Dementia Reimagined
Building a Life of Joy and Dignity from Beginning to End
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Narrated by:
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Kimberly Farr
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Tia Powell
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By:
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Tia Powell
About this listen
The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care.
Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother and then her mother were diagnosed with dementia - not to mention confronting the hard truth that her own odds aren't great. In the US, 10,000 Baby Boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care - what we can do for those who have dementia and how to keep life meaningful and even joyful.
Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the 20th century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss - it's also about the preservation of dignity and hope.
©2019 Tia Powerll (P)2019 Penguin AudioListeners also enjoyed...
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Critic reviews
"Dementia Reimagined is a brave, sobering, and profoundly humane book about one of the most serious challenges we face both as individuals and as a society. As a physician and bioethicist with a family history of dementia herself, Powell excavates the little-known history of the condition, while persuasively arguing that we must supplement our efforts to develop a cure by building an infrastructure of compassionate care to ensure a decent quality of life for our beloved elders and our future selves." (Steve Silberman, New York Times best-selling author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)
“Dementia is the defining disease of our era. Powell invites us to imagine a brighter way forward. Dementia Reimagined succeeds on many levels - it is informative and insightful, historically illuminating, scientifically accurate, socially savvy and so well written. The result is utterly engaging.” (Ira Byock, MD, author of The Four Things That Matter Most and Dying Well, founder and chief medical director, Institute for Human Caring, Providence St. Joseph Health)
“In this effective demystification of dementia and Alzheimer's disease, physician and bioethicist Powell reframes two debilitating cognitive disorders.... Throughout this insightful book, the author addresses the issues facing dementia victims and their caregivers with the kind of compassion and dignity everyone deserves at the end of life. A potent hybrid of medical history/journal and memoir.” (Kirkus Reviews)
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Aging with Grace
- By Lisa F on 05-19-21
By: Gayatri Devi MD
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Saving Normal
- An Insider’s Revolt Against out-of-Control Psychiatric Diagnosis, DSM-5, Big Pharma, and the Medicalization of Ordinary Life
- By: Allen Frances MD
- Narrated by: Paul Boehmer
- Length: 11 hrs and 53 mins
- Unabridged
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In Saving Normal, Allen Frances, one of the world's most influential psychiatrists, warns that mislabeling everyday problems as mental illness has shocking implications for individuals and society: Stigmatizing a healthy person as mentally ill leads to unnecessary, harmful medications, the narrowing of horizons, misallocation of medical resources, and draining of the budgets of families and the nation.
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Right on the money
- By Mentecuerpo on 03-29-19
By: Allen Frances MD
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Counterclockwise
- Mindful Health and the Power of Possibility
- By: Ellen J. Langer
- Narrated by: Sandra Burr
- Length: 7 hrs and 10 mins
- Unabridged
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If we could turn back the clock psychologically, could we also turn it back physically? For more than 30 years, award-winning social psychologist Ellen Langer has studied this provocative question, and now has a conclusive answer: opening our minds to what's possible, instead of clinging to accepted notions about what's not, can lead to better health at any age.
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Surprisingly disappointing
- By Stephen on 06-23-09
By: Ellen J. Langer
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Suspicious Minds
- How Culture Shapes Madness
- By: Joel Gold, Ian Gold
- Narrated by: Joel Gold, Ian Gold
- Length: 9 hrs and 51 mins
- Unabridged
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Mr. A. was admitted to Dr. Joel Gold’s inpatient unit at Bellevue Hospital in 2002. He was, he said, being filmed constantly, and his life was being broadcast around the world "like The Truman Show" - the 1998 film depicting a man who is unknowingly living out his life as the star of a popular soap opera. Over the next few years, Gold saw a number of patients suffering from what he and his brother, Dr. Ian Gold, began calling the "Truman Show Delusion," launching them on a quest to understand the nature of this particular phenomenon and the nature of madness itself.
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Intriguing
- By L. K. on 04-18-16
By: Joel Gold, and others
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The Inheritance
- A Family on the Front Lines of the Battle Against Alzheimer's Disease
- By: Niki Kapsambelis
- Narrated by: Callie Beaulieu
- Length: 9 hrs and 46 mins
- Unabridged
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Every 69 seconds, someone is diagnosed with Alzheimer's disease. Of the top 10 killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation.
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A Cover-to-Cover Slug in the Gut, but Inspiring
- By Gillian on 04-16-17
By: Niki Kapsambelis
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Changing the Way We Die
- Compassionate End-of-Life Care and the Hospice Movement
- By: Sheila Himmel, Fran Smith
- Narrated by: Coleen Marlo
- Length: 6 hrs and 49 mins
- Unabridged
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There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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Sadly, not very engaging.
- By Debra S. Long on 06-16-18
By: Sheila Himmel, and others
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Manufacturing Depression
- The Secret History of a Modern Disease
- By: Gary Greenberg
- Narrated by: Kirby Heyborne
- Length: 14 hrs and 10 mins
- Unabridged
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Am I happy enough? This has been a pivotal question since America's inception. "Am I not happy enough because I am depressed?" is a more recent version. Psychotherapist Gary Greenberg shows how depression has been manufactured---not as an illness but as an idea about our suffering, its source, and its relief. He challenges us to look at depression in a new way.
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Modern Gonzo Tour de Force
- By S. Frank on 11-12-11
By: Gary Greenberg
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The Book of Woe
- The DSM and the Unmaking of Psychiatry
- By: Gary Greenberg
- Narrated by: David Drummond
- Length: 14 hrs
- Unabridged
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For more than two years, author and psychotherapist Gary Greenberg has embedded himself in the war that broke out over the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (the DSM) - the American Psychiatric Association's (APA) compendium of mental illnesses and what Greenberg calls "the book of woe". Since its debut in 1952, the book has been frequently revised, and with each revision, the "official" view on which psychological problems constitute mental illness has changed.
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Disappointment
- By NYNM on 06-03-13
By: Gary Greenberg
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Teeth
- The Story of Beauty, Inequality, and the Struggle for Oral Health in America
- By: Mary Otto
- Narrated by: Suehyla El'Attar
- Length: 9 hrs and 37 mins
- Unabridged
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Teeth takes listeners on a disturbing journey into America's silent epidemic of oral disease, exposing the hidden connections between tooth decay and stunted job prospects, low educational achievement, social mobility, and the troubling state of our public health.
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Content everyone should know; dismal narration
- By Elaine on 08-04-17
By: Mary Otto
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The Good Death
- An Exploration of Dying in America
- By: Ann Neumann
- Narrated by: Suzanne Toren
- Length: 8 hrs and 44 mins
- Unabridged
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Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States. When Ann Neumann's father was diagnosed with non-Hodgkin's lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver - cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying.
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Ugh, so boring
- By Maranto on 05-13-19
By: Ann Neumann
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The Birth of the Pill
- How Four Crusaders Reinvented Sex and Launched a Revolution
- By: Jonathan Eig
- Narrated by: Gayle Hendrix
- Length: 12 hrs and 26 mins
- Unabridged
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We know it simply as "the pill", yet its genesis was anything but simple. Jonathan Eig's masterful narrative revolves around four principal characters: the fiery feminist Margaret Sanger, who was a champion of birth control in her campaign for the rights of women but neglected her own children in pursuit of free love; the beautiful Katharine McCormick, who owed her fortune to her wealthy husband, the son of the founder of International Harvester and a schizophrenic.
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Overall Excellent Read
- By Rachel on 04-02-22
By: Jonathan Eig
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Anatomy of an Epidemic
- Magic Bullets, Psychiatric Drugs, and the Astonishing Rise of Mental Illness in America
- By: Robert Whitaker
- Narrated by: Ken Kliban
- Length: 13 hrs and 57 mins
- Unabridged
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In this astonishing and startling book, award-winning science and history writer Robert Whitaker investigates a medical mystery: Why has the number of disabled mentally ill in the United States tripled over the past two decades? Every day, 1,100 adults and children are added to the government disability rolls because they have become newly disabled by mental illness, with this epidemic spreading most rapidly among our nations children. What is going on?
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The author does not use a fair scientific approach
- By Michael on 08-15-10
By: Robert Whitaker
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Unaccountable
- What Hospitals Won't Tell You and How Transparency Can Revolutionize Health Care
- By: Marty Makary
- Narrated by: Robertson Dean
- Length: 7 hrs and 16 mins
- Unabridged
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Dr. Marty Makary is co-developer of the life-saving checklist outlined in Atul Gawande's best-selling The Checklist Manifesto. As a busy surgeon who has worked in many of the best hospitals in the nation, he can testify to the amazing power of modern medicine to cure. But he's also been a witness to a medical culture that routinely leaves surgical sponges inside patients, amputates the wrong limbs, and overdoses children because of sloppy handwriting. Over the last 10 years, neither error rates nor costs have come down, despite scientific progress.
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Everyone should read this book.
- By Julie on 06-11-16
By: Marty Makary
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Crazy Like Us
- The Globalization of the American Psyche
- By: Ethan Watters
- Narrated by: Patrick Lawlor
- Length: 8 hrs and 57 mins
- Unabridged
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America has been the world leader in generating new mental health treatments and modern theories of the human psyche. We export our psychopharmaceuticals packaged with the certainty that our biomedical knowledge will relieve the suffering and stigma of mental illness. We categorize disorders, thereby defining mental illness and health, and then parade these seemingly scientific certainties in front of the world.
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He is a reporter...
- By Briana on 05-07-18
By: Ethan Watters
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To Repair the World
- Paul Farmer Speaks to the Next Generation
- By: Paul Farmer, Bill Clinton - foreword, Jonathan Weigel - editor
- Narrated by: Joe Barrett, David Ledoux, Kevin T. Collins
- Length: 8 hrs and 58 mins
- Unabridged
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Here, for the first time, is a collection of short speeches by the charismatic doctor and social activist Paul Farmer. One of the most passionate and influential voices for global health equity and social justice, Farmer encourages young people to tackle the greatest challenges of our times. Engaging, often humorous, and always inspiring, these speeches bring to light the brilliance and force of Farmer's vision in a single, accessible volume.
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Resist the Impoverishment of Aspiration
- By Susie on 05-14-13
By: Paul Farmer, and others
What listeners say about Dementia Reimagined
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- Rebekah
- 10-09-19
Beautiful and Helpful
I would recommend this book to anyone, whether or not they have a loved one with dementia. Powell goes into depth about the realities of dementia, both in the present and throughout its complex history. If you or a family member know someone with dementia and are looking for resources this is a great choice. Powell manages to be thorough but not overly medical, and the concepts in this book were easy to understand. Although I loved the history, the most applicable chapters were towards latter half of this book.
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1 person found this helpful
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- Alednam A Uonopk
- 02-04-21
Good read throughout....
Working in the rehabilitation/nursing industry, I could relate to much of what was brought forth in this book.... Will probably listen to it again later on in the future..... Insightful....
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- D.Ryan
- 08-26-21
Informed view of Dementia and Alzheimer’s
A beautiful, thoughtfully, medically informative and realistic presentation to assist us and our loved ones who suffer from Dementia.
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- hi's
- 03-27-22
Dementia Reimagined review
I will use the information to better care for and with my mother. Thank you!
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- PureTouchMassageTherapy
- 12-05-19
Dementia, let's talk about it
Even though some of this book described medicines, researh and different kinds of dementia in great detail and with names I'll not remember, I think it is a must read if you want to understand and get familiar with dementia, it's impact on families, communities and the medical world that serves it. after you finish reading, talk with your loved ones and doctors about what you'd like your care to look like if you ever suffer from dementia.
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- Amazon Customer
- 06-06-23
New Yorker author so excuse her
You can tell she’s a communist democrat from NY, but political opinions aside, it’s great in-site on the problems families if LO deal with.
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- DW
- 06-18-20
Misleading book synopsis
Was expecting to receive first hand tools and insight from caregiver to patient with dementia. Was just more rhetoric and history and complete waste of pompous research.. Severely disappointed in book.
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- JArnold
- 06-28-19
Mostly a historical look at dementia
Don’t expect help understanding how to deal with a loved one’s dementia. It might help you plan for your own in the future, but it was not what I was looking for to help me talk with my brother, who is very lucid, but has hallucinations and confabulates.
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4 people found this helpful
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- christine
- 10-01-24
Boring
It’s basically just a history of how Alzheimer’s/dementia has been discovered not at all what I thought
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