Surviving Myotonic Dystrophy
A Mother’s Struggle to Care for Her Family with a Rare Disease
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Narrated by:
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Geri Murray
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By:
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Ann S. Woodbury
About this listen
Surviving Myotonic Dystrophy is about Ann S. Woodbury’s struggle to care for her family who have a rare disease - myotonic dystrophy (DM).
Ann’s four children and her husband have DM. In 1998, at the time of the diagnosis, even the doctors didn’t know all of the effects of DM or that it was a brain disorder.
Listening to this book will take you on a journey of understanding this disease and its effects on Ann’s family members.
Ann also includes tips and lessons learned to help parents/caregivers maintain their own health and peace of mind while caring for loved ones.
You will learn:
- DM is a multi-systemic inherited disease that affects just over one in 2,100 people in the US.
- DM is one of the most variable and complicated of the known disorders.
- How isolating it can be to have a family that doesn’t fit in and how you can better cope with this reality.
- What it means to “take care of yourself”.
- Why you should be mindful about interacting with people whose behavior seems different from yours.
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Story
There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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Sadly, not very engaging.
- By Debra S. Long on 06-16-18
By: Sheila Himmel, and others
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Like a Mother
- A Feminist Journey Through the Science and Culture of Pregnancy
- By: Angela Garbes
- Narrated by: Roxana Ortega, Angela Garbes
- Length: 7 hrs
- Unabridged
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What to listen to after What to Expect.... A badass, feminist, and personal deep-dive into the science and culture of pregnancy and early motherhood that debunks myths and dated assumptions, offering guidance and camaraderie to women navigating one of the biggest and most profound changes in their lives. Like most first-time mothers, Angela Garbes was filled with questions when she became pregnant. What exactly is a placenta? How does a body go into labor? Why is breast best? What are the signs and effects of postpartum depression?
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Microchimerism - interesting at first, then profoundly healing
- By Emily Virgil on 09-10-18
By: Angela Garbes
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The New Normal
- A Roadmap to Resilience in the Pandemic Era
- By: Jennifer Ashton
- Narrated by: Jennifer Ashton
- Length: 8 hrs and 42 mins
- Unabridged
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From Dr. Jennifer Ashton comes a doctor’s guide to finding resilience in the time of COVID, while staying safe and sane in a rapidly changing world. The New Normal is a holistic road map through the ongoing struggles of the pandemic, providing the guidance you need to navigate this unsettling time and take charge of your future well-being.
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Live Each Day Alive
- By Barbara A. Badalewski on 06-02-23
By: Jennifer Ashton
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Early
- An Intimate History of Premature Birth and What It Teaches Us About Being Human
- By: Sarah DiGregorio
- Narrated by: Ann Marie Gideon
- Length: 9 hrs and 47 mins
- Unabridged
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The heart of many hospitals is the Neonatal Intensive Care Unit (NICU). It is a place where humanity, ethics, and science collide in dramatic and deeply personal ways as parents, doctors, and nurses grapple with sometimes unanswerable questions: When does life begin? When and how should life end? And what does it mean to be human? Nearly 20 years ago, Dr. John D. Lantos wrote The Lazarus Case, a seminal work on ethical dilemmas in neonatology. He described the NICU as “a strong, strange, powerful place”. The
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Gripping read for this late preterm infant mom
- By R. Ash on 08-08-21
By: Sarah DiGregorio
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Dude, You're Gonna Be a Dad!
- How to Get (Both of You) Through the Next 9 Months
- By: John Pfeiffer
- Narrated by: Mike Chamberlain
- Length: 4 hrs and 34 mins
- Unabridged
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There are approximately 3,712 ways for a guy to look stupid during pregnancy-this book's here to help you avoid all (most) of them. And here's your first hint: Focus on what you can be doing for her rather than what's happening to her. She's pregnant. She knows that. You know that. And her one 152 baby books tell her exactly what she can expect. Your job is to learn what you can do between the stick turning blue and the drive to the delivery room to make the next nine months go as smoothly as possible.
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A fun spirited, yet lacking book for the everyman
- By Frank on 12-10-13
By: John Pfeiffer
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Confessions of a GP
- By: Benjamin Daniels
- Narrated by: Eamonn Riley
- Length: 6 hrs and 1 min
- Unabridged
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Benjamin Daniels is angry. He is frustrated, confused, baffled and, quite frequently, very funny. He is also a GP. These are his confessions.A woman troubled by pornographic dreams about Tom Jones. An 80-year-old man who can't remember why he's come to see the doctor.
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Very enjoyable
- By PCF on 05-27-17
By: Benjamin Daniels
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It Never Goes Away
- Gender Transition at a Mature Age
- By: Dr. Anne L. Koch
- Narrated by: Dr. Anne L. Koch
- Length: 7 hrs and 51 mins
- Unabridged
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If you are transgendered, the feeling of wanting your body to match the sex you feel you are never goes away. For some, though, especially those who grew up before trans people were widely out and advocating for equality, these feelings were often compartmentalized and rarely acted upon. Now that gender reassignment has become much more commonplace, many of these people may feel increasing pressure to finally undergo the procedures they have always secretly wanted.
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Typical upper class trans-snobbery
- By jon rios on 05-03-20
By: Dr. Anne L. Koch
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The Confident Parent
- A Pediatrician's Guide to Caring for Your Little One - Without Losing Your Joy, Your Mind, or Yourself
- By: Dr. Jane Scott, Stephanie Land
- Narrated by: Susan Boyce
- Length: 8 hrs and 17 mins
- Unabridged
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We've all heard the complaint from parents: They're more overwhelmed than ever before - juggling demands on their time as well as conflicting advice from family, friends, frenemies, and "experts" on how to achieve parental perfection, or risk jeopardizing their little one's future happiness. Pediatrician Jane Scott has seen this parental anxiety up close, and in The Confident Parent she shares advice on how to cut through the confusion.
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Read by a computer
- By Megan Ormston on 11-14-18
By: Dr. Jane Scott, and others
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Women Who Think Too Much
- How to Break Free of Overthinking and Reclaim Your Life
- By: Susan Nolen-Hoeksema
- Narrated by: Sheryl Bernstein
- Length: 2 hrs and 58 mins
- Abridged
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It's not a surprise that our fast-paced, overly analytical culture is pushing people - especially women - to spend countless hours thinking about negative ideas, feelings, and experiences. Renowned psychologist Dr. Susan Nolen-Hoeksema calls this "overthinking". Her groundbreaking research shows that an increasing number of women - more than half of those in her extensive study - are doing it too much and too often, hindering their ability to lead a satisfying life.
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Generic tools for overcoming overthinking
- By letlet on 01-09-19
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Stopping Stress Before It Stops You
- A Game Plan for Every Mom
- By: Kevin Leman
- Narrated by: Lucille Cole
- Length: 5 hrs and 47 mins
- Unabridged
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You can reduce stress and enjoy your life! Homemaker, career woman, wife, supermom—sometimes the roles you have to fill all at once can get to be too much. Internationally known psychologist Dr. Kevin Leman has seen scores of women who are overcome by stress. With humor, insight, and practical solutions, this best-selling author helps you manage the six stress points in your life: kids, career, husband, housework, money, and crammed schedules.
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He assumes you're married to an idiot!
- By Karen on 06-04-11
By: Kevin Leman
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Your Heart, My Hands
- An Immigrant's Remarkable Journey to Become One of America's Preeminent Cardiac Surgeons
- By: Arun K. Singh MD, John Hanc - contributor, Delos Cosgrove MD - foreword
- Narrated by: Shridhar Solanki
- Length: 8 hrs and 39 mins
- Unabridged
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Leaving a life marked by crippling setbacks and his father's doubt, in 1967 a 20-something doctor from India arrived in America with only five dollars and the desire to claim his American dream. Faced with an entirely new culture, racism, and the lasting effects of disabling childhood injuries, through hard work and perseverance he overcame all odds. Now having performed over 15,000 open-heart surgeries, more than nearly every surgeon in history, Dr. Singh reflects on his most memorable patients and his incredible personal life.
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Remarkable!
- By Stacey on 12-01-22
By: Arun K. Singh MD, and others
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How to Be Sad
- Everything I’ve Learned About Getting Happier by Being Sad
- By: Helen Russell
- Narrated by: Helen Russell
- Length: 10 hrs and 28 mins
- Unabridged
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Helen Russell has researched sadness from the inside out for her entire life. Her earliest memory is of the day her sister died. Her parents divorced soon after, and her mother didn’t receive the help she needed to grieve. Coping with her own emotional turmoil — including struggles with body image and infertility — she’s endured professional and personal setbacks as well as relationships that have imploded in truly spectacular ways. Even the things that brought her the greatest joy — like eventually becoming a parent — are fraught with challenges.
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More an self biography
- By Jaime Murillo on 04-27-24
By: Helen Russell
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Your Turn
- How to Be an Adult
- By: Julie Lythcott-Haims
- Narrated by: Julie Lythcott-Haims
- Length: 20 hrs and 21 mins
- Unabridged
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What does it mean to be an adult? In the 20th century, psychologists came up with five markers of adulthood: finish your education, get a job, leave home, marry, and have children. Since then, every generation has been held to those same markers. Yet so much has changed about the world and living in it since that sequence was formulated. All of those markers are choices, and they’re all valid, but any one person’s choices along those lines do not make them more or less an adult.
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Not the book that was advertised
- By M. Rogers on 04-13-21
What listeners say about Surviving Myotonic Dystrophy
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- LJ
- 12-31-21
Thank You for Sharing
I have great compassion for your family demands and service. Thanks for sharing part of your story. I like your ideas about taking care of the low level of the hierarchy needs. We care takers often neglect our own basic needs. It's a challenging balance.
Thanks for your courage and persistence in so many areas. You are a great example to others of us who have many demands also. Sharing your medical knowledge will help many people.
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