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Surviving and Thriving with an Invisible Chronic Illness
- How to Stay Sane and Live One Step Ahead of Your Symptoms
- Narrated by: Lori Prince
- Length: 5 hrs and 14 mins
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Publisher's summary
Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness.
Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood - and that's on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way.
Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see - such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MS).
This book will tell you everything you need to know about living with a complicated, invisible condition - from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You'll also learn to navigate judg-y or skeptical relatives and strangers and - most importantly - manage your medical care.
Suffering from a chronic illness doesn't mean you can't live an active, engaged life. This book will show you how.
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Professor of psychiatry Elyn R. Saks writes about her struggle with schizophrenia in this unflinching account of her mental illness. In The Center Cannot Hold, Saks draws readers into a nightmare world of medications, a misguided health-care system, and social stigmas. But she would not be defeated. With a strength and force of will that most can only imagine, Saks reclaimed her life and went on to achieve great success.
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Schizophrenia Inside Out
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Constructive Living
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Constructive Living combines two of the most popular forms of therapy in Japan into one profoundly effective approach that will not only enhance your productivity but also bring a flexible, responsive mind - a Zenlike tranquility - a to your personal and professional lives. Discover the life-changing potential of Morita therapy (based on taking right action in the moment) and Naikan therapy (a way to cultivate your awareness of how the world supports you) in three information-packed sessions.
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Insightfully Practical and Realistic
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The Grown-Up's Guide to Teenage Humans
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Written in Shipp's playfully authoritative, no-nonsense voice, The Grown-Up's Guide to Teenage Humans tells his story and unpacks practical strategies that can make a difference. Ultimately, it's not about shortcuts or magic words - as Shipp reminds us, it's about investing in kids and giving them the love, time, and support they need to thrive. And that means every kid is one caring adult away from being a success story.
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Read it....then read it again!
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Changing the Way We Die
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There’s a quiet revolution happening in the way we die. More than 1.5 million Americans a year die in hospice care - nearly 44 percent of all deaths - and a vast industry has sprung up to meet the growing demand. Once viewed as a New Age indulgence, hospice is now a $14 billion business and one of the most successful segments in health care. Changing the Way We Die, by award-winning journalists Fran Smith and Sheila Himmel, is the first book to take a broad, penetrating look at the hospice landscape.
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Sadly, not very engaging.
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Differently Wired
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Today millions of kids are stuck in a world that doesn't respect, support, or embrace who they really are - these are what Deborah Reber is calling the “differently wired” kids, the one in five children with ADHD, dyslexia, Asperger’s, and other neurodifferences. Their challenges are many. But now there’s hope. Written by Deborah Reber, a best-selling author and mother in the midst of an eye-opening journey with her son who is twice exceptional (he has ADHD, Asperger’s, and is highly gifted), Differently Wired is a how-to, a manifesto, a book of wise advice, and more.
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very well thought out but not for everyone
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Super You
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Superheroes don't start from glorious beginnings. Their origins are almost always marked by traumatic events that leave them helpless and scared. Batman witnessed his parents' murder. Superman was sent away from his dying planet with no one to guide him as he grew up. Orphaned Catwoman was forced to steal food to survive on the streets of Gotham. What makes these superheroes super is their determination to not be defined by helplessness. They embrace their origins, their flaws, and their mistakes and strive every day to become the best versions of themselves.
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A wonderful book filled with empathy and humanity.
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Irresponsible and Inaccurate for ME/CFS
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Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?
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When chronic pain and illness take everything away
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In this informative and action-oriented book, Dr. Melyssa Hoitink, ND presents natural solutions that will allow you to reduce your pain, exhaustion, and fibrofog, so you can get back to the life you are missing out on.
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The Chronic Fatigue Syndrome Epidemic Cover-Up
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As you will learn in Charles Ortleb's historically important audiobook, chronic fatigue syndrome is a potentially fatal illness that is contagious and linked to a deadly virus now suspected to be the cause of many immunological illnesses. The fact that doctors and nurses often come down with chronic fatigue syndrome should have made it clear long ago that chronic fatigue syndrome is contagious.
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Highly recommend!
- By Connie Gombert on 04-08-19
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From Fatigued to Fantastic! (Fourth Edition)
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This long-awaited updated edition of From Fatigued to Fantastic! includes the most up-to-date information, as well as state-of-the-art protocols and treatment plans that you can implement on your own or with the help of your physician. The answers are in your hands, with clearly organized, easy-to-understand information from one of the world's premier researchers in the field of CFS and FMS.
What listeners say about Surviving and Thriving with an Invisible Chronic Illness
Average customer ratingsReviews - Please select the tabs below to change the source of reviews.
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- Catherine Burns
- 07-08-18
LOVED THIS BOOK
Thank you so much for all your tools and encouragement!! I now feel empowered to fight for myself.
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6 people found this helpful
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- Heather D
- 03-21-18
Great Reference Guide!
I wish I had this with me when I first became ill, it would have saved me alot of heartache and tears. Ilanas words resonated with me on many levels. I would recommend this book to anyone learning to walk in this life with an invisible illness. Whether you have yet to be diagnosed or a seasoned patient, this is great tool.
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9 people found this helpful
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- Amazon Customer
- 05-01-24
So helpful & logical
As a 35 yr old woman, a mother, a wife, a nurse practitioner, I live with chronic pain due to hEDS and disruptive symptoms of dysautonomia. I’m at a crossroads of my condition and career and life where I needed some realistic advice but also some positive reassurance. Ilana Jacqueline nailed it for me! She even addressed how to approach the consideration of filing for disability; how she feels like she gets stares as a young adult using a handicap placard; or how acceptance is the biggest challenge. Thank you Ilana. I think I’ll probably even listen to this again!
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- Hannah Crazyhawk
- 11-02-20
A Vital Book!
This is my most favorite book about chronic illnesses. I found out about it in the Facial Pain Foundation's quarterly magazine. I have Trigeminal Neuralgia and many other debilitating chronic illnesses. I feel so alone. I just started chemotherapy. This book really helped me feel more empowered and it brought me comfort in so much darkness.
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2 people found this helpful
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- vducky
- 06-22-19
A must listen for anyone with chronic illness!!
Loved this book. From the performance to the content. Very informative and motivational to take your life back or keep your life despite chronic illness. Will definitely listen to multiple times through out my chronic illness journey.
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5 people found this helpful
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- Karen Austin
- 08-24-24
her perspective
I agree with what she is saying. She gave a lot of pearls of wisdom.
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- Jake
- 02-28-21
such a practical and honest presentation
As hard as it is to write a book about a topic that is different for every single person, the author does a great job of sharing her experiences, how she's come to find acceptance, and shares practical tips on how you can do the same, regardless of your symptoms.
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1 person found this helpful
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- Lani Paul
- 03-05-24
I learned a lot it made me stronger 
This book made me stronger, gave me the strength, and what I have learned, I would recommend this book to anyone with what it says, and invisible disease
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- Jobananamama
- 10-25-19
My absolute #1 go to.
My absolute #1 go to when I need to decompress, when anxiety is high. Everything she says, I can relate to.
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4 people found this helpful
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- laurie dahlstrom
- 06-03-22
Chronic Illness
I have several autoimmune diseases. The biggest problem is Shortens Syndrome. none of the protocol medications have helped. in 4 years I have never had a day of relief. Each day is worse than the one before. I am 74 years old. This book did nothing for me. Been there done that.
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1 person found this helpful