Bladder Cancer Patient-to-Patient

By: Cindy Lawson DeVore
  • Summary

  • Those of us with bladder cancer, as well as our spouses or caregivers, know that our diagnosis can mean a lifelong journey of surveillance, surgeries, treatments, anxiety and self-care. This podcast is a source of information, understanding and support for those who are dealing with this highly recurrent disease. Diagnosed with bladder cancer in 2017, podcast host, Cindy Lawson, navigates the dizzying array of information available on the topic. She'll discuss her own experiences; those of other patients in varying stages of the disease, and offer viewpoints of medical experts. Support this podcast: https://anchor.fm/cindy-lawson8/support
    Cindy Lawson DeVore
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Episodes
  • BCG - A Rare & Unexpected Turn of Events
    May 25 2023

    Greetings, fellow patients & survivors!

    In my last episode, I talked about my experience with reactive arthritis, a somewhat rare and unexpected side effect of BCG. With regained confidence in my stride, I discussed how I'm managing this debilitating problem with both diet and half dose treatments. I've had clear scopes, and things have been on the uptick!

    But just as I was coming into the final stretch of BCG and thought I had everything in hand, a proverbial "wrench" was thrown at me 100 mph, only one week after my last recorded episode. It was a rare and unexpected turn of events that I did not see coming, and it nearly cost me my vision.

    If you're just starting BCG, or you've already been on BCG for a while, you'll want to take a listen to this episode. It was several weeks after my 15th treatment that the rare and unexpected immuno-response set in. A shocker, for sure.

    Grab a cup of coffee, and settle in to learn a piece of information not often discussed on this journey we all share.

    Wishing you all peace, health and happiness in the days ahead.

    - Cindy

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    Links:

    Bilateral Uveitis After Intravesical BCG Immunotherapy for Bladder Carcinoma - ⁠https://bjo.bmj.com/content/86/6/706⁠

    Complications of Intravesical BCG Immunotherapy for Bladder Cancer - https://pubs.rsna.org/doi/10.1148/rg.2019180014

    Bilateral Panuveitis Following Intravesical BCG Immunotherapy for Bladder Carcinoma - https://pubmed.ncbi.nlm.nih.gov/20662661/

    Managing Adverse Events of BCG Therapy - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4630183/

    Clinical Spectrum of Complications Induced by Intravesical Immunotherapy BCG for Bladder Cancer - ⁠https://pubmed.ncbi.nlm.nih.gov/30984262/


    My web site - ⁠https://bladdercancertalk.com⁠

    Special thanks to ⁠ValleyGreenNaturals.com⁠ for sponsoring this podcast of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order.

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    Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

    ****************************************************************

    #bladdercancer #bcg #BCG #uveitis #scleritis #bcgcomplications #complicationsfrombcg #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #bladdercancersupport #cancerpatient #bcgsideeffects #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #BCAN #plantbaseddiet #vegan #livelonger #healthydiet #wholefooddiet #plantbasedcancerdiet #survivorship #reactivearthritis

    Search: bladder cancer, Complications from BCG Immunotherapy, plant-based diet, bladder cancer treatment, BCG, urology, bladder cancer support, bladder cancer in women, side effects of BCG, vegan diet and cancer, treatments for bladder cancer, bladder tumor recurrence, early diagnosis of bladder cancer, managing side effects of BCG, reactive arthritis, Uveitis, Scleritis

    --- Support this podcast: https://podcasters.spotify.com/pod/show/cindy-lawson8/support
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    13 mins
  • BCG - How I'm Overcoming Side Effects
    Apr 20 2023

    Hey Everyone! If you're starting BCG treatments, or you've already been on BCG for a while, you'll want to listen to this episode. I was cruising through my treatments until, shortly after treatment #9, I began to experience joint pain. After treatment #12, let's just say things got downright debilitating. In this episode, I discuss the BCG SWOG schedule, common side effects following treatments... and the not-so-common side effects that I experienced. The good news is, I've discovered a pretty effective way of managing these problems, which I share with you in this episode. As promised, the links I've mentioned in this episode are listed below.

    Wishing you all peace, health and happiness in the days ahead!

    - Cindy

    ***********************************************************

    Links:


    Documentary - "Eating You Alive" - https://www.youtube.com/watch?v=gMdSUB-Lbp8

    Documentary - "What The Health" - https://www.youtube.com/watch?v=ZsFM6CfH0k0 - Also available on Netflix

    Book - "How Not To Die" by Michael Greger - https://a.co/d/i6cHRYa

    Book - "How Not To Die Cookbook" by Michael Greger - https://a.co/d/2ePl1H2

    Helpful Website - NutritionFacts.org

    Interesting Podcast - The Exam Room by The Physician's Committee for Responsible Medicine - https://www.youtube.com/c/PhysiciansCommittee

    My web site - https://bladdercancertalk.com

    Special thanks to ValleyGreenNaturals.com for sponsoring this podcast of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order.

    ****************************************************************

    Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

    ****************************************************************

    #bladdercancer #bcg #BCG #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #bluelightcystoscopy #bladdercancersupport #cancerpatient #bcgsideeffects #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #BCAN #plantbaseddiet #vegan #livelonger #healthydiet #wholefooddiet #plantbasedcancerdiet #survivorship #reactivearthritis

    Search: bladder cancer, plant-based diet, bladder cancer treatment, BCG, urology, bladder cancer support, bladder cancer in women, side effects of BCG, vegan diet and cancer, treatments for bladder cancer, bladder tumor recurrence, early diagnosis of bladder cancer, managing side effects of BCG, reactive arthritis

    --- Support this podcast: https://podcasters.spotify.com/pod/show/cindy-lawson8/support
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    16 mins
  • Red Light... Green Light -- White Light... Blue Light! Benefits of blue light cystoscopy with Cysview
    Jun 8 2022
    Hey everyone! Thanks for listening to Bladder Cancer Patient-to-Patient. This episode discusses my experiences with blue light cystoscopy and how I've come to rely on this very valuable tool as a standard in my own care. You'll hear about how I ended up having only blue light cystos, as well as what to expect; how they work; their cost and effectiveness, and why you should lobby for this relatively new technology. As promised, the links I mentioned in this episode are listed below... Wishing you peace, health and happiness in the days ahead! Cindy **************** Blue Light Comparison Photos - https://bit.ly/3bONxO7 ... Bladder Cancer Matters Podcast with Dr. Yair Lotan - https://bit.ly/3yBdSID ... Bladder Cancer Summit for Patients & Families - Sep 30 to Oct 1, 2022 Bladder Cancer Advocacy Network - BCAN.org ***************** Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey. You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message Or just send me an email at bladdercancertalk@gmail.com. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together. Special thanks to ValleyGreenNaturals.com for sponsoring this episode of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com. ******************* Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE. ******************* #bladdercancer #bluelightcystoscopy #cysview #cystoscopy #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #cancerpatient #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #survivorship #BCAN Search: bladder cancer, blue light cystoscopy, cysview, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer, diagnosing bladder cancer, TURBT, trans-urethral resection of bladder tumor, early diagnosis, bladder tumor recurrence, carcinoma in situ --- Support this podcast: https://podcasters.spotify.com/pod/show/cindy-lawson8/support
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    11 mins

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