• Undiagnosed: navigating uncertainty | Rare Horizons

  • May 14 2024
  • Length: 25 mins
  • Podcast

Undiagnosed: navigating uncertainty | Rare Horizons

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  • Summary

  • Not having a diagnosis delays the possibility of receiving appropriate and effective treatments. It also causes uncertainty and fear, which negatively influences the mental health of patients and families. Luckily, new scientific disciplines, techniques, networks and tools are emerging that shorten the waiting times more and more. Let's explore this further in today's episode.


    If you have a rare disease or are a caregiver, consider getting registered in Share4Rare: https://www.share4rare.org/registration/s4r


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