Up, Not Down Syndrome
Uplifting Lessons Learned from Raising a Son with Trisomy 21
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Narrated by:
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Barbara Rich
About this listen
Up, Not Down Syndrome is a love letter and a map. Experience how it feels to think your life is over after having an unlovable baby. At first, the loss seems impossible to overcome. Alex becomes the author's greatest teacher. Love is stronger than fear. Everyone has gifts.
The book consists of three parts: the story, the lessons that Alex taught the writer and Alex's perspective. Up, Not Down Syndrome is a promise to stay positive, no matter what: up, not down. Nancy's journey gets to the core of what it is to be human.
This audiobook will help you:
- Explore what it feels like to think life, as you know it, is over
- Discover the fierce love, joy, and peace a baby diagnosed with trisomy 21 (Down syndrome) brings
- Learn the lessons this child taught his mom
- Understand the gift this baby brings to our world
- Realize the depth of the love this family has for the child
Praise for the book:
"A beautiful, honest account of not just accepting - but embracing - the unknown. Nancy shows us the blessing of an unexpected gift and the enormity of love." (Sara Byala, PhD)
"This is a wonderful book to remind you that the joy of love is possible in unexpected places when you open your heart to it." (Barbara Taylor Bowman, Irving B. Harris Professor of Child Development)
"A moving and wise story of how a family navigates through hope, loss, learning and, most of all, love." (Rabbi David Wolpe, author of David: The Divided Heart)
"The truth and beauty of Nancy Schwartz's words tell an ongoing story of love, learning and the power of acceptance. All can learn from this family's boundless hope and from their source of joy and strength: Alex." (April Beard, music educator and cellist)
Learn more at www.UpNotDownBook.com
©2020 Nancy M. Schwartz (P)2020 Nancy M. SchwartzListeners also enjoyed...
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- Narrated by: Maryanne O'Hara
- Length: 9 hrs and 56 mins
- Unabridged
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When their only child was diagnosed with cystic fibrosis (CF) at the age of two, Maryanne O'Hara and her husband were told that Caitlin could live a long life or be dead in a matter of months. Thirty-one years later, Caitlin lost her battle with this devastating disease following an excruciating two-year wait on the transplant list and a last-minute race to locate a pair of healthy lungs. The sudden spiral of events left Maryanne in an existential crisis, searching to find an answer to the eternal question: Why we are here?
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I don't know who needs to read it...
- By H. Hill on 04-18-23
By: Maryanne O'Hara
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Good Mourning
- By: Theresa Caputo
- Narrated by: Theresa Caputo
- Length: 6 hrs and 36 mins
- Unabridged
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Theresa Caputo, TLC’s Long Island Medium and the three-time New York Times best-selling author, teaches us how to ritualize and recover from the daily losses in our lives.
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Another great book by Theresa Caputo
- By K.S on 10-06-20
By: Theresa Caputo
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Thank You Power
- Making the Science of Gratitude Work for You
- By: Deborah Norville
- Narrated by: Deborah Norville
- Length: 4 hrs and 11 mins
- Unabridged
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Journalist Deborah Norville uses her reporting skills to highlight the exciting research that proves that life improvements can stem from the practice of gratitude. Thank You Power is the extraordinary force that comes simply from acknowledging the "good things" in life. Beginning with the regular practice of counting one's blessings and feeling thankful for them, one can become healthier, happier, smarter, more resilient, and even able to undo the negative effects of stress.
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Everything in this brings me joy!
- By Anonymous User on 01-12-24
By: Deborah Norville
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The 20-Month Legend
- My Baby Boy's Fight with Cancer
- By: Steve Tate
- Narrated by: Steve Tate
- Length: 5 hrs and 51 mins
- Unabridged
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As if juggling a life with half-a-dozen kids, including triplets, isn’t enough, Steve Tate receives the life-altering news that one of his triplets, Hayes, has been diagnosed with brain cancer. The once-star collegiate football player finds himself fighting for his son’s life. This memoir takes you through the various challenges he faced raising a family of six kids and balancing a career, all while his son battled the odds. Both Steve and his high-school sweetheart, Savanna, found hope and happiness through the example of their 20-month-old son Hayes.
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Very touching story
- By Nicole on 03-16-23
By: Steve Tate
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Fully Alive
- Discovering What Matters Most
- By: Timothy Shriver
- Narrated by: David Drummond
- Length: 10 hrs and 53 mins
- Unabridged
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At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.
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Eye opening book
- By Robert J. Herman on 06-05-15
By: Timothy Shriver
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Messenger
- The Legacy of Mattie J. T. Stepanek and Heartsongs
- By: Jeni Stepanek
- Narrated by: Jeni Stepanek
- Length: 11 hrs and 48 mins
- Unabridged
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Oprah Winfrey has called him an inspiration, Maya Angelou saw him as a kindred spirit and fellow poet, and Jimmy Carter described Mattie Stepanek as the "most remarkable person I have ever known". When Jerry Lewis received his lifetime achievement award at the Oscars, footage of Mattie played behind him. Five years after his death from a rare neuromuscular disease, Mattie is still being celebrated for his indomitable spirit and message of hope.
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Loved Jeni telling Mattie’s story
- By Hello Mrs. on 12-29-22
By: Jeni Stepanek
What listeners say about Up, Not Down Syndrome
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- Tammy LeBlanc
- 04-25-24
Only scratches the surface
Great book for parents with newly diagnosed DS, but the challenges once they're 5 or 6 years old and beyond are totally different. Maybe she'll write another one in 10 years or so!
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- Sugar J.J.
- 02-22-24
Thank you for sharing your story
This is a positive, uplifting story about a boy with Down’s Syndrome and the joy he brings to all who know him. His mother shares her family with the reader/listener and wants us to see everyone with new eyes. Well narrated and easy to follow.
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- Joe Provenzano
- 10-14-20
Not what I expected
The book looked to have potential - but it didn't hold up. I kept waiting for the information to flow: What's it like to be a parent, grandparent, etc. of a child with Down Syndrome? The answers never really materialized. Also Alex, the child in this book, was far from typical and had a number of additional challenges beyond Down Syndrome - this was not well explained in the book's description but Alex was not able to walk, talk, etc. normally, (even past age 9) and needed a lot of additional care that would not be typical.
The experience of the family was challenged but overall still positive, and that was clearly expressed.
If you are looking for a story at corrects some misconceptions about how a child with Trisomy 21 effects a family, this story might be helpful. Not so much if you want specifics or details.
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3 people found this helpful