Disability Visibility: First-Person Stories from the Twenty-First Century
Unabridged Selections
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Narrated by:
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Alejandra Ospina
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Alice Wong
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By:
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Alice Wong
About this listen
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
From original pieces by up-and-coming authors like Keah Brown and Haben Girma, to blog posts, manifestos, eulogies, Congressional testimonies, and beyond: This anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites listeners to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
©2020 Alice Wong (P)2020 Random House AudioListeners also enjoyed...
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Listen up...
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“An exemplary collection...This month’s #RequiredReading.” (Ms. Magazine)
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Helen Russell has researched sadness from the inside out for her entire life. Her earliest memory is of the day her sister died. Her parents divorced soon after, and her mother didn’t receive the help she needed to grieve. Coping with her own emotional turmoil — including struggles with body image and infertility — she’s endured professional and personal setbacks as well as relationships that have imploded in truly spectacular ways. Even the things that brought her the greatest joy — like eventually becoming a parent — are fraught with challenges.
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More an self biography
- By Jaime Murillo on 04-27-24
By: Helen Russell
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Viral Justice
- How We Grow the World We Want
- By: Ruha Benjamin
- Narrated by: Ruha Benjamin
- Length: 13 hrs and 24 mins
- Unabridged
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Long before the pandemic, Ruha Benjamin was doing groundbreaking research on race, technology, and justice, focusing on big, structural changes. But the twin plagues of COVID-19 and anti-Black police violence inspired her to rethink the importance of small, individual actions. Part memoir, part manifesto, Viral Justice is a sweeping and deeply personal exploration of how we can transform society through the choices we make every day.
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Fantastic book!
- By Avie Kearney on 05-21-23
By: Ruha Benjamin
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The Myth of the American Dream
- Reflections on Affluence, Autonomy, Safety and Power
- By: D.L. Mayfield
- Narrated by: Nan McNamara
- Length: 7 hrs and 5 mins
- Unabridged
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Affluence, autonomy, safety, and power. These are the central values of the American dream. But are they actually compatible with Jesus' command to love our neighbor as ourselves? In essays grouped around these four values, D. L. Mayfield asks us to pay attention to the ways they shape our own choices, and the ways those choices affect our neighbors. Where did these values come from? How have they failed those on the edges of our society? And how can we disentangle ourselves from our culture's headlong pursuit of these values and live faithful lives of service to God and our neighbors?
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Sooooo good. Powerful
- By D. Frazier on 08-19-21
By: D.L. Mayfield
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Advice for Future Corpses (and Those Who Love Them)
- A Practical Perspective on Death and Dying
- By: Sallie Tisdale
- Narrated by: Gabra Zackman
- Length: 7 hrs and 11 mins
- Unabridged
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You get ready to die the way you get ready for a trip. Start by realizing you don't know the way. Listen to a few travel guides. Study the language, look at maps, gather equipment. Let yourself imagine what it will be like. Pack your bags. This book is one of those travel guides - a guide to preparing for your own death and the deaths of people close to you. The fact of death is hard to believe. Sallie Tisdale explores our fears and all the ways death and talking about death make us uncomfortable - but she also explores its intimacies and joys.
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I thought I had more time...
- By Alyssa on 09-09-19
By: Sallie Tisdale
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Marrow
- A Love Story
- By: Elizabeth Lesser
- Narrated by: Elizabeth Lesser, Sally Field
- Length: 9 hrs and 42 mins
- Unabridged
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A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life Elizabeth Lesser has sought understanding about what it means to be true to yourself and, at the same time, truly connected to the ones you love. But when her sister, Maggie, needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love.
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“ Love came first “
- By marie on 03-26-18
By: Elizabeth Lesser
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The Gift of Adversity
- The Unexpected Benefits of Life's Difficulties, Setbacks, and Imperfections
- By: Norman E. Rosenthal M.D.
- Narrated by: Erik Synnestvedt
- Length: 10 hrs and 21 mins
- Unabridged
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The noted research psychiatrist explores how life's disappointments and difficulties provide us with the lessons we need to become better, bigger, and more resilient human beings. Adversity is an irreducible fact of life. Although we can and should learn from all experiences, both positive and negative best-selling author Dr. Norman E. Rosenthal believes that adversity is by far the best teacher most of us will ever encounter.
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Book ruined by the narrator
- By David C. on 12-07-22
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Your Turn
- How to Be an Adult
- By: Julie Lythcott-Haims
- Narrated by: Julie Lythcott-Haims
- Length: 20 hrs and 21 mins
- Unabridged
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What does it mean to be an adult? In the 20th century, psychologists came up with five markers of adulthood: finish your education, get a job, leave home, marry, and have children. Since then, every generation has been held to those same markers. Yet so much has changed about the world and living in it since that sequence was formulated. All of those markers are choices, and they’re all valid, but any one person’s choices along those lines do not make them more or less an adult.
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Not the book that was advertised
- By M. Rogers on 04-13-21
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Fat Girls in Black Bodies
- Creating Communities of Our Own
- By: Joy Arlene Renee Cox Ph.D., Ta'lor Pinkston - foreword, Jill Andrew Ph.D.
- Narrated by: Gwendolyn Carter
- Length: 4 hrs and 57 mins
- Unabridged
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Structured into three sections - "belonging," "resistance," and "acceptance" - and informed by personal history, community stories, and deep research, Fat Girls in Black Bodies breaks down the myths, stereotypes, tropes, and outright lies we've been sold about race, body size, belonging, and health. Cox's razor-sharp cultural commentary exposes the racist roots of diet culture, healthism, and the ways we erroneously conflate body size with personal responsibility.
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AMAZING
- By Amazon Customer on 03-21-21
By: Joy Arlene Renee Cox Ph.D., and others
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My Two Moms
- Lessons of Love, Strength, and What Makes a Family
- By: Zach Wahls, Bruce Littlefield
- Narrated by: Kris Koscheski
- Length: 6 hrs and 53 mins
- Unabridged
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On January 31, 2011, Zach Wahls addressed the Iowa House Judiciary Committee in a public forum regarding civil unions. The 19-year-old son of a same-sex couple, Wahls proudly proclaimed, "The sexual orientation of my parents has had zero effect on the content of my character." Hours later, his speech was posted on YouTube, where it went viral, quickly receiving more than two million views. By the end of the week, everyone knew his name and wanted to hear more from the boy with two moms.
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You will not regret listening to this.
- By V. Brown on 06-07-12
By: Zach Wahls, and others
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Fully Alive
- Discovering What Matters Most
- By: Timothy Shriver
- Narrated by: David Drummond
- Length: 10 hrs and 53 mins
- Unabridged
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At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.
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Eye opening book
- By Robert J. Herman on 06-05-15
By: Timothy Shriver
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Great mix of perspectives
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This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.
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Alice Wong is rad
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Demystifying Disability
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An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.
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Mildly useful
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Being Heumann
- An Unrepentant Memoir of a Disability Rights Activist
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- Narrated by: Ali Stroker
- Length: 6 hrs and 38 mins
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A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.
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A must read for everyone
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Care Work
- Dreaming Disability Justice
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- Narrated by: Leah Lakshmi Piepzna-Samarasinha
- Length: 8 hrs and 8 mins
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In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.
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As Good as It Gets
- By Nico on 09-14-21
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What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.
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Great mix of perspectives
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Disability Visibility (Adapted for Young Adults)
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The eye-opening essays in Disability Visibility, all written by disabled people, offer keen insight into the complex and rich disability experience, examining life's ableism and inequality, its challenges and losses, and celebrating its wisdom, passion, and joy. The accounts in this collection, adapted for audio, ask listeners to think about disabled people not as individuals who need to be “fixed", but as members of a community with its own history, culture, and movements. They offer diverse perspectives that speak to past, present, and future generations.
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This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.
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Alice Wong is rad
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Demystifying Disability
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An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.
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Mildly useful
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Being Heumann
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A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.
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A must read for everyone
- By Christopher A Cawthon on 09-28-20
By: Judith Heumann, and others
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Care Work
- Dreaming Disability Justice
- By: Leah Lakshmi Piepzna-Samarasinha
- Narrated by: Leah Lakshmi Piepzna-Samarasinha
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In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.
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As Good as It Gets
- By Nico on 09-14-21
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An African American and Latinx History of the United States
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Spanning more than 200 years, An African American and Latinx History of the United States is a revolutionary, politically charged narrative history arguing that the "Global South" was crucial to the development of America as we know it. Ortiz challenges the notion of westward progress, and shows how placing African American, Latinx, and Indigenous voices unapologetically front and center transforms American history into the story of the working class organizing against imperialism.
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I had to return
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Disability Pride
- Dispatches from a Post-ADA World
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In Disability Pride, disabled journalist Ben Mattlin weaves together interviews and reportage to introduce a cavalcade of individuals, ideas, and events in engaging, fast-paced prose. He traces the generation that came of age after the ADA reshaped America, and how it is influencing the future. He documents how autistic self-advocacy and the neurodiversity movement upended views of those whose brains work differently. He lifts the veil on a thriving disability culture showing how the politics of beauty for those with marginalized body types and facial features is sparking widespread change.
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Do Read
- By Rev. Jay McNeal on 02-04-23
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The Future Is Disabled
- Prophecies, Love Notes and Mourning Songs
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In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?
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Disability justice handbook
- By Alyssum M. Pohl on 03-17-24
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Sitting Pretty
- The View from My Ordinary, Resilient, Disabled Body
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- Narrated by: Rebekah Taussig
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Overall
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Performance
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Story
Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.
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AMPLIFY this type of constructive, imaginative, and uplifting voice!!
- By Nish on 09-01-20
By: Rebekah Taussig
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Mismatch
- How Inclusion Shapes Design (Simplicity: Design, Technology, Business, Life)
- By: Kat Holmes, John Maeda - foreword
- Narrated by: Kat Holmes
- Length: 3 hrs and 47 mins
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Sometimes designed objects reject their users: a computer mouse that doesn't work for left-handed people, for example, or a touchscreen payment system that only works for people who read English phrases, have 20/20 vision, and use a credit card. These mismatches are the building blocks of exclusion. In Mismatch, Kat Holmes describes how design can lead to exclusion, and how design can also remedy exclusion.
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Tough to get through! Way too generalized
- By ElleBee on 04-10-20
By: Kat Holmes, and others
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Read This to Get Smarter
- About Race, Class, Gender, Disability, and More
- By: Blair Imani
- Narrated by: Blair Imani
- Length: 5 hrs and 27 mins
- Unabridged
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An approachable guide to being an informed, compassionate, and socially conscious person today - from discussions of race, gender, and sexual orientation to disability, class, and beyond - from critically acclaimed historian, educator, and author Blair Imani.
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Top Tier
- By Lashauna Lumsden on 10-24-23
By: Blair Imani
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Against Technoableism
- Rethinking Who Needs Improvement
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- Narrated by: Maria Pendolino
- Length: 4 hrs and 3 mins
- Unabridged
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Overall
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Performance
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Story
When Ashley Shew became a self-described "hard-of-hearing chemobrained amputee with Crohn's disease and tinnitus," there was no returning to "normal." Suddenly well-meaning people called her an "inspiration" while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don't want what the abled assume they want—nor are they generally asked. In vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community.
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Unfocused and controversial
- By Anonymous User on 08-27-24
By: Ashley Shew
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If at Birth You Don't Succeed
- My Adventures with Disaster and Destiny
- By: Zach Anner
- Narrated by: Zach Anner
- Length: 10 hrs and 16 mins
- Unabridged
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Performance
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Story
Zach lives by the mantra: When life gives you a wheelchair, make lemonade. Whether recounting a valiant childhood attempt to woo Cindy Crawford, encounters with zealous faith healers, or the time he crapped his pants mere feet from Dr. Phil, Zach shares his fumbles with unflinching honesty and characteristic charm. By his 30th birthday, Zach had grown into an adult with a career in entertainment, millions of fans, a loving family, and friends who would literally carry him up mountains.
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Zach A.
- By Zachary D Anner on 04-07-16
By: Zach Anner
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Haben
- The Deafblind Woman Who Conquered Harvard Law
- By: Haben Girma
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Story
The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.
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Wonderful story, told in her own voice.
- By Calucin on 08-10-19
By: Haben Girma
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About Us
- Essays from the Disability Series of the New York Times
- By: Andrew Solomon - foreword, Peter Catapano - editor, Rosemarie Garland-Thomson - editor
- Narrated by: Coleen Marlo, Jonathan Todd Ross
- Length: 9 hrs and 38 mins
- Unabridged
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Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.
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About Us
- By KS on 01-13-22
By: Andrew Solomon - foreword, and others
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I'll Pray for You
- And Other Outrageous Things Said to Disabled People
- By: Hannah Setzer
- Narrated by: Erin deWard
- Length: 5 hrs and 28 mins
- Unabridged
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In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!
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The whole book is an awesome!
- By Sherry Smith on 05-18-24
By: Hannah Setzer
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History Is All You Left Me
- By: Adam Silvera
- Narrated by: Tom Picasso
- Length: 9 hrs and 35 mins
- Unabridged
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Performance
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Story
OCD-afflicted Griffin has just lost his first love, Theo, in a drowning accident. In an attempt to hold on to every piece of the past, he forges a friendship with Theo's last boyfriend, Jackson. When Jackson begins to exhibit signs of guilt, Griffin suspects he's hiding something and will stop at nothing to get to the truth about Theo's death. But as the grieving pair grows closer, listeners will question Griffin's own version of the truth - in terms of both what he's willing to hide and what true love means.
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i want my heart back
- By Angela on 02-20-18
By: Adam Silvera
What listeners say about Disability Visibility: First-Person Stories from the Twenty-First Century
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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Overall
- Sara James
- 02-21-23
Great
I immensly enjoyed listening to this book, it was enlightening, entertaining, moving, and helped to expand my brain . I would recommend to all.
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- Mel
- 08-05-20
Must read!
The authors, Both contributors and editor, wrote beautiful, transportive, transformative stories. The narrator has a shining voice. I feel represented. May as many people as possible read this book. May disabled readers feel seen and empowered, and may non-disabled readers, whether allied yet or not, step into and appreciate our world. May all readers find something to learn along the way. Many thanks to all who made this work of art possible.
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7 people found this helpful
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Performance
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Story
- Sarah F
- 09-23-23
Required reading!!
Everyone needs to read this book, as a starting place for cultivating empathy & language around Disability Justice, or to feel the depths of solidarity this provided for me. Thank you for this project!
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Performance
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Story
- Quyen Luu
- 11-10-23
Amazing
I will recommend this book to everyone. It's such a good book that helps me to understand more about the disabled community. Each story is a unique experience, and this covers varied. I am sure that there will be one story that leaves you though
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- Katie Thew
- 05-25-21
Incredible!
Exactly what we need! highly recommend to all disabled folx, stepping into our identities in new ways<3
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5 people found this helpful
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- kathycronin
- 12-01-22
This should be required reading for every high schooler student
These stories gave me insights into the lives of many people. We all know how hard it must be to live with a disability, but I didn’t realize all the ways I make it more difficult, mainly because of my indifference:( There is so much that can be done to make their lives a bit easier! I think if every teenager read this, they would contribute in making our world better for disabled people and all of us!
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- Janet C
- 02-10-23
Great stories
It would have been easier and more enjoyable to listen if there were more voices. Narrating was a little monotone for me. Maybe a make and female reading each part
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- Anonymous User
- 07-18-20
Must read for EVERYONE!
A comprehensive education of modern day Disability Rights told through first person stories and experiences of Disabled individuals. Beautifully written and edited. Job well done to Alice Wong and all of the individuals who shared their accounts.
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4 people found this helpful
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Story
- James Eccles
- 11-28-20
Worth Reading
The stories are informative, inspire additional reading and calls policies and social norms into question.
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2 people found this helpful
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Story
- Matthew Campese
- 05-25-24
powerful, vulnerable and honest
thank you for sharing these powerful, vulnerable, and honest stories of diverse lived experiences of disability.
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