• Let's Talk MND - Barry Werth
    Nov 25 2024

    Barry Werth is a pharmacist. His wife dies of MND.

    Barry has so much experience and is bringing his wealth of knowledge to many MND research projects.

    He has also written a fabulous article on MND for Pharmacists so they can better care for their clients.

    https://www.australianpharmacist.com.au/role-of-the-pharmacist-in-motor-neurone-disease/#:~:text=MND%20is%20a%20fatal%20disorder%20of%20motor,and%20improve%20a%20patient's%20quality%20of%20life.

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    33 mins
  • Let's Talk MND - Prof Paul Talman
    Oct 25 2024

    Prof. Paul Tallman is a Neurologist who specialises in MND.

    Paul also is one of the leaders of the MiNDAUS Registry, he explains it to us, how it can help and how we can help.

    https://www.mindaus.org

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    32 mins
  • Let's Talk MND - One year of the Podcast
    Oct 25 2024

    Let's celebrate the first year of our Podcast

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    4 mins
  • Let's Talk MND - Troy Sachs
    Oct 15 2024

    Troy Sachs is one of the world’s most recognised and awarded Paralympians. He led the Australian Wheelchair Basketball team, the Rollers, to win two gold and one silver medal in five Paralympic Games from 1992 to 2008.

    In 1997 he was awarded an Order of Australia Medal and Australian Sports Medal in 2000. He is also inducted into the Sport Australia and Basketball Australia Halls of Fame.

    Since retiring from sport, Troy has focused on giving back to his sporting community, nurturing talent, mentoring emerging athletes and being an advocate for inclusion. He lives and breathes his mantra that a person should be able to do all they set their minds to without limitations.

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    40 mins
  • Let's Talk MND - Matt Stickland
    Oct 15 2024

    Matt Stickland has been LIVING with MND for 9.5 years.

    He is a husband and dad, he has had to stop working, but is lucky to live on a rural property.

    Matt has a beautiful attitude to life, is an amazing support to others with MND and is a demon at fundraising too.

    I loved chatting to Matt.

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    32 mins
  • Let's Talk MND - Finn Cadman
    Oct 9 2024

    Finn Cadman is 10 years old.

    He is an MND champion, he is MND Vic's youngest ambassador.

    Finn is unhappy about the discrepancy between NDIS and Aged Care.

    Finn is "schmoozing" Politicians to make a change for his Glampa and others.

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    36 mins
  • LEt's Talk MND - Julie Labra - MNDA
    Sep 17 2024

    Julie Labra is a Project Manager with MNDA.

    Julie has worked with people with MND for the past 19 years.

    Julie was the project manager on the new Lived Experience Network (LEN) which brings together people with Lived Experience and people who wish to research different aspect of MND.

    Working on projects with people who have Lived Experience is teaching her more about what it's like to live with MND and thier priorities.

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    33 mins
  • Let's Talk MND - Firies Climb for MND, Matt Pridham, Prof. Dominic Rowe, Jane Simpson, Gavin Clifton
    Sep 10 2024

    I was delighted to be included in the Firies for MND climb in the blue mountains and invited to be on the Dirt Church Radio podcast with Matt Pridham, Prof Dom Rowe and Gavin Clifton.

    Dirt Church radio have kindly allowed me to share their podcast with you all.

    Prof. Dominic Rowe shares very interesting information about the possible link between the environment with MND.

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    1 hr and 23 mins