Demystifying Disability
What to Know, What to Say, and How to Be an Ally
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Narrated by:
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Emily Ladau
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By:
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Emily Ladau
About this listen
An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.
People with disabilities are the world’s largest minority, an estimated 15 percent of the global population. But many of us - disabled and nondisabled alike - don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on the important disability issues you need to know about, including:
- How to appropriately think, talk, and ask about disability
- Recognizing and avoiding ableism (discrimination toward disabled people)
- Practicing good disability etiquette
- Ensuring accessibility becomes your standard practice, from everyday communication to planning special events
- Appreciating disability history and identity
- Identifying and speaking up about disability stereotypes in media
Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all listeners a welcoming place to understand disability as part of the human experience.
Includes a downloadable PDF of Resources and Further Reading from the book
PLEASE NOTE: When you purchase this title, the accompanying PDF will be available in your Audible Library along with the audio.
©2021 Emily Ladau (P)2021 Random House AudioCritic reviews
“If being a good ally to disabled people is your goal...Ladau’s guide is a goldmine.” (Book Riot)
“Activist and writer Emily Ladau is a responsible guide and advocate for change, and her book is one that everyone could benefit from reading.” (BookPage)
“Emily Ladau provides a welcoming, easy-to-read guide to disability. I highly recommend this book to readers seeking to deepen their understanding of disability and ableism.” (Haben Girma, human rights lawyer, speaker, and author of Haben: The Deafblind Woman Who Conquered Harvard Law)
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The Anti-Ableist Manifesto
- Smashing Stereotypes, Forging Change, and Building a Disability-Inclusive World
- By: Tiffany Yu
- Narrated by: Tiffany Yu
- Length: 8 hrs and 30 mins
- Unabridged
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The Anti-Ableist Manifesto defines ableism as discrimination in favor of non-disabled people and helps listeners understand that ending discrimination begins with self-reflection. Tiffany Yu celebrates the power of stories and lived experiences to foster the proximity, intimacy, and humanity of disability identities that have far too often been “othered” and rendered invisible.
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A wellspring of inspiration for disability advocacy
- By hlmp_fam on 11-07-24
By: Tiffany Yu
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Care Work
- Dreaming Disability Justice
- By: Leah Lakshmi Piepzna-Samarasinha
- Narrated by: Leah Lakshmi Piepzna-Samarasinha
- Length: 8 hrs and 8 mins
- Unabridged
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In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.
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As Good as It Gets
- By Nico on 09-14-21
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Against Technoableism
- Rethinking Who Needs Improvement
- By: Ashley Shew
- Narrated by: Maria Pendolino
- Length: 4 hrs and 3 mins
- Unabridged
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When Ashley Shew became a self-described "hard-of-hearing chemobrained amputee with Crohn's disease and tinnitus," there was no returning to "normal." Suddenly well-meaning people called her an "inspiration" while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don't want what the abled assume they want—nor are they generally asked. In vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community.
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Thank you!
- By Adera Causey on 12-09-24
By: Ashley Shew
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All Our Families
- Disability Lineage and the Future of Kinship
- By: Jennifer Natalya Fink
- Narrated by: Emily Lawrence
- Length: 8 hrs and 10 mins
- Unabridged
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Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.
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How to Raise an Antiracist
- By: Ibram X. Kendi
- Narrated by: Ibram X. Kendi
- Length: 6 hrs and 46 mins
- Unabridged
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The tragedies and reckonings around racism that are rocking the country have created a specific crisis for parents, educators, and other caregivers: How do we talk to our children about racism? How do we teach children to be antiracist? How are kids at different ages experiencing race? How are racist structures impacting children? How can we inspire our children to avoid our mistakes, to be better, to make the world better? These are the questions Ibram X. Kendi found himself avoiding as he anticipated the birth of his first child.
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Exceptional
- By Sierra on 09-20-22
By: Ibram X. Kendi
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Sipping Dom Pérignon Through a Straw
- Reimagining Success as a Disabled Achiever
- By: Eddie Ndopu
- Narrated by: Eddie Ndopu
- Length: 5 hrs and 46 mins
- Unabridged
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Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.
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Enraging! An essential read
- By Abby Griffith on 02-09-24
By: Eddie Ndopu
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Evicted
- Poverty and Profit in the American City
- By: Matthew Desmond
- Narrated by: Dion Graham
- Length: 11 hrs and 3 mins
- Unabridged
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In Evicted, Princeton sociologist and MacArthur “Genius” Matthew Desmond follows eight families in Milwaukee as they each struggle to keep a roof over their heads. Hailed as “wrenching and revelatory” (The Nation), “vivid and unsettling” (New York Review of Books), Evicted transforms our understanding of poverty and economic exploitation while providing fresh ideas for solving one of twenty-first-century America’s most devastating problems. Its unforgettable scenes of hope and loss remind us of the centrality of home, without which nothing else is possible.
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Former Property Manager
- By Charla on 05-18-16
By: Matthew Desmond
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NeuroTribes
- The Legacy of Autism and the Future of Neurodiversity
- By: Steve Silberman
- Narrated by: William Hughes
- Length: 18 hrs and 46 mins
- Unabridged
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What is autism: a lifelong disability or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is both of these things and more - and the future of our society depends on our understanding it. Wired reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years.
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The long hard road to proper identity on the Autistic spectrum.
- By Lorijorn on 10-29-15
By: Steve Silberman
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Unmasking Autism
- Discovering the New Faces of Neurodiversity
- By: Devon Price PhD
- Narrated by: Devon Price PhD
- Length: 9 hrs and 51 mins
- Unabridged
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In Unmasking Autism, Dr. Devon Price shares their personal experience with masking and blends history, social science research, prescriptions, and personal profiles to tell a story of neurodivergence that has thus far been dominated by those on the outside looking in. For Dr. Price and many others, Autism is a deep source of uniqueness and beauty. Unfortunately, living in a neurotypical world means it can also be a source of incredible alienation and pain.
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Disappointing
- By Debra M. Givin on 11-12-22
By: Devon Price PhD
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Uniquely Human: Updated and Expanded
- A Different Way of Seeing Autism
- By: Barry M. Prizant PhD, Tom Fields-Meyer - contributor
- Narrated by: Barry M. Prizant
- Length: 11 hrs and 48 mins
- Unabridged
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Autism therapy typically focuses on ridding individuals of “autistic” symptoms such as difficulties interacting socially, problems in communicating, sensory challenges, and repetitive behavior patterns. Now Dr. Barry M. Prizant offers a new and compelling paradigm: The most successful approaches to autism don’t aim at fixing a person by eliminating symptoms, but rather seeking to understand the individual’s experience and what underlies the behavior. Rather than curb these behaviors, it’s better to enhance abilities, build on strengths, and offer supports.
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great Read
- By Mitzi on 05-30-24
By: Barry M. Prizant PhD, and others
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How to ADHD
- An Insider's Guide to Working with Your Brain (Not Against It)
- By: Jessica McCabe
- Narrated by: Jessica McCabe
- Length: 8 hrs and 58 mins
- Unabridged
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Diagnosed with ADHD at age twelve, Jessica struggled with a brain that she didn’t understand. She lost things constantly, couldn’t finish projects, and felt like she was putting more effort in than everyone around her while falling further and further behind. At thirty-two years old—broke, divorced, and living with her mom—Jessica decided to look more deeply into her ADHD challenges. She reached out to experts, devoured articles, and shared her discoveries on YouTube.
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Life changing
- By J & G on 04-02-24
By: Jessica McCabe
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Dare to Lead
- Brave Work. Tough Conversations. Whole Hearts.
- By: Brené Brown
- Narrated by: Brené Brown
- Length: 8 hrs and 10 mins
- Unabridged
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Brené Brown has spent the past two decades studying the emotions and experiences that give meaning to our lives, and the past seven years working with transformative leaders and teams spanning the globe. She found that leaders in organizations ranging from small entrepreneurial startups and family-owned businesses to nonprofits, civic organizations, and Fortune 50 companies all ask the same question: How do you cultivate braver, more daring leaders, and how do you embed the value of courage in your culture? This audiobook answers this question.
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Brené's Work Has Changed My Life
- By Maximus on 01-12-19
By: Brené Brown
What listeners say about Demystifying Disability
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- Highkickmom
- 04-12-24
Emily’s grace in allowing people to make mistakes
Emily’s true experiences shaped this book into a great tool to be mindful and not to be afraid to ask questions. Fantastic Group Read for Dancing Classrooms NYC!
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- Rebecca Warren
- 04-12-23
Good conversation starter! So relevant! Thanks, Emily!
As someone born with a physical disability (though I don't particularly like the word disability) and as someone who uses mobility aids, I related to so much of Emily's experience, and the things discussed in her book. It was invigorating and validating listening to this title. I highly recommend it for anyone, particularly for those who want to be better, educated/more supportive of those in the disability community, and I also recommend it for whom this topic is totally new, listening to it is highly effective… In fact, it would be my suggested way to enjoy this book. Thanks, Emily!
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1 person found this helpful
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- Sophie Krupp
- 03-13-24
We should have learned this is school
Thank you thank you! I have pages of notes, and so many questions. Everyone needs to read this book asap.
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- Cynthia Raines
- 03-01-22
Easy to read disability primer
An excellent read for those who are wanting a primer on disability, living with a disability and tips on how to not be an ableist. I have spent my life around many disability advocates and this narrative was super engaging and supportive of those who have little to no experience with people with disabilities.
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1 person found this helpful
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- Amazon Customer
- 05-23-23
Great Book for an Overview on Disability!
I have a disability myself, and even with being emerged in and knowing a lot about the disability community, it was nice to freshen up on some certain topics I had questions about and wanted to dive deeper in!
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1 person found this helpful
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- Lisa Thee
- 01-16-23
Learned a lot from this book
Emily does a great job helping both the disabled and those who love them better understand how to be an ally and how to deal with ableism.
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1 person found this helpful
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- Anonymous User
- 10-07-21
Perfect
Masterfully written and so helpful for those of us outside the communities of disabilities. Thank you for sharing your experiences.
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- Dvdmon
- 10-23-22
Mildly useful
As a non-disabled person married to someone with a disability, I was encouraged to read this book by my wife, who seems to be more and more pointing out ableist attitudes I seem to have about things, especially around COVID. So it would have been nice to have the Ladau's take on COVID and how it effects those with disabilities, and she does mention it very briefly, but really doesn't give it any real attention.
I think this is a great primer for those who have really almost no exposure to people with disabilities, at least not close exposure, and disability rights issues. A lot of the scenarios Ladau talks about are truly cringeworthy and to my ears sound like incredibly obvious, but I suppose that my experience has already clued me in enough to where these things are not particularly useful. They are like... "duh!" About the only suggestions I found useful personally were ones around always asking people before asking questions or really doing anything in terms of an interaction. I'm such an introvert that I generally don't strike up conversations with random strangers regardless of their disability status, so I'm not sure whether this will help much, but it did make good logical sense and might actually clue in some extraverts - and make them less pushy not just to disabled folks but to everyone, lol! The other part was around unintentionally "ableist" language that's used as general terms not really with those with disabilities in mind. Such words as "blind" and "lame" which people could use other words, but aren't actually referring to people with disabilities but rather general conditions. Like "he was blind to the concept of ..." or "That's a really lame idea." Such words have been so coopted into the language that I really wonder how many disabled people really take offense at these, and whether talking about this is focusing in the wrong area.
In other words, there are lots of bigger fish to fry when it comes to disability, and fixating on what I would consider to be minutia when there are serious harms being committed against disabled people, either by exclusion or active harassment, sems to be not the best way to win advocates and allies.
Ladau does thankfully cushion some of this by talking about how it's very easy to slip up and that even she does it, so I appreciated that. But I do think that fixating on some of these, especially very early on in the book, puts a big emphasis on what I consider to be extremely minor issues in the grand scheme of things. How about addressing the lower hanging fruit first, and working your way down to things that may (or may not?) offend some of the disabled community? And I do mean "some" because, as Ladau reminds us, disabled people, like really any group, are not a monolith.
The book also is very much an example of identity politics and talks a lot about intersectionality, privilege, etc. This is great if you are on the left end of the political/cultural spectrum and vibe with these concepts. But for anyone who isn't really in agreement about the current obsession on the left with identity (whether you are more conservative, centrist, or even on the left yourself, but just not in love with this aspect of the current political/cultural fixation), the concepts are thrown out as if they are just part of the accepted reality when it comes to the "correct" worldview. Given that at least half of the US is not so inclined, I don't know if this was the best choice. My thought is that if Ladau wanted to reach the largest number of people and convince them to both read the book and take the messages to heart, that some of this rhetoric could have been left out without compromising 98% of the overall message.
I do really like the reference section because it provides a lot of great items, both books, movies, and videos, to learn a lot more about those with disabilities and from various different perspectives.
I think in general the book has a good overall message and it definitely has its interesting and useful pieces even for those of us who have had a fair amount of exposure to disability issues and those with disabilities, It has some insights into the lives of those with disabilities that I wasn't really that familiar with despite my experiences. There are, however, issues with some of the message that I think are going to turn a lot of people away and dismiss it out of hand, which is unfortunately because I think the larger message of inclusion and respect for those with disabilities is an important message that people of all political and cultural stripes would benefit from hearing and thinking about.
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5 people found this helpful
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- Coral
- 10-13-21
Disappointing PC rant of a Undergrad
This book listens like you have been cornered by a undergrad with a cause at a table with some pamphlets. The message is good however the author needs to learn to give the reader space to are their own conclusions rather than presenting a conclusion and then giving a example which isn't flushed out. She has chosen first person narrative, and tends to refer to her mother which gives the text the feeling she is talking your ear off rather than authority in field. The author in future would do well to leave out " phew" at the end complexes grammar stretches by inviting the reader in a illustratable story or by developing a larger vocabulary to allow for ideas such as the interplay of thought and language as a self-reinforcing loop with each reinforcing the mentality of the individual towards a ridge view of the concept.
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3 people found this helpful