Disability Care

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

Now, as more families like Michael's are affected by a growing number of disorders and difficulties ranging from autism to food allergies, the need for programs and paradigm shifts is greater than ever. Beates thus seeks to motivate churches to pursue ministry to children and adults with developmental disabilities. He works through key Bible passages on brokenness and disability to develop helpful principles for believers and churches, teaching them first to embrace their own brokenness and then to embrace those who are more physically and visibly broken.

Behind our current caregiving crisis, in which a broken system has left parents and caregivers exhausted, sits a fierce addiction to independence. But what would happen if we started to appreciate dependency, and the deep meaning of one person caring for another? If we start to care about care? With a curiosity and desire to understand more fully one of humanity’s most profound and essential relationships, journalist Elissa Strauss she interrogates our societal obsession with going it alone and poses a challenge to let ourselves be transformed by the act of caregiving.

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

Just Care is Akemi Nishida’s thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change.

***Swoony Debut Book Finalist*** A woman with a “no dating policy.” A mysterious, cocky British stranger. A dream trip to Paris . . . What could possibly go wrong? Christine Goodbye bucket list, I can't even get on the airplane. As I wait at the boarding gate, I’m already second guessing my dream trip–the one I never thought I’d be able to take. Leaning over my suitcases from a wave of severe dizziness, I can feel my dreams slipping away, when I suddenly hear a sexy British voice offering to rescue them. Colin As soon as I saw Christine’s photo, my life changed. I knew I had to ...

Survival of the Caregiver" is the result of all the author's ins and outs, ups and downs of caring for her husband for 20 years when he had Parkinson's Disease, followed by Dementia. This book is written from the heart. It is as personal as it is informative. The author chose to use an alphabetical list of topics so that a busy caregiver can refer to a special need quickly. It is the author's hope that this book will aid other caregivers in their sad, but meaningful journey with their loved one.

In the heartwarming and informative guide, "Securing Your Legacy: A Baby Boomer's Guide to Long-Term Care Planning for Adult Children with Disabilities," the Guild of Seven opens a treasure trove of wisdom for seniors facing the unique challenge of caring for their adult children with disabilities. In this compassionate and empowering book, they offer a roadmap to not only secure their own future but also ensure their beloved offspring are cherished and protected long after they're gone. As the golden years approach, Baby Boomers find themselves at a crossroads, balancing their desire for a...

A year ago, Mr. Darcy suffered from an illness which robbed him of the use of his legs. However, he is determined to never become maudlin and behave as though his life is over and ruined just because part of it has become more difficult. Since he could not expect to recover any further, it was time to resume the ordinary course of his life.

Mara Tagarelli is, professionally, the head of a multimillion-dollar AIDS foundation; personally, she is a committed martial artist. But her life has turned inside out like a sock. She can’t rely on family, her body is letting her down, and friends and colleagues are turning away - they treat her like a victim. She needs to break that narrative: build her own community, learn new strengths, and fight. But what do you do when you find out that the story you’ve been told, the story you’ve told yourself, is not true?

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience - the positive and the negative - as a mother of a now 21-year-old son with severe autism. Lutz's human emotion drives through each moment and challenges commonly held ideas that define autism either as a disease or as neurodiversity.

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within 36 hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife, Seema, he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog, Kika, comes along....

"Conquer the Health Exam: Your Guide to a Career in Health Insurance" is a comprehensive resource designed to prepare aspiring health insurance professionals for their certification exams. This guide covers essential topics such as individual and group health insurance, managed care plans, disability income insurance, and long-term care insurance. It delves into policy provisions, coverage options, and health insurance regulations, providing in-depth explanations to ensure a thorough understanding. Additionally, it addresses accident and health insurance policies, including accident-only ...

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

People around the world have fallen in love with Penguin the Magpie, a global social media sensation, and her adventures with her human family. But there is far more to Penguin's story than meets the eye. It all begins when Sam, Cameron Bloom's wife, suffers a near fatal fall that leaves her paralyzed and deeply depressed. One of their three sons, reeling from the tragic accident, discovers an injured magpie chick abandoned after she had fallen from her nest. The boys name the bird Penguin, for her black-and-white plumage.

Half a world away from home in 1976, 18-year old Anne B. Thomas awakens on the side of a two-lane road paralyzed from the chest down. Fast forward through a rigorous year of physical therapy to when her doctor gives her an ominous warning: “You will live a long time and be a burden on your family for the rest of your life unless you check yourself into a nursing home”.