Through the Shadowlands
A Science Writer's Odyssey into an Illness Science Doesn't Understand
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Narrated by:
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Julie Rehmeyer
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By:
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Julie Rehmeyer
About this listen
Julie Rehmeyer felt like she was going to the desert to die.
Julie fully expected to be breathing at the end of the trip - but driving into Death Valley felt like giving up, surrendering. She'd spent years battling a mysterious illness so extreme that she often couldn't turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill.
Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training as a science journalist and mathematician, she followed the advice of strangers she'd met on the Internet. Their theory - that mold in her home and possessions was making her sick - struck her as wacky pseudoscience. But they had recovered from chronic fatigue syndrome as severe as hers.
To test the theory that toxic mold was making her sick, Julie drove into the desert alone, leaving behind everything she owned. She wasn't even certain she was well enough to take care of herself once she was there. She felt stripped not only of the life she'd known, but any future she could imagine.
With only her scientific savvy, investigative journalism skills, and dog, Frances, to rely on, Julie carved out her own path to wellness - and uncovered how shocking scientific neglect and misconduct had forced her and millions of others to go it alone. In stunning prose, she describes how her illness transformed her understanding of science, medicine, and spirituality. Through the Shadowlands brings scientific authority to a misunderstood disease and spins an incredible and compelling story of tenacity, resourcefulness, acceptance, and love.
©2017 Julie Rehmeyer (P)2017 Julie RehmeyerListeners also enjoyed...
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- A Memoir in Remedies
- By: Megan Griswold
- Narrated by: Megan Griswold
- Length: 11 hrs and 14 mins
- Unabridged
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A hilarious and heartbreaking memoir-in-remedies by a self-described "professional soul-searcher" that details a journey of self-discovery through more than 160 tonics, seminars, regimens, and transformative therapies. With a voice that is at once intimate and hilarious, Megan captures the openness and honesty necessary for people to take a new path in life. Listeners will open the audiobook with curiosity about all the different healing therapies that Megan tries, but leave with a new understanding of themselves.
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Mr. Toad's Wild Ride has some serious competition!
- By Elisa R. Goodman on 02-15-19
By: Megan Griswold
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Expecting Adam
- A True Story of Birth, Rebirth, and Everyday Magic
- By: Martha Beck
- Narrated by: Joyce Bean
- Length: 12 hrs and 17 mins
- Unabridged
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From the moment Martha and her husband, John, conceived their second child, all hell broke loose. They were a couple obsessed with success. After years of matching IQs and test scores with less driven peers, they had two Harvard degrees apiece and were gunning for more. But the dream had begun to disintegrate. Then, when their unborn son, Adam, was diagnosed with Down syndrome, doctors, advisers, and friends in the Harvard community warned them not to keep the baby.
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True Life Fairy Tale
- By Desarae on 11-27-13
By: Martha Beck
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Chicken Soup for the Soul: Think Positive
- 101 Inspirational Stories about Counting Your Blessings and Having a Positive Attitude
- By: Jack Canfield, Mark Victor Hansen, Amy Newmark, and others
- Narrated by: Tanya Eby, Jim Bond
- Length: 10 hrs and 39 mins
- Unabridged
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101 True Stories about how Positive Thinking can change your life! Everyone needs a little attitude adjustment once in a while, and these amazing true life stories reveal how real people used positive thinking to improve their lives and overcome challenges. You’ll read stories about how you can make every day a special day, incorporate gratitude and joy into your daily life, count your blessings and change your outlook, use a few well-chosen words to reorient your life, manage cancer and other health challenges through a positive attitude, simplify and have a more meaningful life and more!
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Good overall.
- By Sergey Makeev on 02-21-24
By: Jack Canfield, and others
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Mother Warriors
- A Nation of Parents Healing Autism against All Odds
- By: Jenny McCarthy
- Narrated by: Tavia Gilbert
- Length: 5 hrs and 15 mins
- Unabridged
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No two autistic children heal in exactly the same way. And in her new book, Jenny expands her message to share recovery stories from parents across the country, showing how each parent fought to find her own child's perfect "remedy of interventions." Along the way, Jenny shares her own journey as an autism advocate and mother, as well as the continuing progress of her son, Evan. Emotional and genuinely practical, Mother Warriors will inspire a generation of parents with hope.
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McCarthy Is Pro Vaccine Safety
- By DEF on 04-16-16
By: Jenny McCarthy
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Marrow
- A Love Story
- By: Elizabeth Lesser
- Narrated by: Elizabeth Lesser, Sally Field
- Length: 9 hrs and 42 mins
- Unabridged
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A mesmerizing and courageous memoir: the story of two sisters uncovering the depth of their love through the life-and-death experience of a bone marrow transplant. Throughout her life Elizabeth Lesser has sought understanding about what it means to be true to yourself and, at the same time, truly connected to the ones you love. But when her sister, Maggie, needs a bone marrow transplant to save her life, and Lesser learns that she is the perfect match, she faces a far more immediate and complex question about what it really means to love.
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“ Love came first “
- By marie on 03-26-18
By: Elizabeth Lesser
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Don't Leave Me This Way
- Or When I Get Back on My Feet You'll Be Sorry
- By: Julia Fox Garrison
- Narrated by: Joyce Bean
- Length: 8 hrs and 10 mins
- Unabridged
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Julia Fox Garrison refused to listen to the professionals she called Dr. Jerk and Dr. Panic, who - after she suffered a massive, debilitating stroke at age thirty-seven - told her she’d probably die, or to Nurse Doom, who ignored her emergency call button. Instead she heeded the advice of kind, gifted Dr. Neuro, who promised her he would “treat your mind as well as your body.” Julia figured if she could somehow manage to get herself into a wheelchair, at least she’d always find parking. But after many, many months of hospitalization and rehab, Julia not only got into a wheelchair, but she got back out.
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Heroic Story
- By Pamela Harvey on 02-29-12
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Advice for Future Corpses (and Those Who Love Them)
- A Practical Perspective on Death and Dying
- By: Sallie Tisdale
- Narrated by: Gabra Zackman
- Length: 7 hrs and 11 mins
- Unabridged
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You get ready to die the way you get ready for a trip. Start by realizing you don't know the way. Listen to a few travel guides. Study the language, look at maps, gather equipment. Let yourself imagine what it will be like. Pack your bags. This book is one of those travel guides - a guide to preparing for your own death and the deaths of people close to you. The fact of death is hard to believe. Sallie Tisdale explores our fears and all the ways death and talking about death make us uncomfortable - but she also explores its intimacies and joys.
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I thought I had more time...
- By Alyssa on 09-09-19
By: Sallie Tisdale
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Schuyler's Monster
- A Father's Journey with His Wordless Daughter
- By: Robert Rummel-Hudson
- Narrated by: Johnathan McClain
- Length: 9 hrs and 10 mins
- Unabridged
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When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.
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Must-read for medical parents & those who ❤them
- By Kelly A. Wolske on 05-23-18
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The Last Best Cure
- My Quest to Awaken the Healing Parts of My Brain and Get Back My Body, My Joy, and My Life
- By: Donna Jackson Nakazawa
- Narrated by: Karen Saltus
- Length: 9 hrs and 18 mins
- Unabridged
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One day Donna Jackson Nakazawa found herself lying on the floor to recover from climbing the stairs. That’s when it hit her. She was managing the symptoms of the autoimmune disorders that had plagued her for a decade, but she had lost her joy. As a science journalist, she was curious to know what mind-body strategies might help her. As a wife and mother she was determined to get her life back. Over the course of one year, Nakazawa researches and tests a variety of therapies including meditation, yoga, and acupuncture to find out what works.
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Amazing book, but struggled with the voice.
- By erin norton on 01-05-18
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The Naked Lady Who Stood on Her Head
- A Psychiatrist's Stories of His Most Bizarre Cases
- By: Gary Small M.D., Gigi Vorgan
- Narrated by: Marc Cashman
- Length: 9 hrs and 46 mins
- Unabridged
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True stories are more bizarre than any fiction, and Dr. Gary Small knows this best. After 30 distinguished years of psychiatry and groundbreaking research on the human brain, Dr. Small has seen it all - now he is ready to open his office doors for the first time and tell all about the most mysterious, intriguing, and bizarre patients of his career. The Naked Lady Who Stood on Her Head is a spellbinding record of the doctor's most bewildering cases.
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90% Useless Information
- By Think B4 Eating on 10-01-10
By: Gary Small M.D., and others
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Cat Daddy
- What the World's Most Incorrigible Cat Taught Me About Life, Love, and Coming Clean
- By: Jackson Galaxy, Joel Derfner
- Narrated by: Jackson Galaxy
- Length: 6 hrs and 24 mins
- Unabridged
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In this book, Galaxy tells the poignant story of his 13-year relationship with a petite gray-and-white short-haired cat named Benny, and gives singular advice for living with, caring for, and loving the feline in your home. When Benny arrived in his life, Galaxy was a down-and-out rock musician with not too much more going on than a part-time job at an animal shelter and a drug problem. Benny's previous owner brought the cat to the shelter in a cardboard box to give him up.
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10 Stars!!!
- By Dawn J on 12-04-12
By: Jackson Galaxy, and others
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Carly's Voice
- Breaking Through Autism
- By: Arthur Fleischmann, Carly Fleischmann
- Narrated by: Patrick Lawlor, Cassandra Campbell
- Length: 11 hrs and 50 mins
- Unabridged
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At the age of two, Carly Fleischmann was diagnosed with severe autism and an oral motor condition that prevented her from speaking. Doctors predicted that she would never intellectually develop beyond the abilities of a small child. Although she made some progress after years of intensive behavioral and communication therapy, Carly remained largely unreachable. Then, at age 10, Carly had a breakthrough....
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A peek inside...
- By Yolanda on 08-09-13
By: Arthur Fleischmann, and others
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When Breath Becomes Air
- By: Paul Kalanithi, Abraham Verghese - foreword
- Narrated by: Sunil Malhotra, Cassandra Campbell
- Length: 5 hrs and 35 mins
- Unabridged
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At the age of thirty-six, on the verge of completing a decade’s worth of training as a neurosurgeon, Paul Kalanithi was diagnosed with stage IV lung cancer. One day he was a doctor treating the dying, and the next he was a patient struggling to live. And just like that, the future he and his wife had imagined evaporated.
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Phenomenal book!
- By A. Potter on 01-16-16
By: Paul Kalanithi, and others
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Ask Me Why I Hurt
- The Kids Nobody Wants and the Doctor Who Heals Them
- By: Randy Christensen M.D., Rene Denfeld
- Narrated by: Johnny Heller
- Length: 8 hrs and 28 mins
- Unabridged
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The unforgettable inspiring memoir of one extraordinary doctor who is saving lives in a most unconventional way, Ask Me Why I Hurt is the touching and revealing first-person account of the remarkable work of Dr. Randy Christensen. Trained as a pediatrician, he works not in a typical hospital setting but, rather, in a 38-foot Winnebago that has been refitted as a doctor's office on wheels. His patients are the city's homeless adolescents and children.
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The reality of our streets
- By SusanInTheMidwest on 08-26-17
By: Randy Christensen M.D., and others
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What listeners say about Through the Shadowlands
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- Here&There
- 08-18-19
Great writing & voice - applies to so many of us without easily definable illness
Thank you, Julie, for your wisdom, passion and honest voice. As a post concussion syndrome person who doctors can’t seem to help at all, it was inspirational to hear your journey.
So well written.
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- Chris N
- 08-29-18
Fast Listen, Well-Balanced for Target Audience
Author drones on in some segments but her humorous voiceovers make up for that. Account of romantic life a bit too personal. But appreciate her attempt at an in-depth, unbiased appraisal of her avoidance experience and the patient community, especially the "moldies." There's enough self-critique, skepticism, and emphasis that what helped her was not a total cure (unfortunately), may not work for everyone, and isn't a viable choice for most ME/CFS patients. She also tries her best to put some science behind the mold and sick-building correlation, but finds few experts willing to follow, likely fearing reputational and legal assault from the construction and insurance industries.
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1 person found this helpful
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- JJ Edwards
- 11-13-22
Gives me a whole new respect for patients w this
As a physician I have come across many of these cases throughout my career and they are admittingly difficult. this book helps me as a physician to understand what some of these people are going through and I found it immensely helpful thank you for your work Julie! Johnathan Edwards M.D.
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1 person found this helpful
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- Shelley J Hayden
- 11-17-24
I feel seen with MECFS!
As someone with MECFS who went 23 long years with no diagnosis, this story feels so relatable and rich. Our lives don’t just consist of our medical injuries and neglect and the horrors of our disease. We have lives that suffer, friends, loves, careers, talents that lay dormant, dreams unrealized, and so much more.
Julie is a wonderful story teller. So generous with her gift of pulling back the curtain in all the areas of her life threading this terrible disease that runs all the way through. I really related to the dreams unrealized and was inspired by the love story that still amazingly showed up against all odds.
It was so meaningful to hear Julie’s voice. I know what it took for her to narrate her own story. The sacrifices made to save up the energy. Thank you for this beautiful gift. I found her narration to be better than most professional narrators.
Her ability to move from complex science to exploring the spiritual side of our journey with depth, humility, and openness is beautiful.
I particularly loved the Berkeley references as a kid from Berkeley.
Julie is a beloved member of our community and I’m so grateful I had to spoons to finally listen to this wonderful book.
If you have a chronic illness, I believe you’ll see yourself in these pages along with experiencing ahas to help you on your journey. This is a book we can share with loved ones so they can catch a glimpse of our lives behind the curtain into. To understand the fight we’ve been in with little to no support, especially from the medical world.
If you’re looking for specifics on mold illness and MECFS, you’ll find a lot of useful information here.
To be seen and to have someone bear witness to our suffering is an incredibly healing experience. I found that in this book. We are not alone, even if our days can feel like that.
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- Jay
- 01-28-22
Can't talk, reading a pageturner about ME/CFS and mold!
As a patient, I related heavily to Julie's journey with ME. I appreciated her scientific perspective as she takes the reader on a journey through the darkest parts of a misunderstood condition to explore treatments outside what medicine usually recommends. I learned so much about my own illness, its history, and mold research.
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1 person found this helpful
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- Jaron Cramer
- 08-30-20
Gives me hope. Great performance.
I could not put this one down. The way that Julie sees things scientifically and logically and struggled to fit that with her reality of the woo-woo-ish treatments that cured her and lack of scientific understanding of MECFS/Mold Illness, gave me a really good perspective on how I can change my mind to help myself heal from CIRS/Biotoxin Illness. This book is a must read for science minded sufferers of mold illness! Additionally, her story is interesting, well crafted with flashbacks and historic explanations, vivid pictures of what she saw and felt. She gave me hope. When I survive, then it is all extra, an incredible blessing.
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- srolfe
- 06-17-19
I felt less alone in dealing with my own illness
I am not diagnosed with anything specifically yet, But I definitely have some chronic issues going on. I listened to Julie read her book over the past few weeks (almost exclusively during a fatigue, dizziness, or migraine episode of my own).
Her courage to become her own advocate when there seemed to be no logical answers for what she was going through has encouraged me to become more of an advocate for myself, as I strive to find what might be ailing me, And how I can best live my life in spite of it.
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- Janis
- 08-17-18
powerful and profound!!
I'm still crying with empathy and joy 15 minutes after finishing this book. Julie writes beautifully about her health journey and helped me understand my own daughter's challenges with ME - CFS.
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- Bridget O.
- 05-14-20
Beautiful story of struggle and survival
I’m addicted to this book! It is a beautiful description of having CFS and she gives such awesome and accurate details of the daily horrors of this condition. At the same time I’m tempted to stop and get the paperback book though.
I truly appreciate the author’s reading, but it sounds like she really needs a drink of water throughout the narrative. I’m having trouble getting over the constant dry, sticky saliva sounds. My guess is that she was on medication that caused dry mouth, which totally sucks cause I know what that’s like.
Whoever presided over this recording should have given this exceptionally talented woman a few more glasses of water!
Julie, well done!!
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- John C.
- 11-19-17
Informative and engaging!
I like how the author intertwined personal experience with her own research into her condition, and self experimentation. It made the book easy to listen to, and engaging both at a personal level and an intellectual level.
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1 person found this helpful