Greetings, fellow patients & survivors!

In my last episode, I talked about my experience with reactive arthritis, a somewhat rare and unexpected side effect of BCG. With regained confidence in my stride, I discussed how I'm managing this debilitating problem with both diet and half dose treatments. I've had clear scopes, and things have been on the uptick!

But just as I was coming into the final stretch of BCG and thought I had everything in hand, a proverbial "wrench" was thrown at me 100 mph, only one week after my last recorded episode. It was a rare and unexpected turn of events that I did not see coming, and it nearly cost me my vision.

If you're just starting BCG, or you've already been on BCG for a while, you'll want to take a listen to this episode. It was several weeks after my 15th treatment that the rare and unexpected immuno-response set in. A shocker, for sure.

Grab a cup of coffee, and settle in to learn a piece of information not often discussed on this journey we all share.

Wishing you all peace, health and happiness in the days ahead.

- Cindy

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Links:

Bilateral Uveitis After Intravesical BCG Immunotherapy for Bladder Carcinoma - ⁠https://bjo.bmj.com/content/86/6/706⁠

Complications of Intravesical BCG Immunotherapy for Bladder Cancer - https://pubs.rsna.org/doi/10.1148/rg.2019180014

Bilateral Panuveitis Following Intravesical BCG Immunotherapy for Bladder Carcinoma - https://pubmed.ncbi.nlm.nih.gov/20662661/

Managing Adverse Events of BCG Therapy - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4630183/

Clinical Spectrum of Complications Induced by Intravesical Immunotherapy BCG for Bladder Cancer - ⁠https://pubmed.ncbi.nlm.nih.gov/30984262/

My web site - ⁠https://bladdercancertalk.com⁠

Special thanks to ⁠ValleyGreenNaturals.com⁠ for sponsoring this podcast of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order.

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Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

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#bladdercancer #bcg #BCG #uveitis #scleritis #bcgcomplications #complicationsfrombcg #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #bladdercancersupport #cancerpatient #bcgsideeffects #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #BCAN #plantbaseddiet #vegan #livelonger #healthydiet #wholefooddiet #plantbasedcancerdiet #survivorship #reactivearthritis

Search: bladder cancer, Complications from BCG Immunotherapy, plant-based diet, bladder cancer treatment, BCG, urology, bladder cancer support, bladder cancer in women, side effects of BCG, vegan diet and cancer, treatments for bladder cancer, bladder tumor recurrence, early diagnosis of bladder cancer, managing side effects of BCG, reactive arthritis, Uveitis, Scleritis

Hey Everyone! If you're starting BCG treatments, or you've already been on BCG for a while, you'll want to listen to this episode. I was cruising through my treatments until, shortly after treatment #9, I began to experience joint pain. After treatment #12, let's just say things got downright debilitating. In this episode, I discuss the BCG SWOG schedule, common side effects following treatments... and the not-so-common side effects that I experienced. The good news is, I've discovered a pretty effective way of managing these problems, which I share with you in this episode. As promised, the links I've mentioned in this episode are listed below.

Wishing you all peace, health and happiness in the days ahead!

- Cindy

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Links:

Documentary - "Eating You Alive" - https://www.youtube.com/watch?v=gMdSUB-Lbp8

Documentary - "What The Health" - https://www.youtube.com/watch?v=ZsFM6CfH0k0 - Also available on Netflix

Book - "How Not To Die" by Michael Greger - https://a.co/d/i6cHRYa

Book - "How Not To Die Cookbook" by Michael Greger - https://a.co/d/2ePl1H2

Helpful Website - NutritionFacts.org

Interesting Podcast - The Exam Room by The Physician's Committee for Responsible Medicine - https://www.youtube.com/c/PhysiciansCommittee

My web site - https://bladdercancertalk.com

Special thanks to ValleyGreenNaturals.com for sponsoring this podcast of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order.

****************************************************************

Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

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#bladdercancer #bcg #BCG #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #bluelightcystoscopy #bladdercancersupport #cancerpatient #bcgsideeffects #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #BCAN #plantbaseddiet #vegan #livelonger #healthydiet #wholefooddiet #plantbasedcancerdiet #survivorship #reactivearthritis

Search: bladder cancer, plant-based diet, bladder cancer treatment, BCG, urology, bladder cancer support, bladder cancer in women, side effects of BCG, vegan diet and cancer, treatments for bladder cancer, bladder tumor recurrence, early diagnosis of bladder cancer, managing side effects of BCG, reactive arthritis

Those of us with bladder cancer have all faced the dilemma of telling our friends and loved ones about our diagnosis. In my case, it took 3 1/2 years for me to venture out of my cancer closet. But when I did, I discovered something really great.

In this podcast episode, I'll talk about the difficulties I experienced in coming to terms with my own diagnosis and the challenges I faced in concealing my condition from others for quite some time. It wasn't until I realized that there's more uneasiness and anxiety in hiding my disease than there is in being open about it that my situation became less complicated, and in time... even rewarding.

As promised, the links I mentioned in this episode are listed below...

Wishing you peace, health and happiness!

Cindy

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Bladder Cancer Advocacy Network - BCAN.org

Inspire Bladder Cancer Support Group & Discussion Community

BCAN Survivor-to-Survivor Program

Bladder Cancer Summit for Patients & Families - Sep 30 to Oct 1, 2022

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Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey. You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message Or just send me an email at bladdercancertalk@gmail.com. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.

Special thanks to ValleyGreenNaturals.com for sponsoring this episode of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.

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Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

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#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #cancerpatient #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #survivorship #BCAN

Search: bladder cancer, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, cancer closet, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer, telling your loved ones you have cancer

Having symptoms that scream "Something is amiss down there?"

It's Bladder Cancer Awareness Month, and I'm here to ask you... no, beg you... no, plead with you to GO GET CHECKED!

Cancer is a scary word. And no one wants to be a member of its club. But this podcast is for those who may be experiencing "strange goings-on" in their nether regions, and they're worried it could be something serious.

In this podcast, I'll go over the typical symptoms of bladder cancer, as well as the tools used to determine a diagnosis and the path forward.

On a positive note, Bladder Cancer is not a death sentence. There are many excellent treatments available for all stages of this disease, and there are many real super-docs out there who are ready to help you as a warrior and survivor.

Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey. You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message Or just send me an email at bladdercancertalk@gmail.com. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.

Special thanks to ValleyGreenNaturals.com for sponsoring this episode of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.

Thanks so much for listening! Wishing you happiness and good health in the days ahead,

Cindy

BladderCancerTalk.com

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Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

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#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersymptoms #bladdercancersupport #cancerpatient #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #survivorship #BCAN

Search: bladder cancer, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer

Yikes, cancer is costly!

Not exactly one of my more upbeat podcasts, but financial toxicity is real, and cancer patients need solutions. In this podcast, I talk about the enormous costs involved in treating and managing bladder cancer; my own out-of-pocket expenses in just four years, and how dealing with the financial strains of ongoing care can take its toll on the mental and physical health and well-being of cancer patients.

On a positive note, there are tools available to help with navigating the complex and costly cancer-highway, as well as some very good folks who are working on ways to ease the burden of expense, while continuing to provide quality care at all socio-economic levels.

In this podcast, I mention TriageCancer.org, a site with a wealth of information and webinars on the financial and legal aspects of dealing with cancer, as well as the Bladder Cancer Advocacy Network, BCAN.org, whose tireless efforts in providing information to bladder cancer patients is unparalleled worldwide. Please be sure to register for BCAN's free "Ask the Experts" virtual event on May 25th at 7 pm. One of the featured physicians in this event is Dr. Sumeet Bhanvadia, Assistant Professor of Urology at the University of Southern California's Keck School of Medicine. Dr. Bhanvadia was a winner of BCAN's Young Investigators Award for her study focusing on assessing the extent of financial toxicity experienced by bladder cancer patients across a broad range of race, ethnicity, insurance type and socio-economic status. Register here for this free webinar!

Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey. You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message Or just send me an email at bladdercancertalk@gmail.com. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.

Special thanks to ValleyGreenNaturals.com for sponsoring this episode of Bladder Cancer Patient-to-Patient and for making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.

******************* Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

Thanks so much for listening! Wishing you happiness and good health in the days ahead,

Cindy

******************* #financialtoxicity #bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #bladdercancersupport #cancerpatient #cancerpodcast #kickcancer #cancersucks #patientadvocacy #cancerresearch #survivorship #BCAN #cancercost

Search: Financial Toxicity, bladder cancer, bladder cancer awareness, bladder cancer treatment, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, BCAN, cancer cost, medical bills,

Hey everyone. Welcome to Bladder Cancer Patient-to-Patient.

May I just mention that I am NOT a fan of diagnostics? Even with something as simple as blood work, I'm just a big chicken! Honestly, I think it's the fear of the "unknown" that gets to me. And when it's a test that has anything to do with "cancer," I'm sure you'll agree that can be upsetting enough.

So when I learned -- before even being officially diagnosed with bladder cancer -- that I had to get a CT scan with contrast... well, let's just say my anxiety really kicked in. In this episode, I'll share with you my experience in having a CT Urogram; the reason why your doctor orders it, and what to expect when you go to have it done.

If you'd like to read more about Urograms and radiological testing for urologic cancers, check out this page on BCAN.org. It's a terrific site that's full of valuable information for bladder cancer patients like us. https://bcan.org/facing-bladder-cancer/bladder-cancer-diagnosing-and-monitoring/

Please join my "Sharing is Caring" campaign to share a story from your bladder cancer journey! You can leave me a voice mail by recording it on this link: https://anchor.fm/cindy-lawson8/message

Or just send me an email at bladdercancertalk@gmail.com. Be sure to include some contact information in your voice mail or email so that I can reach out to you. Sharing your story with other bladder cancer patients is a great way to support each other on this journey that we all travel together.

Thanks also to Valley Green Naturals for sponsoring this podcast and making their fantastic, clean-ingredient personal care products available at a discount to our listeners! Use Promo Code "Healthy" for 15% off your first order! Just visit ValleyGreenNaturals.com.

*******************

Disclaimer: THIS PODCAST IS NOT INTENDED TO BE A MEDICAL ALTERNATIVE FOR PHYSICIAN CARE, NOR TO DIAGNOSE, TREAT, CURE OR PREVENT ANY ILLNESS OR DISEASE. ALWAYS CONSULT WITH A PHYSICIAN FOR PROFESSIONAL MEDICAL ADVICE.

#bladdercancer #bladdercancerawareness #bladdercancertreatment #urology #urogram #CTscan #bladdercancersupport #cancerpatient #cancerpodcast #TURBT #BCG #kickcancer #cancersucks #patientadvocacy #cancerresearch #immunotherapy #survivorship #BCAN

Search: bladder cancer, bladder cancer symptoms, bladder cancer awareness, bladder cancer treatment, diagnosing bladder cancer, urology, bladder cancer support, cancer patient, cancer podcast, kick cancer, cancer sucks, patient advocacy, cancer research, survivorship, signs of bladder cancer, symptoms of bladder cancer, symptoms of bladder cancer in women, causes of bladder cancer in women, smoking and bladder cancer, treatment for bladder cancer