Harnessing Grief
A Mother's Quest for Meaning and Miracles
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Narrated by:
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Rosemary Benson
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By:
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Maria J. Kefalas
About this listen
The inspiring story of a mother who took unimaginable tragedy and used her grief as a force to do good by transforming the lives of others.
When Maria Kefalas' daughter Calliope was diagnosed with a degenerative, incurable genetic disease, the last thing Maria expected to discover in herself was a superpower. She and her husband, Pat, were head over heels in love with their youngest daughter, whose spirit, dancing eyes, and appetite for life captured the best of each of them. When they learned that Cal had MLD (metachromatic leukodystrophy), their world was shattered. But as she spent time listening to and learning from Cal, Maria developed the superpower of grief. It made her a fearless warrior for her daughter. And it gave her voice a bell-like clarity - poignant and funny all at once.
This superpower of grief also revealed a miracle - not the conventional sort that fuels the prayers of friends and strangers but a realization that, in order to save themselves, Maria and Pat would need to find a way to save others. And so, with their two older children, they set out to raise money so that they, in their son PJ's words, could "find a cure for Cal's disease". They had no way of knowing that a research team in Italy was closing in on an effective gene therapy for MLD.
Though the therapy came too late to help Cal, this news would be the start of an unexpected journey that would introduce Maria and her family to world-famous scientists, brilliant doctors, biotech CEOs, a Hall of Fame NFL quarterback, and a wise nun, and it would also involve selling 50,000 cupcakes. They would travel to the FDA, the NIH, and the halls of Congress in search of a cure that would never save their child. And their lives would become inextricably intertwined with the families of 13 children whose lives would be transformed by the biggest medical breakthrough in a generation.
A memoir about heartbreak that is also about joy, Harnessing Grief is both unsparing and generous. Steeped in love, it is a story about possibility.
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Critic reviews
“A stunning, candid memoir. Those seeking a relatable story as they process grief and fans of personal memoir will appreciate this book equally for its honest, insightful storytelling.” (Library Journal, starred review)
"'When the worst possible thing happens, you have nothing left to fear.’ Maria Kefalas illustrates, with fierce love and unexpected humor, the power of grief to transform and motivate a warrior mother to change the world. The Calliope Joy Foundation, named for the author’s daughter, is doing just that - and providing an invaluable resource within the pages of this book for others who seek to do the same.” (Marianne Leone, author of Jesse and Ma Speaks Up)
“Harnessing Grief is an inspiring, searingly honest account of a brave woman going through unspeakable loss - and gaining deep wisdom. Anyone who has suffered tragedy will identify with, and learn from, Maria Kefalas’s terrible, beautiful journey.” (Martha Beck, PhD, author of Expecting Adam)
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Overall
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In telling the intimate story of caring for her aged and ailing mother, Jane Gross offers indispensable, and often surprising, advice for the rapidly increasing number of adult children responsible for aging parents. Gross deftly weaves the specifics of her personal experience with a comprehensive resource for effectively managing the lives of one's own parents while keeping sanity and strength intact.
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Exceptional, thought-provoking, liberating!
- By Anne on 08-10-11
By: Jane Gross
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Your Heart, My Hands
- An Immigrant's Remarkable Journey to Become One of America's Preeminent Cardiac Surgeons
- By: Arun K. Singh MD, John Hanc - contributor, Delos Cosgrove MD - foreword
- Narrated by: Shridhar Solanki
- Length: 8 hrs and 39 mins
- Unabridged
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Leaving a life marked by crippling setbacks and his father's doubt, in 1967 a 20-something doctor from India arrived in America with only five dollars and the desire to claim his American dream. Faced with an entirely new culture, racism, and the lasting effects of disabling childhood injuries, through hard work and perseverance he overcame all odds. Now having performed over 15,000 open-heart surgeries, more than nearly every surgeon in history, Dr. Singh reflects on his most memorable patients and his incredible personal life.
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Remarkable!
- By Stacey on 12-01-22
By: Arun K. Singh MD, and others
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The Four Things That Matter Most 10th Anniversary Edition
- A Book About Living
- By: Ira Byock MD
- Narrated by: Barry Abrams
- Length: 6 hrs and 59 mins
- Unabridged
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Four simple phrases - "Please forgive me", "I forgive you", "Thank you", and "I love you" - carry enormous power to mend and nurture our relationships and inner lives. These four phrases and the sentiments they convey provide a path to emotional well-being, guiding us through interpersonal difficulties to life with integrity and grace. Dr. Ira Byock, an international leader in palliative care, explains how we can practice these life-affirming words in our day-to-day lives.
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A must read
- By Light Seeker on 03-14-21
By: Ira Byock MD
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The Family Gene
- A Mission to Turn My Deadly Inheritance into a Hopeful Future
- By: Joselin Linder
- Narrated by: Khristine Hvam
- Length: 7 hrs and 17 mins
- Unabridged
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When Joselin Linder was in her 20s, her legs started to swell. She thought little of it until her health problems started to compound in ways that baffled her doctors. Diagnosed with extreme liver blockage and dangerous levels of lymph fluid, Joselin turned to the most similar case she could think of - her father's.
By: Joselin Linder
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American Spirit
- Profiles in Resilience, Courage, and Faith
- By: Taya Kyle, Jim DeFelice
- Narrated by: Taya Kyle
- Length: 9 hrs and 32 mins
- Unabridged
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From Taya Kyle, New York Times best-selling author of American Wife and widow of “American Sniper” Chris Kyle, an inspiring collection of stories, both personal and drawn from American history, that showcase the resilience of the “American spirit”.
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Just love Taya Kyle!
- By Rebecka R. Murray on 05-14-19
By: Taya Kyle, and others
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Laughing Through the Ugly Cry
- ...and Finding Unstoppable Joy
- By: Dawn Barton
- Narrated by: Dawn Barton
- Length: 3 hrs and 21 mins
- Unabridged
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In this collection of honest and sometimes raw stories, Dawn throws a loving, untoned arm around listeners as she brings them along on her journey through the loss of a child, divorce, cancer, rape, the death of her only sibling, her husband's substance abuse, and finding her way back to Jesus in the middle of it all. Dawn shares her personal story to show listeners how to find happiness and purpose even in the darkest of days. A beautiful gift book, Laughing Through the Ugly Cry is a great reminder to your girlfriends that you are with them every step of the way.
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A beautiful story of Hope!
- By Cynthia K. Hutman on 07-01-24
By: Dawn Barton
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The 20-Month Legend
- My Baby Boy's Fight with Cancer
- By: Steve Tate
- Narrated by: Steve Tate
- Length: 5 hrs and 51 mins
- Unabridged
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As if juggling a life with half-a-dozen kids, including triplets, isn’t enough, Steve Tate receives the life-altering news that one of his triplets, Hayes, has been diagnosed with brain cancer. The once-star collegiate football player finds himself fighting for his son’s life. This memoir takes you through the various challenges he faced raising a family of six kids and balancing a career, all while his son battled the odds. Both Steve and his high-school sweetheart, Savanna, found hope and happiness through the example of their 20-month-old son Hayes.
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Very touching story
- By Nicole on 03-16-23
By: Steve Tate
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Doctored
- The Disillusionment of an American Physician
- By: Sandeep Jauhar
- Narrated by: Patrick Lawlor
- Length: 10 hrs and 38 mins
- Unabridged
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Hoping for the stability he needs to start a family, Sandeep Jauhar, an attending cardiologist, accepts a position at a massive teaching hospital on the outskirts of Queens. With a decade's worth of elite medical training behind him, he is eager to settle down and reap the rewards of countless sleepless nights. Instead, he is confronted with sobering truths. Doctors' morale is low and getting lower.
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Frank, inside perspective on the follies of unintended consequences in medical reform
- By JW on 02-25-18
By: Sandeep Jauhar
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Messenger
- The Legacy of Mattie J. T. Stepanek and Heartsongs
- By: Jeni Stepanek
- Narrated by: Jeni Stepanek
- Length: 11 hrs and 48 mins
- Unabridged
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Oprah Winfrey has called him an inspiration, Maya Angelou saw him as a kindred spirit and fellow poet, and Jimmy Carter described Mattie Stepanek as the "most remarkable person I have ever known". When Jerry Lewis received his lifetime achievement award at the Oscars, footage of Mattie played behind him. Five years after his death from a rare neuromuscular disease, Mattie is still being celebrated for his indomitable spirit and message of hope.
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Loved Jeni telling Mattie’s story
- By Hello Mrs. on 12-29-22
By: Jeni Stepanek
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Modern Loss
- Candid Conversation About Grief. Beginners Welcome.
- By: Rebecca Soffer, Gabrielle Birkner
- Narrated by: Meredith Mitchell, Josh Bloomberg
- Length: 7 hrs and 40 mins
- Unabridged
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At a time when we mourn public figures and national tragedies with hashtags, where intimate posts about loss go viral and we receive automated birthday reminders for dead friends, it's clear we are navigating new terrain without a road map. Let's face it: Most of us have always had a difficult time talking about death and sharing our grief. We're awkward and uncertain; we avoid, ignore, or even deny feelings of sadness; we offer platitudes; we send sympathy bouquets whittled out of fruit.
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Not What I Was Expecting
- By Bessie Mae on 03-01-23
By: Rebecca Soffer, and others
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Marrow
- A Love Story
- By: Elizabeth Lesser
- Narrated by: Elizabeth Lesser, Sally Field
- Length: 9 hrs and 42 mins
- Unabridged
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A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life Elizabeth Lesser has sought understanding about what it means to be true to yourself and, at the same time, truly connected to the ones you love. But when her sister, Maggie, needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love.
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“ Love came first “
- By marie on 03-26-18
By: Elizabeth Lesser
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Advice for Future Corpses (and Those Who Love Them)
- A Practical Perspective on Death and Dying
- By: Sallie Tisdale
- Narrated by: Gabra Zackman
- Length: 7 hrs and 11 mins
- Unabridged
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You get ready to die the way you get ready for a trip. Start by realizing you don't know the way. Listen to a few travel guides. Study the language, look at maps, gather equipment. Let yourself imagine what it will be like. Pack your bags. This book is one of those travel guides - a guide to preparing for your own death and the deaths of people close to you. The fact of death is hard to believe. Sallie Tisdale explores our fears and all the ways death and talking about death make us uncomfortable - but she also explores its intimacies and joys.
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I thought I had more time...
- By Alyssa on 09-09-19
By: Sallie Tisdale
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Mother Warriors
- A Nation of Parents Healing Autism against All Odds
- By: Jenny McCarthy
- Narrated by: Tavia Gilbert
- Length: 5 hrs and 15 mins
- Unabridged
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No two autistic children heal in exactly the same way. And in her new book, Jenny expands her message to share recovery stories from parents across the country, showing how each parent fought to find her own child's perfect "remedy of interventions." Along the way, Jenny shares her own journey as an autism advocate and mother, as well as the continuing progress of her son, Evan. Emotional and genuinely practical, Mother Warriors will inspire a generation of parents with hope.
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McCarthy Is Pro Vaccine Safety
- By DEF on 04-16-16
By: Jenny McCarthy
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Say Yes to What’s Next
- How to Age with Elegance and Class While Never Losing Your Beauty and Sass!
- By: Lori Allen
- Narrated by: Lori Allen
- Length: 6 hrs and 8 mins
- Unabridged
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Women today are facing so much uncertainty - about life and the future. The need to pivot is stronger than ever, but many of us feel powerless to change or simply don’t know how to take that essential first step. For Lori Allen, business owner, breast cancer survivor, and star of TLC’s Say Yes to the Dress: Atlanta, these vital life lessons are the inspiration for her new book. Say Yes to What’s Next is more than just a guide for our best tomorrows, it’s the beginning of a life-makeover movement for women of all ages.
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Every woman approaching her 50s and beyond should have this book in her arsenal!
- By Julie C. on 08-04-20
By: Lori Allen