IDD Health Matters

By: Friends for Life
  • Summary

  • IDD Health Matters hosted by Craig Escudé, MD, FAAFP, FAADM features guests from across the globe who are leading the efforts to improve health, wellness and health equity for people with intellectual and developmental disabilities.
    2023
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Episodes
  • Ep 84: Telling the Stories That Matter with John Silfies
    Feb 17 2025

    In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé sits down with John Silfies, keynote speaker at the Kansas InterHab Conference and founder of Silfies Media, a company dedicated to making the developmental disabilities (DD) field famous.

    John shares his journey from Direct Support Professional (DSP) to marketing expert, emphasizing the power of storytelling in raising awareness, attracting new professionals, and celebrating the lives of individuals with disabilities. He discusses how his media company helps provider agencies, government organizations, and local communities by crafting impactful videos and social media campaigns that highlight the real stories and achievements within the IDD field.

    Throughout the conversation, John and Dr. Escudé explore the importance of mental health and gratitude in a field that is often stressful but deeply rewarding. They discuss how sharing stories fosters connection, increases retention among DSPs, and strengthens community support for IDD services.

    John also shares a powerful success story of how his company’s videos have helped counties pass critical funding levies and amplified the voices of individuals with disabilities, proving that visibility and awareness can drive real change.

    Tune in for an inspiring conversation about the impact of storytelling, the importance of celebrating even the smallest victories, and the dedication of those working in the IDD field.

    🔗 Learn more about John’s work at Silfies Media
    🔗 Explore resources from IntellectAbility at ReplacingRisk.com

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    15 mins
  • Ep 83: Bridging Ministry and Disability Support: A Conversation with Johnathon Crumley
    Feb 10 2025

    On this episode of IDD Health Matters, Dr. Craig Escudé sits down with Johnathon Crumley, Chief Operations Officer of IntellectAbility, to discuss his unexpected journey into the field of intellectual and developmental disability (IDD) support. Originally planning a career as a military chaplain, Jonathan's path shifted when he discovered his passion for improving services and quality of life for individuals with IDD. In this insightful conversation, Johnathon shares how person-centered thinking, proactive healthcare approaches, and celebrating small wins can transform support systems. He also dives into the critical work IntellectAbility is doing to provide tools, training, and resources that enhance care for people with IDD. Tune in to learn how balancing health, safety, and personal choice leads to a more fulfilling life for individuals with disabilities. For more information on IntellectAbility’s resources, visit ReplacingRisk.com.

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    25 mins
  • Ep 82: A Lifetime in IDD Nursing: Sharon Parker Love on Crisis Prevention & Quality Care
    Feb 3 2025

    In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Sharon Parker Love, a nurse with 56 years of experience, to discuss her journey in the field of intellectual and developmental disabilities (IDD) nursing. Recorded at the Illinois Developmental Disabilities Nurses Association Conference, Sharon shares her remarkable career—from starting with a state grant program to dedicating over three decades to Trinity Services, where she has helped individuals with dual diagnoses and complex medical needs.

    Sharon dives into her work in crisis prevention, recounting heartbreaking and inspiring stories of individuals in need, including an individual who spent eight months in an emergency room before receiving proper care. She emphasizes the importance of observation skills, direct care staff training, and a detective-like approach to uncovering hidden medical conditions that often manifest as behavioral challenges.

    Tune in for invaluable insights into the evolving role of nurses in IDD care and the crucial need for more professionals in this field.

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    18 mins

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