatment for behavioral disturbances among TBI/ABI patients We hope you enjoyed this episode of Noggins And Neurons. As always, we want to hear from you! Email us at Nogginsandneurons@gmail.com Show References Faircloth, C. A., Boylstein, C., Rittman, M., & Gubrium, J. F. (2005). Constructing the stroke: Sudden-onset narratives of stroke survivors. Qualitative Health Research, 15(7), 928. doi:10.1177/1049732305277842 Goldfinger, J. Z., edmondson, D., kronish, I. M., fei, K., balakrishnan, R., tuhrim, S., & horowitz, C. R. (2014). Correlates of post-traumatic stress disorder in stroke survivors. The official journal of stroke and cerebrovascular diseases : The official journal of national stroke association, 23(5), 1099–1105. https://Doi.org/10.1016/j.jstrokecerebrovasdis.2013.09.019. Howlett, J. R., Nelson, L. D., & Stein, M. B. (2022). Mental health consequences of traumatic brain injury. Biological Psychiatry, 91(5), 413–420. https://doi.org/10.1016/j.biopsych.2021.09.024 Kumar, R., Kumar, A., & Singh, A. (2019). Psychosocial impact of Brain Injury: A Review. Indian Journal of Neurosurgery, 08(01), 011–015. https://doi.org/10.1055/s-0039-1687713 Raya-Ruiz, M. A., Rodríguez-Bailón, M., Castaño-Monsalve, B., Vidaña-Moya, L., Fernández-Solano, A. J., & Merchán-Baeza, J. A. (2022). Study protocol for a non-randomised controlled trial: Community-based occupational therapy intervention on mental health for people with acquired brain injury (COT-MHABI). Plos One, 17(10) doi:10.1371/journal.pone.0274193 Ritter, J., Dawson, J., & Singh, R. K. (2021). Functional recovery after brain injury: Independent predictors of psychosocial outcome one year after TBI. Clinical Neurology and Neurosurgery, 203, 106561. https://doi.org/10.1016/j.clineuro.2021.106561 Simpson, E. K., Ramirez, N. M., Branstetter, B., Reed, A., & Lines, E. (2018). Occupational therapy practitioners’ perspectives of mental health practices with clients in stroke rehabilitation. OTJR: Occupational Therapy Journal of Research, 38(3), 181. doi:10.1177/1539449218759627 Terrill, A. L., Schwartz, J. K., & Belagaje, S. R. (2018). Best practices for the interdisciplinary rehabilitation team: A review of mental health issues in mild stroke survivors. Stroke Research and Treatment, 2018, 1. doi:10.1155/2018/6187328 Tjokrowijoto, P., Kneebone, I., Baker, C., Andrew, N. E., Stolwyk, R. J., & Stolwyk, J. (2023). Supplemental material for mental health support after stroke: A qualitative exploration of lived experience. Rehabilitation Psychology, doi:10.1037/rep0000527.supp Wenzel, R. A., Zgoda, E. A., St. Clair, M. C., & Knecht-Sabres, L. J. (2021). A qualitative study investigating stroke survivors’ perceptions of their psychosocial needs being met during rehabilitation. The Open Journal of Occupational Therapy, 9(2), 1. doi:10.15453/2168-6408.1691 Wiart, L., Luauté, J., Stefan, A., Plantier, D., & Hamonet, J. (2016). Non pharmacological treatments for psychological and behavioural disorders following traumatic brain injury (TBI). A systematic literature review and expert opinion leading to recommendations. Annals of Physical and Rehabilitation Medicine, 59(1), 31–41. https://doi.org/10.1016/j.rehab.2015.12.001 THERAPY PRACTICE RESOURCES: DEB’S RESOURCES Website: Creative Concepts In Occupational TherapyBeyond the Basics: Motor Recovery Bootcamp (Modified Constraint Induced Movement Therapy Guide)The OT's Guide to Mirror TherapyOccupational Therapy Intervention: Scavenger Hunt Visual Scanning for AdultsOccupational Therapy Intervention 2 Pack: Scavenger Hunt & Visual Trails for AdultsNoggins & Neurons Podcasts In Education-ready-made lesson plans for educatorsNoggins And Neurons Podcast Creative Learning & Discussion GuidePETE’S blog and book, “Stronger After Stroke: Your Roadmap to Recovery” 3rd edition: Blog: comBook: Stronger After Stroke, 3rd edition DORO’S OT PRACTICE – The Neuro Hub REQUEST TO BE A GUEST ON NOGGINS & NEURONS. If you’re passionate about stroke recovery and have information or a story you believe will help others, we’d love help you share it on the show. Complete the guest request form below and let’s see if we’re a good fit! Guest Request FormMUSIC: “Soft Inspiration” by Scott Holmes/Scott Holmes Music/scottholmesmusic.com ✨Google Podcasts ✨iTunes ✨...
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    50 mins
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