• Ep 64: Improving Healthcare for People with IDD: Dr. Michelle Cantanzerite on Integrated Care
    Sep 30 2024

    In this episode of IDD Health Matters, Dr. Craig Escudé is joined by Dr. Michelle Cantanzerite, Chief Medical Officer at Achievable Health, a federally qualified health center in Culver City, California. Together, they dive into Michelle’s journey into the field of healthcare for individuals with intellectual and developmental disabilities (IDD). From a chance start to now leading a healthcare facility dedicated to improving the lives of individuals with IDD, Michelle reflects on the challenges and rewards of working in this specialized field, where communication and humility play crucial roles in delivering patient-centered care.

    Michelle highlights the unique mission of Achievable Health, emphasizing its integrated care approach, including medical services, behavioral health, and therapy. The clinic, although small, is growing rapidly and has recently received a significant grant from the Mackenzie Scott Foundation to expand its services. Michelle and Dr. Escudé discuss the importance of creating an accessible, welcoming environment for people with IDD, as well as the collaborative work with California's regional centers to ensure comprehensive care and support for patients with disabilities.

    Throughout their conversation, Michelle and Dr. Escudé explore key issues in healthcare for people with IDD, including the systemic discrimination patients often face and the lack of proper training among healthcare providers. They also delve into the broader need for healthcare professionals to approach care with humility and a willingness to learn, ensuring that individuals with IDD receive the compassionate, competent care they deserve. This insightful episode sheds light on the ongoing efforts to improve healthcare equity for people with IDD.

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    20 mins
  • Ep 63: Innovative Healthcare for Individuals with IDD: Dr. Toni Benton on Collaborative Care
    Sep 23 2024

    In this episode of IDD Health Matters, Dr. Craig Escude is joined by Dr. Toni Benton, a professor and medical director at the University of New Mexico's Family Medicine department. Together, they dive into the complexities of healthcare for individuals with intellectual and developmental disabilities. Dr. Benton shares insights about her work with the Transdisciplinary Evaluation and Support (TES) Clinic, a program that's been providing innovative, community-based care for over 30 years.

    Dr. Benton explains how her team, which includes medical professionals, social workers, and various specialists, provides comprehensive evaluations for individuals across New Mexico. The TES Clinic addresses complex medical, behavioral, and psychosocial challenges, working closely with families and care teams to find effective solutions. Through thoughtful case studies and examples, Dr. Benton emphasizes the importance of collaborative, interdisciplinary healthcare, highlighting how their evaluations have transformed lives.

    Listeners will also hear about the clinic’s capacity-building efforts, where Dr. Benton’s team teaches and supports local clinicians to ensure long-term care improvements. Dr. Benton offers practical tips for professionals working with individuals who cannot communicate verbally, stressing the importance of listening with more than just ears and recognizing subtle signs during physical exams.

    Tune in for a deep dive into this unique model of care and discover how collaboration and dedication can enhance health outcomes for people with IDD.

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    20 mins
  • Ep 62: Transforming IDD Care: Ann Hardiman on Deinstitutionalization, Healthcare & Leadership Challenges
    Sep 16 2024

    In this episode of *IDD Health Matters*, Dr. Craig Escudé welcomes Ann Hardiman, Chief Innovation Officer at the New York Alliance for Inclusion and Innovation. Ann shares her journey into the field of intellectual and developmental disabilities (IDD), which was shaped by personal experiences with mental health in her family. The discussion begins with Ann's involvement during the early days of deinstitutionalization, when people with IDD were transitioning from institutional settings to community-based living. Ann reflects on the significant improvements in quality of life that resulted from this movement, as well as the challenges that persist, particularly in the realm of healthcare access and social inclusion.

    The conversation delves into the critical need for improved healthcare services for people with IDD, with Ann highlighting the disparities in medical care that individuals face in both institutional and community settings. She discusses issues like inadequate dental care, polypharmacy, and the lack of training among healthcare providers to address the unique needs of this population. Ann and Dr. Escudé explore how these challenges can be overcome through better training for clinicians and more person-centered approaches to healthcare, ensuring that people with IDD receive the care they deserve.

    Ann also shares exciting initiatives underway at the New York Alliance, including a new executive leadership development program aimed at building future leaders in the field of disability services. She emphasizes the importance of fostering a strong, value-driven network of professionals who are committed to inclusion, diversity, and innovation. Throughout the episode, Ann underscores the power of relationships and advocacy, encouraging listeners to share their stories and continue pushing for greater acceptance and equity for people with disabilities.

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    24 mins
  • Ep 61: Dr. Carl Tyler on Improving Healthcare for Individuals with Intellectual and Developmental Disabilities
    Sep 9 2024

    Dr. Carl Tyler is a leading figure in the field of healthcare for individuals with intellectual and developmental disabilities (IDD). He is the current president of the American Academy of Developmental Medicine and Dentistry (AADMD), an organization dedicated to improving healthcare for people with IDD through education, advocacy, and policy efforts. Dr. Tyler is also a professor of family medicine at the Cleveland Clinic, where he plays a key role in training healthcare providers, including residents, on how to care for individuals with IDD.

    His career began during the deinstitutionalization movement in Ohio, and over time, he became a strong advocate for improving healthcare systems and training physicians to meet the specific needs of this population. Dr. Tyler's work includes research, scholarship, and contributions to medical literature, and he has helped integrate specialized care for individuals with IDD into mainstream medical training programs.

    In addition to his clinical and educational work, Dr. Tyler has authored several key resources, including the book Intellectual Disability at Your Fingertips, which provides practical guidance for healthcare providers working with this population.

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    30 mins
  • Ep 60: Enhancing Health Equity in IDD Care: Insights from Pharmacy Leaders Nanette Wrobel & Jessica Jacobs
    Sep 2 2024

    Welcome to another insightful episode of the IDD Health Matters Podcast with Dr. Craig Escude. In this episode, Dr. Escude is joined by two remarkable guests, Nanette Wrobel and Jessica Jacobs from Tarrytown Expocare Pharmacy, a leading provider of pharmacy services for individuals with intellectual and developmental disabilities (IDD).

    Nanette, a seasoned pharmacist with nearly 40 years of experience, and Jessica, a pharmacy technician with a strong background in mental health and IDD, share their unique journeys into the IDD field. They discuss the critical role that specialized pharmacy services play in supporting individuals with IDD, emphasizing the importance of tailored medication management and the need for continuous education for healthcare providers.

    Throughout the conversation, Dr. Escude and his guests delve into the nuances of medication management for people with IDD, including the challenges of recognizing and addressing non-verbal communication of symptoms and side effects. They also explore the broader implications of health equity in this field, highlighting the progress made and the ongoing need for collaboration among healthcare professionals to improve the quality of care.

    Tune in to hear inspiring stories, practical advice, and a deep dive into the collaborative efforts required to enhance the lives of individuals with IDD. Whether you're a healthcare professional, caregiver, or advocate, this episode is packed with valuable insights that can help you make a positive impact in the IDD community.

    Don't miss the "Three in Three" segment, where Jessica and Nanette offer actionable tips for improving health and wellness for people with IDD, emphasizing the power of education, volunteerism, and an open-minded approach to learning.

    Join us for this enlightening discussion that reinforces the importance of compassionate care and continuous learning in the IDD field.

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    29 mins
  • Ep 59: Career Opportunities and Health Equity Insights with Catherine Thibedeau
    Aug 26 2024

    Join Dr. Craig Escude in this insightful episode of IDD Health Matters, recorded live from the ANCOR conference in Chicago. In this episode, Dr. Escude welcomes Catherine Thibedeau, who shares her remarkable journey from entering the field of supports and services for people with intellectual and developmental disabilities (IDD) by necessity, to becoming the executive director of Independence Advocates of Maine. Catherine discusses the array of services her agency provides and highlights her dual role in influencing policy and professional development through state and national provider networks.

    Catherine's story illustrates the career opportunities within the IDD service field, emphasizing the potential for rapid advancement and professional growth. Additionally, she dives into the innovative health initiatives her organization is pioneering, such as the use of telemedicine to improve accessibility and quality of care for people with IDD, especially in rural settings.

    Listeners will gain valuable insights into the importance of inclusive hiring practices and the transformative impact of thoughtful, person-centered caregiving. Whether you’re a provider, a caregiver, or someone interested in the field of IDD services, this episode is packed with inspiring stories and practical advice for fostering health equity and empowering individuals with disabilities.

    Tune in to learn how engaging with and supporting the IDD community can enrich lives and enhance the quality of care across the board.

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    18 mins
  • Ep 58: Art Dykstra's Journey in IDD Support and the Power of Interdisciplinary Care
    Aug 19 2024

    In this episode of IDD Health Matters, Dr. Craig Escudé sits down with Art Dykstra, a veteran in the field of intellectual and developmental disabilities (IDD). Art, who currently serves as the director of the Trinity Foundation and has previously led Trinity Services as CEO, shares his inspiring journey from an unexpected start in the IDD field to becoming a pivotal figure in providing support and resources for individuals with disabilities across Illinois.

    Art's story begins with a simple job posting that led him to work with a young man with autism, a transformative experience that steered him from philosophy to psychology and ultimately into a lifelong commitment to the IDD community. Throughout the conversation, Art reflects on the importance of making a difference in people's lives and how his early experiences shaped his career. His insights into the challenges and rewards of working in this field provide a deep understanding of the complexities and the profound impact one can have on individuals and their families.

    Dr. Escudé and Art discuss the vital role of interdisciplinary collaboration in supporting individuals with IDD, emphasizing the need for integrating mental and physical health care. They also explore the concepts of happiness and joy, the importance of self-awareness, and the value of serving others. Art’s dedication to improving the lives of those with IDD is a testament to the power of compassion and commitment, offering valuable lessons for anyone interested in making a difference in this field. Tune in for a heartfelt and enlightening conversation that underscores the profound impact of dedicated service in the lives of others.

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    21 mins
  • Ep 57: Understanding Trauma-Informed Care for IDD: Insights from Karyn Harvey PhD
    Aug 12 2024

    In this insightful episode of the IDD Health Matters Podcast, Dr. Craig Escude sits down with Karyn Harvey, a passionate advocate for trauma-informed care in the field of intellectual and developmental disabilities (IDD). Recorded live from the ANCOR conference, Karyn shares her deep understanding of the behavioral challenges often faced by individuals with IDD, revealing how these behaviors are frequently symptoms of unrecognized trauma, such as post-traumatic stress disorder (PTSD).

    Karyn discusses the critical need for access to therapeutic support for those with IDD, emphasizing the profound impact of trauma on their mental health. She delves into the three essential components of trauma-informed support: emotional safety, connection through meaningful relationships, and empowerment. Through her years of experience, Karyn highlights the vital role that direct support professionals (DSPs) play in the healing and growth of individuals with IDD, stressing that the most significant transformations occur when DSPs are compassionate, understanding, and supportive.

    Tune in to hear Karyn’s inspiring stories, learn about her latest book "Trauma and Healing," and discover practical strategies for creating environments where individuals with IDD can thrive. This episode is a must-listen for anyone interested in health equity, trauma-informed care, and making a lasting difference in the lives of those with intellectual and developmental disabilities.

    About Karyn: Karyn Harvey, PhD, is a well-respected psychologist and expert in the field of intellectual and developmental disabilities (IDD), particularly known for her work on trauma-informed care. She has spent over three decades working with individuals with IDD, focusing on mental health, behavioral interventions, and therapeutic support. Dr. Harvey is a passionate advocate for recognizing and addressing the trauma experienced by people with IDD, which is often overlooked or misunderstood.

    She is the author of several books, including "Trauma-Informed Behavioral Interventions" and "Trauma and Healing," which provide valuable resources for caregivers, direct support professionals, and others working in the IDD field. Her work emphasizes the importance of creating safe, connected, and empowering environments for individuals with IDD to help them heal and thrive. Dr. Harvey is also a frequent speaker at conferences and a sought-after expert in the area of mental health and trauma for people with intellectual and developmental disabilities.

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    21 mins