Showing titles in People with Disabilities

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

Most histories of wounded Civil War veterans construe them as feminized men whose manhood has suffered due to their inability to provide for and raise families or engage in business. Wounded for Life complicates this picture by examining how seven veterans—six soldiers and one physician—coped with their changed bodies in their postwar lives. Through these intimate stories, author Robert D. Hicks looks at the veteran's body as shaped by the trauma of the battlefield and hospital and the construction of a postwar identity in relation to that trauma.

Disability critiques of architecture usually emphasize the need for modification and increased access, but The Architecture of Disability calls for a radical reorientation of this perspective by situating experiences of impairment as a new foundation for the built environment. With its provocative proposal for "the construction of disability," this book fundamentally reconsiders how we conceive of and experience disability in our world.

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman.

For over 30 years, The Silent Garden has offered parents of deaf children the support and unbiased information needed to fully realize their children’s potential. This completely revised third edition is a must-have resource that will help parents navigate the complex and unique challenges they face. Accessible, practical, and above all open-minded, The Silent Garden educates parents quickly and thoroughly about the many conflicting points of view on what is best for their deaf children.

More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.

Despite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the well-being of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver.

Growing Up Disabled in Australia is the fifth book in the highly acclaimed, best-selling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt.

We think of perception as a passive, mechanical process, as if our eyes are cameras and our ears microphones. But as neurobiologist Susan R. Barry argues, perception is a deeply personal act. Our environments, our relationships, and our actions shape and reshape our senses throughout our lives. This idea is no more apparent than in the cases of people who gain senses as adults. Barry tells the stories of Liam McCoy, practically blind from birth, and Zohra Damji, born deaf, in the decade following surgeries that restored their senses.

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.

How I Became a Human Being is Mark O'Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O'Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O'Brien crafts a narrative that is as rich and vivid as the life he led.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

Two million people in the UK live with sight loss, and many more worldwide. Yet the general population knows very little about the day-to-day life of the blind, who must move through a world not designed with them in mind, from city planning and technology, to pop culture and education. What’s more, blind people often fall off the pages of our history books, despite being some of the most prolific figures in their fields.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

When her daughters are born deaf, Rosner is stunned. Then she discovers a hidden history of deafness in her family, going back generations to the Jewish enclaves of Eastern Europe. Traveling back in time, she imagines her silent relatives, who showed surprising creativity in dealing with a world that preferred to ignore them. Rosner shares her journey into the modern world of deafness, and the controversial decisions she and her husband have made about hearing aids, cochlear implants, and sign language.