Suffering the Silence
Chronic Lyme Disease in an Age of Denial
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Narrated by:
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Mandy Kaplan
About this listen
Allie Cashel has suffered from chronic Lyme disease for 16 years - but much of the medical community refuses to recognize her symptoms as the result of infectious disease. In Suffering the Silence: Chronic Lyme Disease in an Age of Denial, Cashel paints a living portrait of what is often called post-treatment Lyme syndrome, featuring the stories of chronic Lyme patients from around the world and their struggle for recognition and treatment.
In the United States alone, at least 300,000 people are diagnosed with Lyme disease each year, and it is estimated that 20 percent of them go on to develop chronic symptoms of the disease, including (but not limited to) muscle and joint pain; digestive problems; extreme fatigue, confusion, and dizziness; sensations of burning and numbness; and immune-system dysfunction. Before reaching a final diagnosis, many of these patients are misdiagnosed with diseases and conditions like lupus, multiple sclerosis, fibromyalgia, chronic fatigue syndrome, depression, anxiety, and even dementia. Despite these numbers and routine misdiagnoses, The Centers for Disease Control and Prevention (CDC) and Infectious Diseases Society of America (IDSA) claim it is impossible for the Lyme bacteria to survive in the body after standard antibiotic therapy. For these chronic patients who have their suffering routinely dismissed by doctors - and even family and friends - the social effects of the illness can be as crippling as the disease itself.
Suffering the Silence is a personal and provocative call to break the stigma and ignorance that currently surrounds chronic Lyme disease and other misunderstood chronic illnesses - but it is also a message of hope and comfort for Lyme sufferers, encouraging them to share their stories, seek out treatment, and remember that they are not alone.
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- By Pamela Harvey on 07-23-09
By: Elyn R. Saks
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The Inheritance
- A Family on the Front Lines of the Battle Against Alzheimer's Disease
- By: Niki Kapsambelis
- Narrated by: Callie Beaulieu
- Length: 9 hrs and 46 mins
- Unabridged
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Every 69 seconds, someone is diagnosed with Alzheimer's disease. Of the top 10 killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer's, an inherited genetic mutation that causes the disease in 100 percent of cases, and has a 50 percent chance of being passed onto the next generation.
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A Cover-to-Cover Slug in the Gut, but Inspiring
- By Gillian on 04-16-17
By: Niki Kapsambelis
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Surviving and Thriving with an Invisible Chronic Illness
- How to Stay Sane and Live One Step Ahead of Your Symptoms
- By: Ilana Jacqueline
- Narrated by: Lori Prince
- Length: 5 hrs and 14 mins
- Unabridged
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Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see.
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Great Reference Guide!
- By Heather D on 03-21-18
By: Ilana Jacqueline
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Brainstorm
- Detective Stories from the World of Neurology
- By: Suzanne O'Sullivan
- Narrated by: Christine Williams
- Length: 8 hrs and 51 mins
- Unabridged
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Brainstorm follows the stories of people whose medical diagnoses are so strange even their doctor struggles to know how to solve them. A man who sees cartoon characters running across the room; a girl whose world suddenly seems completely distorted, as though she were Alice in Wonderland; another who transforms into a ragdoll whenever she even thinks about moving. The brain is the most complex structure in the universe. Neurologists must puzzle out life-changing diagnoses from the tiniest of clues, the ultimate medical detective work.
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Not As Compelling...
- By Douglas on 11-08-18
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The Neuroscientist Who Lost Her Mind
- My Tale of Madness and Recovery
- By: Barbara K. Lipska, Elaine McArdle - contributor
- Narrated by: Emma Powell
- Length: 6 hrs and 54 mins
- Unabridged
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In 2015, Barbara Lipska - a leading expert on the neuroscience of mental illness - was diagnosed with melanoma that had spread to her brain. Within months, her frontal lobe, the seat of cognition, began shutting down. She descended into madness, exhibiting dementia- and schizophrenia-like symptoms that terrified her family and coworkers. But miraculously, the immunotherapy her doctors had prescribed worked quickly. Just eight weeks after her nightmare began, Lipska returned to normal. With one difference: she remembered her brush with madness with exquisite clarity.
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Be Prepared To Feel Insane--
- By Gillian on 04-11-18
By: Barbara K. Lipska, and others
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Changing the Way We Die
- Compassionate End-of-Life Care and the Hospice Movement
- By: Sheila Himmel, Fran Smith
- Narrated by: Coleen Marlo
- Length: 6 hrs and 49 mins
- Unabridged
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There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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Sadly, not very engaging.
- By Debra S. Long on 06-16-18
By: Sheila Himmel, and others
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Manufacturing Depression
- The Secret History of a Modern Disease
- By: Gary Greenberg
- Narrated by: Kirby Heyborne
- Length: 14 hrs and 10 mins
- Unabridged
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Am I happy enough? This has been a pivotal question since America's inception. "Am I not happy enough because I am depressed?" is a more recent version. Psychotherapist Gary Greenberg shows how depression has been manufactured---not as an illness but as an idea about our suffering, its source, and its relief. He challenges us to look at depression in a new way.
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Modern Gonzo Tour de Force
- By S. Frank on 11-12-11
By: Gary Greenberg
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Like a Mother
- A Feminist Journey Through the Science and Culture of Pregnancy
- By: Angela Garbes
- Narrated by: Roxana Ortega, Angela Garbes
- Length: 7 hrs
- Unabridged
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What to listen to after What to Expect.... A badass, feminist, and personal deep-dive into the science and culture of pregnancy and early motherhood that debunks myths and dated assumptions, offering guidance and camaraderie to women navigating one of the biggest and most profound changes in their lives. Like most first-time mothers, Angela Garbes was filled with questions when she became pregnant. What exactly is a placenta? How does a body go into labor? Why is breast best? What are the signs and effects of postpartum depression?
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Microchimerism - interesting at first, then profoundly healing
- By Emily Virgil on 09-10-18
By: Angela Garbes
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The Gift of Adversity
- The Unexpected Benefits of Life's Difficulties, Setbacks, and Imperfections
- By: Norman E. Rosenthal M.D.
- Narrated by: Erik Synnestvedt
- Length: 10 hrs and 21 mins
- Unabridged
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The noted research psychiatrist explores how life's disappointments and difficulties provide us with the lessons we need to become better, bigger, and more resilient human beings. Adversity is an irreducible fact of life. Although we can and should learn from all experiences, both positive and negative best-selling author Dr. Norman E. Rosenthal believes that adversity is by far the best teacher most of us will ever encounter.
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Book ruined by the narrator
- By David C. on 12-07-22
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Confessions of a GP
- By: Benjamin Daniels
- Narrated by: Eamonn Riley
- Length: 6 hrs and 1 min
- Unabridged
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Benjamin Daniels is angry. He is frustrated, confused, baffled and, quite frequently, very funny. He is also a GP. These are his confessions.A woman troubled by pornographic dreams about Tom Jones. An 80-year-old man who can't remember why he's come to see the doctor.
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Very enjoyable
- By PCF on 05-27-17
By: Benjamin Daniels
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How Doctors Think
- By: Jerome Groopman M.D.
- Narrated by: Michael Prichard
- Length: 10 hrs and 27 mins
- Unabridged
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On average, a physician will interrupt a patient describing her symptoms within 12 seconds. In that short time, many doctors decide on the likely diagnosis and best treatment. Often, decisions made this way are correct, but at crucial moments they can also be wrong: with catastrophic consequences. In this myth-shattering book, Jerome Groopman pinpoints the forces and thought processes behind the decisions doctors make.
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Disappointing
- By Audiophile on 05-13-07
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Doctored
- The Disillusionment of an American Physician
- By: Sandeep Jauhar
- Narrated by: Patrick Lawlor
- Length: 10 hrs and 38 mins
- Unabridged
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Hoping for the stability he needs to start a family, Sandeep Jauhar, an attending cardiologist, accepts a position at a massive teaching hospital on the outskirts of Queens. With a decade's worth of elite medical training behind him, he is eager to settle down and reap the rewards of countless sleepless nights. Instead, he is confronted with sobering truths. Doctors' morale is low and getting lower.
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Frank, inside perspective on the follies of unintended consequences in medical reform
- By JW on 02-25-18
By: Sandeep Jauhar
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When Breath Becomes Air
- By: Paul Kalanithi, Abraham Verghese - foreword
- Narrated by: Sunil Malhotra, Cassandra Campbell
- Length: 5 hrs and 35 mins
- Unabridged
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At the age of thirty-six, on the verge of completing a decade’s worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated.
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Phenomenal book!
- By A. Potter on 01-16-16
By: Paul Kalanithi, and others
What listeners say about Suffering the Silence
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- ReviewsAreLikeA......
- 07-20-21
Excellent storytelling, incredibly accurate
Anyone dealing w/ Lyme in any capacity needs to read or listen to this book!
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