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Retinitis Pigmentosa 101: How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa
- Narrated by: Sarah Margrave
- Length: 2 hrs and 14 mins
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Publisher's summary
Retinitis Pigmentosa 101: How to live, grow, and become your best self with retinitis pigmentosa from A to Z.
Are you someone who has been diagnosed with retinitis pigmentosa or a parent who has recently learned that your child is losing their vision? Then this book might just be for you. In this book, you will learn:
- How to deal with your child’s vision loss. Parenting is already difficult, but this book will help you learn fundamental lessons to pass on to your child as well as practical advice on how to help your child learn the skills they need to live independently.
- How to deal with school and bullies and make it through college. Bullies plague many children, but living with a disability can make that bullying so much worse. Learning skills that can help you avoid the bullies and make it through your first taste of independence safely and with confidence can make all the difference.
- How to live independently, from getting a job to dating to practical skills you can use in your everyday life. This book can help you.
- How to get a guide dog. One of the most life-changing things a visually impaired person can do is get a guide dog. This book will walk you through how to get a guide dog and how that dog will change your life.
If you’re tired of struggling with your vision loss, Retinitis Pigmentosa 101 will help you find the joy in life again along with showing you practical skills you need to function in your everyday life.
About the Expert
Katie McCoy may have been born with retinitis pigmentosa, but vision loss hasn’t slowed her down. With a bachelor’s in history from the College of Charleston and a master’s in museum education from George Washington University in Washington, DC, Katie formerly worked as a museum education assistant and as a special education teacher and now serves as an associate director of philanthropy for Southeastern Guide Dogs. She has a drive to help others with disabilities and to share the hope that many people need. Katie has participated in competitive gymnastics, vaults on a horse, and is a long-distance runner. She has been able to adapt and excel despite her vision loss and would like to help others do the same.
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Story
Growing up in a Philadelphia suburb in the 1970s was an easy life. Well, easy as long as you didn't have dyslexia or ADD, or were a Jew. And once you added gay into the mix, life became more difficult. So Todd Glass decided to hide the gay part, no matter how comic, tragic, or comically tragic the results. Now, Todd has written an open, honest, and hilarious memoir in an effort to help everyone - young and old, gay and straight - breathe a little more freely.
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Worth It
- By Heather on 11-17-14
By: Todd Glass, and others
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The Big Life
- Embrace the Mess, Work Your Side Hustle, Find a Monumental Relationship, and Become the Badass Babe You Were Meant to Be
- By: Ann Shoket
- Narrated by: Cassandra Campbell, Ann Shoket
- Length: 5 hrs and 12 mins
- Unabridged
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The Big Life is packed with actionable guidance combined with personal advice from high-profile millennial women who have already achieved tremendous success, plus intimate conversations with a cast of compelling characters and Shoket's own stories on her quest for The Big Life. You'll learn to tackle all of the issues on heavy rotation in your mind.
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Just OK
- By Alexandra Medina on 05-15-17
By: Ann Shoket
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Throw Out Fifty Things
- Clear the Clutter, Find Your Life
- By: Gail Blanke
- Narrated by: Gail Blanke
- Length: 3 hrs and 35 mins
- Abridged
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Throw Out Fifty Things is truly an eye-opener. According to Blanke, our lives are so filled with junk from the past—from dried up tubes of crazy glue to old grudges—that's it's a wonder we can get up in the morning, never mind go to work, care for our children and parents, and just put one foot in front of the other. Blanke wants to start a movement of people across America throwing out 50 things (magazines count as one!) that will help liberate us from the stuff—both physical and mental—that clutters our lives.
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So useful, listened to it a 2nd time right away.
- By Zeus on 02-02-10
By: Gail Blanke
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Not My Boy!
- A Father, a Son, and One Family's Journey with Autism
- By: Rodney Peete, Danelle Morton
- Narrated by: Richard Allen
- Length: 6 hrs and 48 mins
- Unabridged
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"Like most fathers, I'd dreamt of doing all sorts of things with my son. I had so many plans, but when I was told my son was autistic, those plans seemed more like a fantasy. Well, eight years after that dreadful diagnosis, I am writing this book to let every father know that your plans for you and your son can still be a reality. It's just the path that takes you there that has to be altered."
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Loved This Book. Thank-you to the Peetes for sharing your Autism journey as parents.
- By Amazon Customer on 03-25-18
By: Rodney Peete, and others
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The Priority List
- A Teacher's Final Quest to Discover Life's Greatest Lessons
- By: David Menasche
- Narrated by: David Menasche
- Length: 4 hrs and 20 mins
- Unabridged
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David Menasche lived for his work as a high school English teacher. His passion inspired his students, and between lessons on Shakespeare and sentence structure, he forged a unique bond with his kids, buoying them through personal struggles while sharing valuable life lessons.
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Truly Inspiring!!
- By Trish on 07-13-14
By: David Menasche
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How to Host a Viking Funeral
- The Case for Burning Your Regrets, Chasing Your Crazy Ideas, and Becoming the Person You're Meant to Be
- By: Kyle Scheele
- Narrated by: Kyle Scheele
- Length: 5 hrs and 37 mins
- Unabridged
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Turning 30, artist and speaker Kyle Scheele wanted to do something unusual to mark this milestone. Instead of a birthday bash, he decided to hold a funeral to memorialize the decade of his life that was ending. Building a 16-foot Viking ship out of cardboard, he invited friends to help him set it on fire—a symbolic farewell to his 20s and all the grief, regret, and mistakes that accompanied those years.
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underwhelming
- By Amazon Customer on 12-11-22
By: Kyle Scheele
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Things No One Else Can Teach Us
- Turning Losses into Lessons
- By: Humble the Poet
- Narrated by: Humble the Poet
- Length: 6 hrs and 27 mins
- Unabridged
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Every one of us endures setbacks, disappointments, and failures that can incapacitate us. But we don’t have to let them. Instead, we can use these events as opportunities for growth. In Things No One Else Can Teach Us, Humble the Poet flips the conventional script for happiness and success, showing us how our most painful experiences can be our greatest teachers.
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HTP’S STORY AND LESSONS LEARNED
- By jaga on 11-04-19
By: Humble the Poet
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First Things First
- The Rules of Being a Warner
- By: Kurt Warner, Brenda Warner, Jennifer Schuchmann - contributor
- Narrated by: Todd Busteed, Rebecca Gallagher, Abigail Seward
- Length: 6 hrs and 48 mins
- Unabridged
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First Things First is an honest, insightful, and entertaining look at life inside the Warner household. Kurt and Brenda speak candidly about their marriage, the values they are working to instill in their kids, things they've done right, mistakes they've made, the importance of giving back, and the legacy they hope to leave behind.
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A must read!!
- By Amazon Customer on 04-18-18
By: Kurt Warner, and others
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The Grown-Up's Guide to Teenage Humans
- How to Decode Their Behavior, Develop Unshakable Trust, and Raise a Respectable Adult
- By: Josh Shipp
- Narrated by: Roger Wayne
- Length: 7 hrs and 40 mins
- Unabridged
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Written in Shipp's playfully authoritative, no-nonsense voice, The Grown-Up's Guide to Teenage Humans tells his story and unpacks practical strategies that can make a difference. Ultimately, it's not about shortcuts or magic words - as Shipp reminds us, it's about investing in kids and giving them the love, time, and support they need to thrive. And that means every kid is one caring adult away from being a success story.
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Read it....then read it again!
- By R. Eichelberger on 11-07-17
By: Josh Shipp
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Leap
- Leaving a Job with No Plan B to Find the Career and Life You Really Want
- By: Tess Vigeland
- Narrated by: Tess Vigeland
- Length: 7 hrs and 12 mins
- Unabridged
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Until recently Tess Vigeland was a longtime host of public radio's Marketplace. It was a rewarding, high-status job, and Tess was very good at it - but she'd begun to feel restless. Without any definite, clear sense of what she wanted to do next (but an absolute certainty that what she'd been doing was no longer truly satisfying), she walked away from her dream job and into a vast unknown. Suddenly she was no longer " Marketplace's Tess Vigeland"; she was just Tess Vigeland.
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Everything Mrs Vigeland says is true, but ...
- By Claude on 10-10-15
By: Tess Vigeland
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The Me, Me, Me Epidemic
- A Step-by-Step Guide to Raising Capable, Grateful Kids in an Over-Entitled World
- By: Amy McCready
- Narrated by: Margaret Strom
- Length: 12 hrs and 50 mins
- Unabridged
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Whenever Amy McCready mentions the "entitlement epidemic" to a group of parents, she is inevitably met with eye rolls, nodding heads, and loaded comments about affected children. It seems everywhere one looks, there are preschoolers who only behave in the grocery store for a treat, narcissistic teenagers posting selfies across all forms of social media, and adult children living off their parents. Parenting expert Amy McCready reveals in this book that the solution is to help kids develop healthy attitudes in life.
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Longer than it needs to be, condescending narration, but did have some good tidbits
- By Areeeee on 09-27-19
By: Amy McCready
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It's OK to Go up the Slide
- Renegade Rules for Raising Confident and Creative Kids
- By: Heather Shumaker
- Narrated by: Laurel Lefkow
- Length: 9 hrs and 52 mins
- Unabridged
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Heather Shumaker has sparked much discussion with her "renegade rules for raising competent and compassionate kids". In this follow-up book, she takes on new hot-button issues like banning homework, technology use, and skipping kindergarten. Shumaker offers broader guidance on how parents can control their own anger and move from an overscheduled life to one of more free play.
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Amazing resource for parents and teachers
- By Ahmed on 05-11-16
By: Heather Shumaker
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Letters to a Young Sister
- By: Harper Hill
- Narrated by: Kevin R. Free
- Length: 9 hrs and 30 mins
- Unabridged
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Winner of two NAACP awards for his writing, bestselling author Hill Harper is an acclaimed actor known for his role on CSI: NY. A Brown University and Harvard Law School alum, Harper is also a passionate public servant. In this book he offers comforting advice for today's youth through his own wisdom as well as that of such luminaries as Michelle Obama and Angela Bassett.
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Keep writing young brother.
- By Charles Henderson on 03-02-10
By: Harper Hill
What listeners say about Retinitis Pigmentosa 101: How to Understand, Accept, and Live Your Best Life with Retinitis Pigmentosa
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- Amazon Customer
- 07-04-24
Upbeat and positive read.
This is a quick easy read with helpful advise and resources. Highly recommend for anyone with RP or any disability and their parents.
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- Jay Phillips
- 08-28-23
highly recommend this book upon recent diagnosis.
lots of websites and no excuses for doing what everyone else is doing. this is strengthening. thank you for writing about your experiences.
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