One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.

A brilliant and utterly original thinker, Andrew Solomon's journey began from his experience of being the gay child of straight parents. He wondered how other families accommodate children who have a variety of differences: families of people who are deaf, who are dwarfs, who have Down syndrome, who have autism, who have schizophrenia, who have multiple severe disabilities, who are prodigies, who commit crimes, who are transgender.

Spanning more than 200 years, An African American and Latinx History of the United States is a revolutionary, politically charged narrative history arguing that the "Global South" was crucial to the development of America as we know it. Ortiz challenges the notion of westward progress, and shows how placing African American, Latinx, and Indigenous voices unapologetically front and center transforms American history into the story of the working class organizing against imperialism.

Chronicling Andrew Solomon's stint on the barricades in Moscow in 1991, when he joined artists in resisting the coup whose failure ended the Soviet Union; his 2002 account of the rebirth of culture in Afghanistan following the fall of the Taliban; his insightful appraisal of a Myanmar steeped in contradictions as it slowly, fitfully pushes toward freedom; and many other stories of profound upheaval, this book provides a unique window onto the very idea of social change.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

The first significant book on the history and impact of the ADA - the "eyes on the prize" moment for disability rights. The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known.

There may be no tidy solutions or pithy answers to life’s big challenges, but Michelle Obama believes that we can all locate and lean on a set of tools to help us better navigate change and remain steady within flux. In The Light We Carry, she opens a frank and honest dialogue with listeners, considering the questions many of us wrestle with: How do we build enduring and honest relationships? How can we discover strength and community inside our differences? What tools do we use to address feelings of self-doubt or helplessness? What do we do when it all starts to feel like too much?

In Being Mortal, best-selling author Atul Gawande tackles the hardest challenge of his profession: how medicine can not only improve life but also the process of its ending. Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit.

What is autism: a lifelong disability or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is both of these things and more - and the future of our society depends on our understanding it. Wired reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years.

Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the 20th century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

You get ready to die the way you get ready for a trip. Start by realizing you don't know the way. Listen to a few travel guides. Study the language, look at maps, gather equipment. Let yourself imagine what it will be like. Pack your bags. This book is one of those travel guides - a guide to preparing for your own death and the deaths of people close to you. The fact of death is hard to believe. Sallie Tisdale explores our fears and all the ways death and talking about death make us uncomfortable - but she also explores its intimacies and joys.

When their only child was diagnosed with cystic fibrosis (CF) at the age of two, Maryanne O'Hara and her husband were told that Caitlin could live a long life or be dead in a matter of months. Thirty-one years later, Caitlin lost her battle with this devastating disease following an excruciating two-year wait on the transplant list and a last-minute race to locate a pair of healthy lungs. The sudden spiral of events left Maryanne in an existential crisis, searching to find an answer to the eternal question: Why we are here?

Adam Stern was a student at a state medical school before being selected to train as a psychiatry resident at one of the most prestigious programs in the country. His new and initially intimidating classmates were high achievers from the Ivy League and other elite universities. Faculty raved about the group as though the residency program had won the lottery, nicknaming them “The Golden Class”, but would Stern ever prove that he belonged? In his memoir, Stern pulls back the curtain on the intense and emotionally challenging lessons he and his fellow doctors learned.

The noted research psychiatrist explores how life's disappointments and difficulties provide us with the lessons we need to become better, bigger, and more resilient human beings. Adversity is an irreducible fact of life. Although we can and should learn from all experiences, both positive and negative best-selling author Dr. Norman E. Rosenthal believes that adversity is by far the best teacher most of us will ever encounter.

True Grit and Grace tells the story of a woman's life forever altered by a horrific motorcycle accident that shattered her right leg. Despite the initial recommendation to amputate, she endured 34 surgeries to save it. However, as a sexual-abuse and divorce survivor, she determined to save not only her leg, but her career, her dreams, and her dignity.

A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life Elizabeth Lesser has sought understanding about what it means to be true to yourself and, at the same time, truly connected to the ones you love. But when her sister, Maggie, needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love.

Helen Russell has researched sadness from the inside out for her entire life. Her earliest memory is of the day her sister died. Her parents divorced soon after, and her mother didn’t receive the help she needed to grieve. Coping with her own emotional turmoil — including struggles with body image and infertility — she’s endured professional and personal setbacks as well as relationships that have imploded in truly spectacular ways. Even the things that brought her the greatest joy — like eventually becoming a parent — are fraught with challenges.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

With a play opening on Broadway, and every reason to smile, Sarah Ruhl has just survived a high-risk pregnancy when she discovers the left side of her face is completely paralyzed. She is assured that 90 percent of Bell’s palsy patients experience a full recovery—like Ruhl’s own mother. But Sarah is in the unlucky ten percent. And for a woman, wife, mother, and artist working in theater, the paralysis and the disconnect between the interior and exterior brings significant and specific challenges.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

The Girls is a profound exploration of trust, ambition, betrayal, and self-discovery. Award-winning journalist Abigail Pesta unveils this deeply reported narrative at a time when the nation is wrestling with the implications of the MeToo movement. How do the women who grew up with Nassar reconcile the monster in the news with the man they once trusted? In The Girls, we learn that their answers to that wrenching question are as rich, insightful, and varied as the human experience itself.

Professor of psychiatry Elyn R. Saks writes about her struggle with schizophrenia in this unflinching account of her mental illness. In The Center Cannot Hold, Saks draws readers into a nightmare world of medications, a misguided health-care system, and social stigmas. But she would not be defeated. With a strength and force of will that most can only imagine, Saks reclaimed her life and went on to achieve great success.

What does it mean to be an adult? In the 20th century, psychologists came up with five markers of adulthood: finish your education, get a job, leave home, marry, and have children. Since then, every generation has been held to those same markers. Yet so much has changed about the world and living in it since that sequence was formulated. All of those markers are choices, and they’re all valid, but any one person’s choices along those lines do not make them more or less an adult.

There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.

David Menasche lived for his work as a high school English teacher. His passion inspired his students, and between lessons on Shakespeare and sentence structure, he forged a unique bond with his kids, buoying them through personal struggles while sharing valuable life lessons.

Chronicling Andrew Solomon's stint on the barricades in Moscow in 1991, when he joined artists in resisting the coup whose failure ended the Soviet Union; his 2002 account of the rebirth of culture in Afghanistan following the fall of the Taliban; his insightful appraisal of a Myanmar steeped in contradictions as it slowly, fitfully pushes toward freedom; and many other stories of profound upheaval, this book provides a unique window onto the very idea of social change.

With uncommon humanity, candor, wit, and erudition, National Book Award winner Andrew Solomon takes the listener on a journey of incomparable range and resonance into the most pervasive of family secrets. The Noonday Demon examines depression in personal, cultural, and scientific terms. Drawing on his own struggles with the illness and interviews with fellow sufferers, doctors and scientists, policymakers and politicians, drug designers and philosophers, Solomon reveals the subtle complexities and sheer agony of the disease.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

A brilliant and utterly original thinker, Andrew Solomon's journey began from his experience of being the gay child of straight parents. He wondered how other families accommodate children who have a variety of differences: families of people who are deaf, who are dwarfs, who have Down syndrome, who have autism, who have schizophrenia, who have multiple severe disabilities, who are prodigies, who commit crimes, who are transgender.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Drawing on dozens of intimate audio interviews with families from all across the country, award-winning psychologist and writer Andrew Solomon redefines what it means to be an “ideal family” in America today. Solomon observes that America, led in large part by the women’s, civil rights, and gay rights movements, has undergone a radical social shift in the last few decades. Although the structure of family has changed, economic and legal structures lag behind and need to adapt to accommodate this explosive new reality.

On April 20, 1999, Eric Harris and Dylan Klebold walked into Columbine High School in Littleton, Colorado. Over the course of minutes, they would kill 12 students and a teacher and wound 24 others before taking their own lives. For the last 16 years, Sue Klebold, Dylan's mother, has lived with the indescribable grief and shame of that day. How could her child, the promising young man she had loved and raised, be responsible for such horror? And how, as his mother, had she not known something was wrong?

The first significant book on the history and impact of the ADA - the "eyes on the prize" moment for disability rights. The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.