In this episode of IDD Health Matters, Dr. Craig Escudé welcomes Mary Brogan, the state director for developmental disability services in Hawaii. Mary shares her extensive experience managing programs that impact individuals with intellectual and developmental disabilities (IDD), including the oversight of the 1915(c) Medicaid Waiver and neurotrauma services. She highlights the unique challenges of providing dental care and the importance of accessible health services tailored to meet the needs of people with IDD in Hawaii.

Mary and Dr. Escudé dive into the critical importance of person-centered practices and how a preventative, systematic approach to healthcare can vastly improve outcomes for individuals with IDD. They discuss the concept of “diagnostic overshadowing,” where medical professionals might attribute symptoms solely to a disability rather than exploring underlying health issues. By encouraging more training and awareness among health practitioners, Mary and Dr. Escudé advocate for a future where IDD patients receive the comprehensive care they deserve.

The episode also highlights Mary’s work with the National Association of State Directors of Developmental Disabilities Services (NASDDDS). She explains how the organization provides invaluable federal-level advocacy, technical support, and guidance to help state agencies better serve their communities. Reflecting on the collaboration during the COVID-19 pandemic, Mary shares her belief in the power of partnerships and the importance of balancing dedication to work with personal well-being.

In this episode of the IDD Health Matters Podcast, Dr. Craig Escudé is joined by John Raffaele, Director of Educational Services at the National Alliance for Direct Support Professionals (NADSP), for a candid conversation about the evolving role of direct support professionals (DSPs) and their impact on the lives of people with intellectual and developmental disabilities (IDD). Recorded live from the NADSP Annual Conference in Pittsburgh, this episode dives deep into the unique challenges and responsibilities DSPs face and how the industry is working toward elevating their role from entry-level caretakers to respected professionals. John sheds light on NADSP’s mission to redefine DSP training as meaningful development, focusing on professional growth rather than just compliance-based instruction.

John also discusses the critical need for a standardized credentialing and certification system for DSPs—something he likens to a medical residency, providing DSPs with hands-on, guided experience rather than simply checking off boxes for required trainings. He emphasizes that DSPs are often left underprepared by traditional entry-level training models, which typically focus on emergency response rather than the nuanced daily support most individuals with IDD require. With over 1.5 million DSPs in the United States, the push for a more formalized development structure and recognition as a legitimate profession is a priority for NADSP, which actively works on advocacy and policy initiatives to achieve this goal.

In this episode of the IDD Health Matters Podcast, host Dr. Craig Escudé welcomes Valerie Bradley, a pioneer in the intellectual and developmental disabilities (IDD) field. Valerie is the president and co-founder of the Human Services Research Institute (HSRI), an organization dedicated to advancing policies and practices in human services. With over four decades of experience, Valerie has been at the forefront of deinstitutionalization efforts, working to move individuals with IDD from large institutions into more community-based, supportive environments. Her expertise and passion for improving the quality of life for individuals with disabilities have earned her a significant reputation in the field.

During the conversation, Valerie reflects on the successes and ongoing challenges of deinstitutionalization, particularly the transition from large institutional settings to smaller community homes. While progress has been made in creating residential and employment supports, Valerie notes the initial missteps of replicating institutional models in smaller settings and the importance of fostering truly integrated community living. She also highlights the impact of the Centers for Medicare and Medicaid Services (CMS) Settings Rule, a landmark policy change that has advanced the rights of individuals with IDD to live more independent and self-directed lives.

The discussion delves into broader systemic issues, including the workforce crisis in the caregiving profession and the need for enhanced training and support for Direct Support Professionals (DSPs). Valerie emphasizes the value of self-direction for individuals with IDD, enabling them to take control of their own care and use personalized budgets to hire staff. Her insights provide a long view of the field, tracing its evolution and underscoring the need for continued progress to ensure equitable healthcare and meaningful community inclusion for people with IDD.

In this episode of IDD Health Matters, host Dr. Craig Escudé is joined by Valerie Chadwick, the Health Advocacy Director at The Arc of Philadelphia. Valerie shares her journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD), highlighting her initial hesitance and eventual drive to become more engaged with this underserved population. Valerie talks about her role at The Arc, where she oversees a program that helps medical and health students interact with individuals with disabilities, fostering understanding and competence in providing inclusive care.

Together, they discuss the importance of training healthcare professionals to meet the needs of people with IDD and the groundbreaking partnerships Valerie is building with medical and dental schools in Philadelphia. This episode is filled with powerful insights on the necessity of presuming competence, seeing individuals with disabilities in their full humanity, and making meaningful differences within your sphere of influence. Valerie also opens up about her personal dream of pursuing medical school and continuing her advocacy for people with disabilities throughout her career.

Tune in to hear Valerie’s inspiring story and learn more about how healthcare can evolve to be more inclusive for people with disabilities.

Join Dr. Craig Escudé on IDD Health Matters as he welcomes Dr. Kelly Nye-Lengerman, a seasoned social worker and the Director at the University of New Hampshire's Institute on Disability. In this episode, Dr. Nye-Lengerman delves into her work at the institute, focusing on increasing inclusion and belonging across the lifespan and experiences of disability. With a rich background in both direct support and academic leadership, she offers a unique perspective on the intersection of intellectual disability and mental health, emphasizing the importance of community-based support systems and professional education to improve the quality of life for people with disabilities.

Dr. Nye-Lengerman shares the challenges and strategies involved in enhancing health equity through her involvement with the START National Training Institute, which aims to advance practices that support individuals and families in the most inclusive and equitable ways possible. This conference, enriched by contributions from people with lived experiences and community partners, showcases the significant progress being made in the field. The conversation also touches on the common misinterpretations of behavioral symptoms as mental health issues, highlighting the necessity of recognizing underlying medical conditions which can be treated to prevent unnecessary suffering.

The episode concludes with a powerful discussion on the role of direct support professionals and the critical need for proper training and recognition of this workforce to achieve real inclusion and participation for people with intellectual and developmental disabilities. Dr. Nye-Lengerman's passionate advocacy for equitable health care and her belief in the transformative power of inclusive higher education shine through, offering valuable insights and inspiring listeners to consider the deep impact of educational and support systems in enhancing the lives of people with disabilities.

In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michele Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michele’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care. Michele highlights the unique mission of Achievable Health, emphasizing its integrated care approach, including medical services, behavioral health, and therapy. The clinic, although small, is growing rapidly and has recently received a significant grant from the Mackenzie Scott Foundation to expand its services. Michele and Dr. Escudé discuss the importance of creating an accessible, welcoming environment for people with IDD, as well as the collaborative work with California's regional centers to ensure comprehensive care and support for patients with disabilities. Throughout their conversation, Michele and Dr. Escudé explore key issues in healthcare for people with IDD, including the systemic discrimination patients often face and the lack of proper training among healthcare providers. They also delve into the broader need for healthcare professionals to approach care with humility and a willingness to learn, ensuring that individuals with IDD receive the compassionate, competent care they deserve. This insightful episode sheds light on the ongoing efforts to improve healthcare equity for people with IDD.

In this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years.

Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic addresses complex medical, behavioral, and psychosocial challenges, working closely with families and care teams to find effective solutions. Through thoughtful case studies and examples, Dr. Benton emphasizes the importance of collaborative, interdisciplinary healthcare, highlighting how their evaluations have transformed lives.

Listeners will also hear about the clinic’s capacity-building efforts, where Dr. Benton’s team teaches and supports local clinicians to ensure long-term care improvements. Dr. Benton offers practical tips for professionals working with individuals who cannot communicate verbally, stressing the importance of listening with more than just ears and recognizing subtle signs during physical exams.

Tune in for a deep dive into this unique model of care and discover how collaboration and dedication can enhance health outcomes for people with IDD.

In this episode of *IDD Health Matters*, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the realm of healthcare access and social inclusion.

The conversation delves into the critical need for improved healthcare services for people with IDD, with Ann highlighting the disparities in medical care that individuals face in both institutional and community settings. She discusses issues like inadequate dental care, polypharmacy, and the lack of training among healthcare providers to address the unique needs of this population. Ann and Dr. Escudé explore how these challenges can be overcome through better training for clinicians and more person-centered approaches to healthcare, ensuring that people with IDD receive the care they deserve.

Ann also shares exciting initiatives underway at the New York Alliance, including a new executive leadership development program aimed at building future leaders in the field of disability services. She emphasizes the importance of fostering a strong, value-driven network of professionals who are committed to inclusion, diversity, and innovation. Throughout the episode, Ann underscores the power of relationships and advocacy, encouraging listeners to share their stories and continue pushing for greater acceptance and equity for people with disabilities.