My Own Blood
A Memoir of Special-Needs Parenting
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Narrated by:
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Ashley Bristowe
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By:
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Ashley Bristowe
About this listen
Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard.
When their second child, Alexander, is diagnosed with a rare genetic disorder, doctors tell Ashley Bristowe and her husband that the boy won't walk or even talk - that he is profoundly disabled. Stunned and reeling, Ashley researches a disorder so new it's just been named - Kleefstra syndrome - and she finds little hope and a maze of obstacles. Then she comes across the US-based "Institutes", which have been working to improve the lives of brain-injured children for decades. Recruiting volunteers, organizing therapy, juggling a million tests and appointments, even fundraising as the family falls deep into debt, Ashley devotes years of 24/7 effort to running an impossibly rigorous diet and therapy program for their son with the hope of saving his life and her own. The ending is happy: He will never be a "normal" boy, but Alexander talks, he walks, he swims, he plays the piano (badly), and he goes to school.
This victory isn't clean, and it's far from pretty; the personal toll on Ashley is devastating. "It takes a village", people say, but too much of their village is uncomfortable with her son's difference, the therapy regimen's demands, and the family's bottomless need. The health and provincial services bureaucracy set them a maddening set of hoops to jump through, showing how disabled children and their families languish because of criminally low expectations about what can be done to help.
My Own Blood is an uplifting story, but it never shies away from the devastating impact of a baby that science couldn't predict and medicine couldn't help. It's the story of a woman who lost everything she'd once been - a professional, an optimist, a joker, a capable adult - in sacrifice to her son. An honest account of a woman's life turned upside down.
©2021 Ashley Bristowe (P)2021 Penguin Random House CanadaListeners also enjoyed...
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Critic reviews
“Most books about raising children with serious disabilities aim for optimism, and sound exactly alike. But once in a while, a gifted writer produces a brutally honest and utterly readable account of that dark, detailed, furious, unseen world, after which you can’t see ordinary life the same way again. It’s a rare gift, but Ashley Bristowe’s My Own Blood is that kind of book. You need to read it, as soon as possible.” (Ian Brown)
“My Own Blood is like the clearest window pane, through which we have the privilege to observe, absorb, the extraordinary journey of love between a mother and her very special child, and also view the price she, and all of us, pay for freedom, perseverance, hope and fulfillment. A stunner of a memoir in which each sentence either sings or stings.” (Deepa Mehta)
“This memoir is as unputdownable as the best thriller. Really, I was awake until 3 AM reading this true story of a sharp-witted, foul-mouthed mother losing her mind as she saves (and utterly transforms) her severely disabled son’s life. Ashley Bristowe meets our collective silence about disability head-on and speaks, cries, sings and laughs in its (our) face. This is not a tidy depiction of singular heroism. It’s shockingly real, painful, hilarious, and, at times, terrifying. Over and over again, she shows how we, too, each of us, can and must summon the political will and the moral courage to respect, to love and to share our power with the most vulnerable people among us. An extraordinary testament to human connection. And swearing.” (Karen Connolly)
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Well written book. The characters grow on you~
- By chatteycathi on 08-01-18
By: Maddie Dawson
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The Stuff that Never Happened
- A Novel
- By: Maddie Dawson
- Narrated by: Teri Clark Linden
- Length: 11 hrs and 20 mins
- Unabridged
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Annabelle McKay knows she shouldn’t have any complaints. She’s been in a stable marriage that’s lasted almost three decades and has provided her with two wonderful children and thousands of family dinners around a sturdy oak table. Other wives envy the fact that Grant is not the type of man who would ever cheat on her or leave her for a younger woman. The trouble is Annabelle isn’t sure she wants to be married to Grant anymore. The trouble is she’s still in love with someone else.
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Don’t pass this one up.
- By Lauren on 03-10-20
By: Maddie Dawson
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Missing Parts
- By: Lucinda Berry
- Narrated by: Abby Craden
- Length: 6 hrs and 43 mins
- Unabridged
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Growing up abandoned by her father and raised by a single mother, Celeste was determined to create the perfect family - but even perfect families have secrets. Her days are filled with a rewarding career, a devoted husband, and her four-year-old daughter. Celeste is the only one who knows the precarious house of cards her family is built upon - until the day her daughter falls critically ill. Then her world quickly spirals out of control, her secret threatening to destroy her marriage, family, reputation, and sanity.
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SPOILER ALERT. Sigh...
- By Kelly on 10-08-20
By: Lucinda Berry
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Everything You Ever Wanted
- A Memoir
- By: Jillian Lauren
- Narrated by: Jillian Lauren
- Length: 8 hrs and 16 mins
- Unabridged
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In her younger years, Jillian Lauren was a college dropout, a drug addict, and an international concubine in the Prince of Brunei's harem, an experience she immortalized in her best-selling memoir, Some Girls. In her 30s, Jillian's most radical act is learning the steadying power of love when she and her rock star husband adopt an Ethiopian child with special needs.
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Great for adoptive families
- By berry bomb on 07-06-22
By: Jillian Lauren
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Lone Stars
- By: Justin Deabler
- Narrated by: Michael Crouch
- Length: 10 hrs and 19 mins
- Unabridged
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Lone Stars follows the arc of four generations of a Texan family in a changing America. Julian Warner, a father at last, wrestles with a question his husband posed: what will you tell our son about the people you came from, now that they're gone? Finding the answers takes Julian back in time to Eisenhower's immigration border raids, an epistolary love affair during the Vietnam War, crumbling marriages, queer migrations to Cambridge and New York, up to the disorienting polarization of Obama's second term.
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Read for bookclub but fell in Love
- By Ericka Lawson on 09-11-22
By: Justin Deabler
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No Hiding in Boise
- By: Kim Hooper
- Narrated by: Devon Sorvari, Stephanie Willing, Hillary Huber, and others
- Length: 9 hrs and 38 mins
- Unabridged
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Angie is awakened by a midnight call from an officer with the Boise Police Department and thinks there must be a misunderstanding. The officer tells her that her husband was involved in a shooting at a local bar, but how can that be when her husband is sleeping right next to her? But when she turns to wake him, he isn’t there. Tessa is the 23-year-old bartender who escapes to a backroom storage closet during the shooting. When it comes to light that five people were killed, she is burdened with the question of why she survived.
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fantastic audio involving contemporary issues
- By Barbara S on 07-07-21
By: Kim Hooper
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Get Lucky
- By: Katherine Center
- Narrated by: Morgan Hallett
- Length: 8 hrs and 13 mins
- Unabridged
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Filled with wit and heart, Get Lucky by Katherine Center explores the deep bonds of sisterhood. Sarah Harper’s whole world revolved around her job at a New York advertising agency before an email snafu got her fired. Now she’s seeking refuge at her sister Mackie’s home in Houston. But Mackie, who’s unable to get pregnant, is also down-and-out these days. So Sarah decides to do something good and becomes a surrogate mother.
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Finding what matters most in life
- By bizymom7 on 10-12-24
By: Katherine Center
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The Admissions
- A Novel
- By: Meg Mitchell Moore
- Narrated by: Allyson Ryan
- Length: 14 hrs and 35 mins
- Unabridged
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The Hawthorne family has it all. Great jobs, a beautiful house in one of the most affluent areas of Northern California, and three charming kids whose sunny futures are all but assured. And then comes their eldest daughter's senior year of high school....
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Anything for success
- By JillHen on 09-13-15
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The Time Traveler's Wife
- By: Audrey Niffenegger
- Narrated by: Fred Berman, Phoebe Strole
- Length: 17 hrs and 38 mins
- Unabridged
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Clare and Henry have known each other since Clare was six and Henry was 36. They were married when Clare was 23 and Henry was 31. Impossible but true, because Henry is one of the first people diagnosed with Chrono-Displacement Disorder: periodically his genetic clock resets and he finds himself misplaced in time, pulled to moments of emotional gravity from his life, past and future. His disappearances are spontaneous, his experiences unpredictable, alternately harrowing and amusing.
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One of my favorite books
- By Joey on 01-13-08
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Ask Me Why I Hurt
- The Kids Nobody Wants and the Doctor Who Heals Them
- By: Randy Christensen M.D., Rene Denfeld
- Narrated by: Johnny Heller
- Length: 8 hrs and 28 mins
- Unabridged
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The unforgettable inspiring memoir of one extraordinary doctor who is saving lives in a most unconventional way, Ask Me Why I Hurt is the touching and revealing first-person account of the remarkable work of Dr. Randy Christensen. Trained as a pediatrician, he works not in a typical hospital setting but, rather, in a 38-foot Winnebago that has been refitted as a doctor's office on wheels. His patients are the city's homeless adolescents and children.
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The reality of our streets
- By SusanInTheMidwest on 08-26-17
By: Randy Christensen M.D., and others
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The Woman Who Stole My Life
- By: Marian Keyes
- Narrated by: Aoife McMahon
- Length: 15 hrs and 1 min
- Unabridged
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In her own words, Stella Sweeney is just "an ordinary woman living an ordinary life with her husband and two teenage kids", working for her sister in their neighborhood beauty salon. Then one day she is struck by a serious illness that lands her in the hospital for months.
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First Part? Good. Second Part? Ugh!
- By Gillian on 08-31-17
By: Marian Keyes
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The Natural Mother of the Child
- A Memoir of Nonbinary Parenthood
- By: Krys Malcolm Belc
- Narrated by: Krys Malcolm Belc
- Length: 4 hrs and 22 mins
- Unabridged
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Krys Malcolm Belc has thought a lot about the interplay between parenthood and gender. As a nonbinary, transmasculine parent, giving birth to his son Samson clarified his gender identity. And yet, when his partner Anna adopted Samson, the legal documents listed Belc as "the natural mother of the child." The Natural Mother of the Child journeys both toward and through common perceptions of what it means to have a body and how that body can influence the perception of a family.
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Excellent
- By Kathryn Bradley on 03-04-23
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Finding Chika
- A Little Girl, an Earthquake, and the Making of a Family
- By: Mitch Albom
- Narrated by: Mitch Albom
- Length: 4 hrs and 54 mins
- Unabridged
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Chika Jeune was born three days before the devastating earthquake that decimated Haiti in 2010. She spent her infancy in a landscape of extreme poverty, and when her mother died giving birth to a baby brother, Chika was brought to The Have Faith Haiti Orphanage that Albom operates in Port Au Prince. With no children of their own, the 40-plus children who live, play, and go to school at the orphanage have become family to Mitch and his wife, Janine. But at age five, Chika is suddenly diagnosed with something a doctor there says "no one in Haiti can help you with."
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BUY READ AND RECOMMEND THIS BOOK
- By The Birds. on 11-05-19
By: Mitch Albom
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The Fourth Child
- A Novel
- By: Jessica Winter
- Narrated by: Cassandra Campbell
- Length: 12 hrs and 54 mins
- Unabridged
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The author of Break in Case of Emergency follows up her the “extraordinary debut” (The Guardian) with a moving novel about motherhood and marriage, adolescence and bodily autonomy, family and love, religion and sexuality, and the delicate balance between the purity of faith and the messy reality of life.
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Just OK - Considered Bailing
- By Madeleine Homan on 04-18-21
By: Jessica Winter
What listeners say about My Own Blood
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- Amazon Customer
- 02-15-23
Writing Warrior Queen
Such beautifully strong, poetic & purposeful writing that gave me a detailed view of a world of which I had no understanding.
I loved the honesty of Ashley's story & also that the author narrated.
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- A Shopper 1
- 10-03-21
Emotionally powerful
I wasn't sure if I could benefit from listening to Ashley's book as my child with the same disorder of her son is older than hers and we didn't get a diagnosis until a much older age. I was actually afraid to listen to it. I didn't want to get lost in rehashing the pain again. However, I found it to be cathartic to listen to how similar our journeys were especially when it came to dealing with medical professionals, family, friends and the constant worry. It's an excellent read / listen for anyone who has a child with a disability.
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- Diana
- 12-26-24
My Own Blood: A Journey That Changes You
My Own Blood is one of those books that you pick up and, dive into and come out the other side a changed person. The fight, the struggle, the hope, and the relentless determination of the author to give her son the best chance possible are truly admirable. Her journey sheds light on personal and system challenges that many of us, who don’t have a loved one with a disability, are often unaware of and how we can support.
All my respect and admiration go to you and to all the parents who walk in your shoes.
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